PhotoMore Than Food Allergies 2019

Tougher than food allergies and FPIES!

Tougher than food allergies and FPIES!
Food allergies and FPIES are tough, but he is tougher! We don't let our food issues get in the way of great fun.

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He has food allergies and intolerances, FPIES and hyperphe (the low end of PKU). We have been fortunate in that our family has been very supportive of his (our) needs. They try to have things available for him to eat so we get a break from having to pack his food. For those outside our immediate group, it seems that they are supportive, but don't always get the big picture. We are questioned frequently, although not in a bad way, simply to gain understanding. We explain that he has a particular diet and what happens to him when he has a reaction. Many are unaware of the different types of reactions, we have noticed. We usually get the "oh wow!" reaction or some type of feel sorry comment along with "well he looks healthy!". The best thing we have found is to bring his own food everywhere (tedious but worth it) and be ready to explain his situation. Spreading awareness is a big thing, because many just don't know enough about it. At his preschool, he has a special box of snacks for everyday munching, and we talk to his teachers about and upcoming special snacks. We try to find something comparable so he feels included. Keeping open communication is key! He is only four, but another thing we did was have a age-level appropriate conversation with him. He may not understand why his body is the way it is, but he does know to tell people that he is allergic to certain foods and can only have organic. He is definitely aware of his differences now. I feel a little more comfortable knowing he stands up for what he knows he can or can't have. 

I don't know if those are really "tips", but it is what has worked for us so far. 

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Kids With Food Allergies
A Division of the Asthma and Allergy Foundation of America
1235 South Clark Street Suite 305, Arlington, VA 22202
Phone: 1-800-7-ASTHMA (1.800.727.8462)
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