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Advocating for Patients

Food Allergy Advocacy Win: The President Signs the FASTER Act and Makes Sesame a Major Allergen

Update: The president has signed the FASTER ACT! On April 23, 2021, President Biden signed the Food Allergy Safety, Treatment, Education, and Research Act of 2021, also called the FASTER Act (H.R.1202/S.578), into law. This bill expands the definition of major allergens to include sesame and requires analysis of food allergy research. Under the FASTER Act, food manufacturers have until Jan. 1, 2023, to update labels of products containing sesame. But you may see sesame appear on labels...

Congress Passes School-Based Allergies and Asthma Management Program Act

Updates: It's official! On Jan. 5, 2021, the president signed the School-Based Allergies and Asthma Management Program Act into law. Thank you to our community. Your efforts helped to get this bill signed into law, which will help thousands of students with asthma and allergies and their families nationwide. AAFA Celebrates Major Advocacy Win! Congress Passes School-Based Allergies and Asthma Management Program Act, H.R. 2468 Law gives greater protections and resources to students with...

What the FDA’s Temporary Food Labeling Guidance Really Means for People With Food Allergies

Update – July 16, 2020: The FDA's temporary labeling guidance will remain in effect for the length of the public health emergency (PHE) due to the spread of the new coronavirus (SARS-CoV-2). A PHE is determined and declared by the secretary of the Department of Health and Human Services (HHS). The PHE remains in place during the emergency or 90 days, but may be extended by the secretary. Though the current PHE is set to expire on July 25, 2020, HHS Secretary Azar has said he will extend the...

Letter to the FDA: Require Food Manufacturers to Post Substitutions

Update: We are pleased to announce that on June 18, 2020, the FDA responded to our joint letter on their temporary labeling guidelines. They released a list of FAQs to help clear up confusion. The FDA is making it clear that: Any substitution that involves a top 8 allergen recognized by law and those identified as “priority allergens” by other countries including sesame, celery, lupin, buckwheat, molluscan shellfish and mustard must require a label change by manufacturers and vendors The...

On the Offense: NFL Player Demetrius Harris Tackles Food Allergies Both on the Field and Off

During the NFL games this week, Demetrius and other players will be wearing custom cleats designed to represent the charities they are passionate about. The cleats will be auctioned off with 100% of the money raised going to their chosen organizations. Because of his son’s allergy to peanuts, Demetrius will have Kids With Food Allergies (KFA) represented on his cleats designed by Ryan Bare SR Customs.

AAFA Brings Patient Voice to FDA Committee Review on Palforzia, Oral Immunotherapy Treatment for Peanut Allergy

On Sept. 13, 2019, the U.S. Food and Drug Administration’s (FDA) Allergenic Products Advisory Committee recommended the approval of Aimmune Therapeutics’ peanut treatment, Palforzia. If approved, Palforzia would be ground-breaking for the future of food allergy treatments. What Is Palforzia? Palforzia, also known as AR101, is a type of oral immunotherapy (OIT) for peanut allergy. If approved, it would be the first FDA-approved treatment for peanut allergy. Currently, some allergists already...

Help Others See Beyond Food Allergies During National Asthma and Allergy Awareness Month and Food Allergy Awareness Week

Each May since 1984, the Asthma and Allergy Foundation of America (AAFA) has declared May to be National Asthma and Allergy Awareness Month. This month is dedicated to teaching others about asthma and allergies to create more awareness and understanding. Kids With Food Allergies (KFA) is a division of AAFA. May 12-18, 2019, is also Food Allergy Awareness Week. During this week, we focus on spreading information about what it’s like to manage food allergies and raise awareness about anaphylaxis,

Share Your Allergy Reactions to Sesame With the FDA

Sesame allergy ranks ninth in prevalence behind the top 8 allergens. But manufacturers are not required to clearly label sesame on their products. It can even go unlabeled under terms like “spices” and “natural flavoring.” This is very distressing as reactions to sesame can be among the most severe for adults and children. We are asking community members who have had an adverse reaction to sesame, or care for someone who has, to share their story with the FDA.

Letter to the Department of Health and Human Services: People With Allergies Need Access to Epinephrine

For the past few months, many members of our community have had trouble filling prescriptions for epinephrine auto-injectors. Some have been affected by shortages due to manufacturing issues. Others have been given one auto-injector when two have been prescribed, as decided by their insurance company. Families are walking away from pharmacies empty-handed, or driving miles out of their way to fill their prescription

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Kids With Food Allergies
A Division of the Asthma and Allergy Foundation of America
1235 South Clark Street Suite 305, Arlington, VA 22202
Phone: 1-800-7-ASTHMA (1.800.727.8462)
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