Tagged With "Research"

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Re: New Epinephrine Study Shows Alarming Results

MMJMOM ·
I'm shocked, but not surprised as I know several people who don't carry the epi pens with them for their kids. I don't understand what good the epi will do if its at home and you are out. I feel as if my DDs medication bag is an extension of her. Wherever she goes, it goes. When she was first diagnosed several years back, there were 2 occasions I left it home. I turned right around to get it. To me, that is her lifeline. NOTHING is more important! I am equally as shocked with people whose...
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Re: New Epinephrine Study Shows Alarming Results

aboreem1969 ·
Dear Dr. my son has severe cow milk allergy and we live in Kuwait. Is this allergy supposed to disappear or the symptoms alleviate by age. He is now three years and half and was diagnosed as milk allergy when he was 6 months old.
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Re: New Epinephrine Study Shows Alarming Results

Kathy P ·
Hi Aboreem1969 - welcome to KFA! There is no absolute time line for outgrowing a food allergy (not reacting anymore). How has your son's allergy been monitored? Has he been tested periodically to see if the numbers are decreasing? Has he eaten anything with milk recently and still showing reactions?
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Re: New Epinephrine Study Shows Alarming Results

rose12328 ·
@ Wendy Mains-- I think I know why your child had to use his epi pen so many times in the ER/hospital. Hospitals are FILLED with corn-derived products. I am also corn-allergic. I found out the hard way, after a lifetime (I'm in my 50s!) of migraines, joint pains, spontaneous vomiting seemingly without a cause, I ended up at the big famous institution in Minnesota. The immunologist looked at the results of a basic saliva genetic test that I had purchased and had processed. He said I should...
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Re: New Epinephrine Study Shows Alarming Results

Kathy P ·
Wow Rose, thanks for sharing your story. My kids were both highly sensitive to corn and derivatives when they were little. Both outgrew it by middle school, but it was a real challenge to avoid and many just wouldn't believe where corn hid and that the highly processed stuff could possibly be an issue. Thankfully mine were not anaphylactic.
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Re: FDA Gives Experimental Peanut Allergy Patch Special Status Designed to Speed Review

StephC ·
Same here. And how do we get notified about trials for milk?
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Re: FDA Gives Experimental Peanut Allergy Patch Special Status Designed to Speed Review

Abigail's Mommy ·
How can we find a Phase III trial? I'm interested in doing this.
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Re: Webinar: Anaphylaxis in America: A Look at the Landmark Study

Kids With Food Allergies ·
Video and Resources from the webinar: http://community.kidswithfooda...-video-and-resources
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Re: The LEAP Trial 12 Months Later: Are We Ready to LEAP-On Peanut Allergy?

NKS ·
Ok, I'm probably going crazy but these seem wrong too! LEAP-On enrolled 88.5% of children from the original trial (556 children). Adherence to peanut avoidance in both groups was high during the 12 months families were told to stay away from peanuts: - 4% in the original peanut avoidance group, and - 3% in the peanut-eating group On Fri, Mar 4, 2016 at 3:29 PM, Kids With Food Allergies < support@aafa.org > wrote:
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Re: The LEAP Trial 12 Months Later: Are We Ready to LEAP-On Peanut Allergy?

KFA News Team ·
EDIT: We fixed a coding error above to correct this section: Adherence to peanut avoidance in both groups was high during the 12 months families were told to stay away from peanuts: 90.4% in the original peanut avoidance group, and 69.3% in the peanut-eating group
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Re: Free Webinar: A Look at the Landmark Study Anaphylaxis in America with Dr. Robert Wood

Kids With Food Allergies ·
Video and Resources from the webinar: http://community.kidswithfooda...-video-and-resources
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Re: New Peanut Allergy Study Does Not Say Parents Are to Blame

Kathy P ·
Well said! I've seen a lot of guilt responses to the study.
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Re: New Peanut Allergy Study Does Not Say Parents Are to Blame

Eliezrah ·
I haven't heard anything about this study, but food allergies aren't anyone's fault!!
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Re: New Peanut Allergy Study Does Not Say Parents Are to Blame

