Advocating for Patients

Letter to the FDA: Require Food Manufacturers to Post Substitutions

On May 22, 2020, the Food and Drug Administration (FDA) relaxed labeling guidelines for food companies . This is a temporary measure because of food supply issues due to COVID-19 (the new coronavirus). The Asthma and Allergy Foundation of America (AAFA) met with the FDA to talk about how this will affect the food allergy community. After the meeting, we organized a joint letter with other food allergy advocacy organizations to send to the FDA. The letter addresses the FDA’s short-term food...

What the FDA’s Temporary Food Labeling Guidance Really Means for People With Food Allergies

Update: On May 28, 2020, AAFA met with the FDA to talk about how these temporary guidelines will affect the food allergy community. After the meeting, we organized a joint letter with other advocacy groups to send to the FDA. In our letter, we have asked the FDA to clarify these guidelines. We are also asking that the FDA require manufacturers to publicly post any substitutions they make. We will keep you updated on this issue. Read our joint letter to the FDA. The new coronavirus pandemic...

On the Offense: NFL Player Demetrius Harris Tackles Food Allergies Both on the Field and Off

During the NFL games this week, Demetrius and other players will be wearing custom cleats designed to represent the charities they are passionate about. The cleats will be auctioned off with 100% of the money raised going to their chosen organizations. Because of his son’s allergy to peanuts, Demetrius will have Kids With Food Allergies (KFA) represented on his cleats designed by Ryan Bare SR Customs.

AAFA Brings Patient Voice to FDA Committee Review on Palforzia, Oral Immunotherapy Treatment for Peanut Allergy

On Sept. 13, 2019, the U.S. Food and Drug Administration’s (FDA) Allergenic Products Advisory Committee recommended the approval of Aimmune Therapeutics’ peanut treatment, Palforzia. If approved, Palforzia would be ground-breaking for the future of food allergy treatments. What Is Palforzia? Palforzia, also known as AR101, is a type of oral immunotherapy (OIT) for peanut allergy. If approved, it would be the first FDA-approved treatment for peanut allergy. Currently, some allergists already...

Help Others See Beyond Food Allergies During National Asthma and Allergy Awareness Month and Food Allergy Awareness Week

Each May since 1984, the Asthma and Allergy Foundation of America (AAFA) has declared May to be National Asthma and Allergy Awareness Month. This month is dedicated to teaching others about asthma and allergies to create more awareness and understanding. Kids With Food Allergies (KFA) is a division of AAFA. May 12-18, 2019, is also Food Allergy Awareness Week. During this week, we focus on spreading information about what it’s like to manage food allergies and raise awareness about anaphylaxis,

Share Your Allergy Reactions to Sesame With the FDA

Sesame allergy ranks ninth in prevalence behind the top 8 allergens. But manufacturers are not required to clearly label sesame on their products. It can even go unlabeled under terms like “spices” and “natural flavoring.” This is very distressing as reactions to sesame can be among the most severe for adults and children. We are asking community members who have had an adverse reaction to sesame, or care for someone who has, to share their story with the FDA.

Letter to the Department of Health and Human Services: People With Allergies Need Access to Epinephrine

For the past few months, many members of our community have had trouble filling prescriptions for epinephrine auto-injectors. Some have been affected by shortages due to manufacturing issues. Others have been given one auto-injector when two have been prescribed, as decided by their insurance company. Families are walking away from pharmacies empty-handed, or driving miles out of their way to fill their prescription

 
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Kids With Food Allergies
A Division of the Asthma and Allergy Foundation of America
1235 South Clark Street Suite 305, Arlington, VA 22202
Phone: 1-800-7-ASTHMA (1.800.727.8462)
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