Lexi's EoE Journey

I am happy to hear you shared this video!  This video was created with the intention to spread awareness!

wow. wow. wow. this is the cutest little girl ever. floored by her smiles and joy in spite of all the pain.  

way to go mama and daddy too.  what a journey this has been for you both.

please keep us updated.

i shared the video on my facebook page; i really hope that is okay. please let me know asap if not. i figured it was since there was a "F" icon i clicked on. 

i try to be intentional in education/awareness with stuff like this.

Welcome to KFA, Rachael!  Glad you found us.

Have you checked out our forum for EE?  Lots more information and amazing support is available there and we'd love to have you join us.

ETA: Ha!  Jessica beat me to the link by a hair.  Didn't mean to double up on you.  Hope you'll pop in for a visit.

Rachael J!  Have you had a chance to check out our Eosinophilic Disorders Forum yet?  There are lots and lots of folks there who walk in your shoes.

Thank you I can relate to these feelings - its true life is a challenge and sometimes its hard to be understood. It makes our children fighters!