Leab ·
Great article :-) Thanks for taking the time to post it KFA!
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Re: New Peanut Allergy Study Does Not Say Parents Are to Blame

Kathy P ·
Eliezrah - this is in reference to the LEAP study that was announced at AAAAI last weekend. You can read more about it here (link is also in the above article) Landmark Study May Change How We Feed Peanut Butter To Infants
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Re: New Peanut Allergy Study Does Not Say Parents Are to Blame

Eliezrah ·
Thanks Kathy. I can see why some people can read it as blaming the parents.
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Re: New Peanut Allergy Study Does Not Say Parents Are to Blame

Jessica Dabler Martin ·
A very big thank you! This is fabulous information that needs to be heard more. I'm editing my blog post to include a link to KFA's post. Thank you again!
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Re: New Peanut Allergy Study Does Not Say Parents Are to Blame

Kathy P ·
Thank you Jessica for including a link! And for helping us get the info out!
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Re: New Peanut Allergy Study Does Not Say Parents Are to Blame

Juneau ·
Thank you doctors for posting this. I have wondered what I could've, should've, or would've done better, different, or something. Beating myself up over it doesn't change anything. I know all those parents out there with severely peanut allergic children did not do everything the same. I actually think it would've been a lot more difficult to watch my infant have an anaphylactic reaction than my 2 year old. At least she could talk to me.
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Re: New Peanut Allergy Study Does Not Say Parents Are to Blame

RW ·
A free press is not free to lie, mislead, and over-hype and it is high time to hold them accountable for all the damage they are doing to kids with allergies and society in general. The press is hugely irresponsible in how they report scientific findings. Science is slow, particular, and often very inconclusive. How many kids are going to DIE because of irresponsible reporting?! We have ongoing battle with family members and school administrators who deep in their hearts believe this is our...
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Re: Prolonged Avoidance of Peanuts after Peanut Oral Immunotherapy May Reverse Its Effects

Kids With Food Allergies ·
KFA's Note: Oral immunotherapy for food allergens is still being investigated by researchers. This is not something to try at home, but rather to discuss with your allergist.
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Re: Treatment Hope for Those with Multiple Food Allergies

A-Ma ·
I imagine this post will be shared with many relatives and friends. Thank you for posting the most recent research here! (my first question was, "does this mean people should run out and try this combined therapy?" and my second was, "Hmm. I have a small child and I wonder what the side effects of this drug would be on her physical, neurological, and hormonal development if she did this.." Thanks again for all your work here, I absolutely love and trust this site!
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Re: Treatment Hope for Those with Multiple Food Allergies

Kids With Food Allergies ·
Hi A-Ma, This type of treatment is still undergoing research studies and is not being performed in allergy clinics across the country yet. The drug described in this study is actually an injectable medicine for asthma that has not been proven/approved for use in other allergic diseases yet. It is currently only approved for use in children over age 12. The concerns you mentioned about side effects and how it may affect the child are all great questions that will be investigated as the...
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Re: Peanut Patch Could Be Game Changer

Hamadred ·
This could be life changing for so many people. I can't wait to see how this develops!
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Re: Study of Australian Children Points to Possible Clue in Curing Peanut Allergy

RW ·
Thank you for sharing the citation. I read the abstract as the full text wasn't available. They did not control for peanut component, just skin test wheal size. I wonder why since such a difference has been shown with the components... I'd like to open up a question too as I noticed the study included very young children. I'm a mom with a peanut allergic kid and I want there to be research done, but I'm in an ethical conundrum when it comes to putting my kid in a study. I'm just not sure it...
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Re: Study of Australian Children Points to Possible Clue in Curing Peanut Allergy

Allison ·
Hmmm. Good question! I'm not a doctor, but I can throw out some theories based on conversations I have had with doctors, plus my family's own experience with medical studies. I'm thinking that there may be a difference in how food allergy works or presents in children vs. adults, so the results would not be the same. Logistically, depending on the study, visits may require you to see a doctor somewhat often - it varies on the study. One I just looked at was every two weeks. If you work FT...
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Re: Study of Australian Children Points to Possible Clue in Curing Peanut Allergy

RW ·
Thanks for your thoughtful response! We parents are faced with some difficult choices aren't we? How did you discover you child was allergic to things like mustard and chickpeas? My kid is swearing a Twizzler made her throat hurt, but she's not real trustworthy right now, she eats another flavor of them all the time and the ingredients are identical. I thin she didn't like this flavor and wanted the "yummy medicine" like her brother had moments before when dinner made his mouth itch. We are...
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Re: Study of Australian Children Points to Possible Clue in Curing Peanut Allergy

Allison ·
Mustard - he had a hot dog, which included it as a hidden spice. He threw it up within the hour and had profuse rhinitis as well (sneezing/discharge from nose). We added that to the testing list at his next appointment. Chick peas, I honestly don't remember, it was so long ago. It may have been a rash around his mouth and itchiness. Shellfish is new. He was eating shrimp ok. He didn't really like it but I chopped it up small and gave it to him about once a month. Then I sort of fell off that...
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Re: Study of Australian Children Points to Possible Clue in Curing Peanut Allergy

RW ·
Wow! What a tough journey. I love shrimp but am kind of afraid to try it with my kid. We had a bad experience with trying TN at home. I would advise your friend with the PN daughter to take it in careful steps. I thought my DD was PN only and gave her almonds, it went fine. Then I gave her cashews and we called 911.... First step is peanut component blood test. Apparently there are several different proteins in the peanut one can be allergic to. Some proteins track towards "outgrowing" it,...
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Re: Study of Australian Children Points to Possible Clue in Curing Peanut Allergy

Kathy P ·
Yes, there is what is called "component testing" which can help predict the chances of outgrowing and/or passing an oral challenge based on which proteins you react to. All tree nuts are lumped together, but botanically/allergenically, there are different categories. The big problems is that they are all often processed together making everything cross contaminated. That's why a lot will recommend avoiding all tree nuts and peanuts if you are allergic even to just one. The chances of cross...
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Re: Study of Australian Children Points to Possible Clue in Curing Peanut Allergy

RW ·
She is 6 and loves cooking with me. She's also a great reader and we practice with labels. One thing I've wondered.... Do you know of a book that teaches kids the different names of nuts in a fun way? I learned by eating them, but when you avoid nuts it is hard to teach a kid all the names and shapes to be alert for. Thanks for all the feedback. I can't tell you how much I appreciate this website.
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Re: Study of Australian Children Points to Possible Clue in Curing Peanut Allergy

Kathy P ·
I don't know of any, but maybe others have some ideas. You will get more input if you ask that question on the Main forum .
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Re: Study of Australian Children Points to Possible Clue in Curing Peanut Allergy

Allison ·
I recently conducted a fake food tour via the Internet of various cheeses and nuts my son had to look out for. You could use Google Images.... We used to have a book but it was aimed at toddlers - I can't remember the name of the top of my head.
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Re: New Peanut Allergy Study Does Not Say Parents Are to Blame

Krissandra ·
I wish this could have applied to my children. My 4yo boy tested highly positive to peanuts at 6 months of age, so he would have been deemed too high risk to participate, anyway. And then there's my daughter, who has FPIES and still hasn't gotten around to trying peanuts. Now I'm terrified that the extremely slow process of introducing food into her diet means I've already missed my window of early prevention. She's definitely high risk for developing a peanut allergy since she has a sibling...
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Re: Treatment Hope for Those with Multiple Food Allergies

Btscott ·
I understand that Xolair is experimental for children with food allergies and only for kids 12 and up. But it is my understanding that OIT and SLIT is being done in regular clinic settings and not just in clinical trials . Is the any hospital/ clinic in the country that is doing OIT or SLIT for children with fish allergies? I have seen it only for nuts, milk and eggs. Thanks for any information you have.
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Re: Treatment Hope for Those with Multiple Food Allergies

Allison ·
Whenever I want to check to see who is doing what in research, I look at www.clinicaltrials.gov Putting in food allergies yields 374 results - that includes studies that are not yet recruiting and those that are done.. https://www.clinicaltrials.gov...es&Search=Search I am not sure about regular clinic settings - I just reread your question.
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Re: Study of Australian Children Points to Possible Clue in Curing Peanut Allergy

RW ·
Is this a published study and do you have a citation? All I can find are new clips like this (that will probably get kids sent to the hospital.)I can't tell from any of the articles I've read say if the study was controlled for peanut component since kids are allergic to different proteins. I also wonder what the side effects were to ingesting that much bacteria. Gut flora is an ecosystem of it's own, and disrupting it may have consequences.
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Re: Study of Australian Children Points to Possible Clue in Curing Peanut Allergy

Allison ·
Hi, thank you for noticing! This is the citation; I read the study and I don't recall if they looked at different components, I would have to check again. We tried to make it clear that this is really just a first step and that parents should never, ever attempt to replicate medical studies at home! The citation is: Administration of a probiotic with peanut oral immunotherapy: A randomized trial Tang, Mimi L.K. et al. Journal of Allergy and Clinical Immunology A press release to the research...
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Re: The Future of Food Allergy: Developing New Treatments

Jessica Dabler Martin ·
Fantastic overview of what is on the horizon. Thank you!
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Re: The Future of Food Allergy: Developing New Treatments

Sandra Sebastian ·
Hi Michael, Very interesting for us to read as I have more than one grandchild with food allergies! Congratulations on all your accomplishments and studies. Love from us all, your old Oxford neighbour!
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Re: The Future of Food Allergy: Developing New Treatments

cheymom ·
Welcome Jessica & Sandra! We are glad you found KFA. We hope you will join us on our Support Forums. We have several forums that may be of interest. Main Forum Babies, Toddlers & Preschoolers We even have a new forum for saving money! http://community.kidswithfooda...s-for-food-allergies We have a fantastic Food & Cooking forum Don't forget to check out our recipe section! Come join us! .
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Re: The Future of Food Allergy: Developing New Treatments

franandpaul ·
Thanks for this great overview!
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Re: The Future of Food Allergy: Developing New Treatments

sageone ·
This gives me hope that my child will eventually be allergy free and his life will not be in danger from a simple item of food! Thank you so much for this great article in layman terms so that we parents can understand it!
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Re: The Future of Food Allergy: Developing New Treatments

EAH123 ·
What a great overview! Thank you!
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Re: The Future of Food Allergy: Developing New Treatments

Pearl ·
We are already doing Chinese Herbal medicine and seeing progress.
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Re: The Future of Food Allergy: Developing New Treatments

LinzStein ·
Great overview! KFA- is there any additional info about the use of Allergen non-specific therapies for EoE? What about accupressure or homeopathics? Thank you!
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Re: The Future of Food Allergy: Developing New Treatments

Kathy P ·
I haven't seen anything specific regarding those. You could check in the News & Research forum.
Blog Post

NIH-Funded Study Shows Peanut Allergy Prevention Strategy Is Nutritionally Safe

Kids With Food Allergies ·
Early-Life Peanut Consumption Does Not Affect Duration of Breastfeeding or Children’s Growth and Nutrition
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Re: NIH-Funded Study Shows Peanut Allergy Prevention Strategy Is Nutritionally Safe

Will Way ·
The peanut thing confuses me really. I wonder what about peanuts is so allergenic that if it is not introduced early that many children have reactions to it. That seems to be the million dollar question, right?
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Re: NIH-Funded Study Shows Peanut Allergy Prevention Strategy Is Nutritionally Safe

Will Way ·
Hi Chaunta! Welcome to KFA! Do you have a child with peanut allergies?
Kids With Food Allergies
A Division of the Asthma and Allergy Foundation of America
1235 South Clark Street Suite 305, Arlington, VA 22202
Phone: 1-800-7-ASTHMA (1.800.727.8462)
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