Tagged With "oral immunotherapy"

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Re: Itchy Mouth After Eating Fruits and Vegetables?

Kathy P ·
We deal w/ OAS here too - easier to manage in that it likely wont' result in a severe reaction, but it means so many more foods to avoid.
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Re: Itchy Mouth After Eating Fruits and Vegetables?

BerCake ·
My 5 year old is allergic to citrus.
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Re: Itchy Mouth After Eating Fruits and Vegetables?

Kathy P ·
Is your 5yo IgE allergic to citrus or OAS/cross reactive allergic to citrus? My ds was allergic to citrus as a toddler, but outgrew it. But it was not OAS since it was systemic/gi symptoms.
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Re: Demystifying Oral Food Challenges

remo davis ·
Whenever we give egg to our child he vomits.I didnt knew about egg allergy. Initially we thought it is because the child hates egg or may be due other stomach problems.So we didnt often gave egg to him thinking the child may not like it .It was his baby sitter from Wee watch at Ontario made us realize that the child may be suffering from egg allergy.Soon we consulted with a doctor .Great blog!
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Re: Demystifying Oral Food Challenges

Kathy P ·
Welcome to KFA Remo! I'm glad you have someone who helped connect the dots for the egg allergy. Please let us know how we can help! We can help w/ egg free recipes or navigating starting school or dealing with less than supportive relatives.
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Re: Treatment Hope for Those with Multiple Food Allergies

A-Ma ·
I imagine this post will be shared with many relatives and friends. Thank you for posting the most recent research here! (my first question was, "does this mean people should run out and try this combined therapy?" and my second was, "Hmm. I have a small child and I wonder what the side effects of this drug would be on her physical, neurological, and hormonal development if she did this.." Thanks again for all your work here, I absolutely love and trust this site!
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Re: Treatment Hope for Those with Multiple Food Allergies

Kids With Food Allergies ·
Hi A-Ma, This type of treatment is still undergoing research studies and is not being performed in allergy clinics across the country yet. The drug described in this study is actually an injectable medicine for asthma that has not been proven/approved for use in other allergic diseases yet. It is currently only approved for use in children over age 12. The concerns you mentioned about side effects and how it may affect the child are all great questions that will be investigated as the...
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Re: Demystifying Oral Food Challenges

Kelly02 ·
We are so fortunate to have the author of this article on our son's team at the University of Michigan Food Allergy Clinic. His oral food challenges have been positive experiences for us...have gone just as Nancy explained, and with wonderful follow-up. Our son has passed heated milk, baked egg, and most recently all dairy. On Jan 16, his 10th birthday, he completed his 24 day incremental dairy introduction into his diet after passing his oral challenge in the clinic on December 23. He had...
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Re: Demystifying Oral Food Challenges

Jake's mom ·
What I wonder about are those stories that you hear about children dying because they ingested a small amount of an allergen, even after epi pens were used. How can we be sure the first tiny bite will not become our worst nightmare?? My son's allergist has recommended a food challenge but I can not bring myself to do this because of this fear. We would all love to know for sure though if he is allergic to some of these foods, since at this time he is diagnosed with 15 food allergies.
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Re: Demystifying Oral Food Challenges

Jen ·
Welcome to posting. . The thing to remember is that these challenges take place in a drs office, under medical supervision. They can catch a possible rxn at the first sign. This is different than those cases of accidental ingestion of a small amount where it may not be initially obvious that a. Any allergen was consumed and/or b. a reaction is occurring. Both of those situations could lead to a delay in giving epinephrine. Another thing to remember is that many cases of anaphylaxis self...
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Re: Demystifying Oral Food Challenges

Lynda ·
Hi Jake's mom, I've been through a couple of office-based food challenges. And I know what you mean about being hesitant. I took a while before I had the courage to schedule them. Besides what Jen already explained, one additional point is that they start very slowly. They may just touch the food to the lips, for instance. Then wait 15-20 and see what happens. The incrementally go up from there, waiting between doses to see if any reaction occurs. Your allergist may be able to give you some...
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Re: Demystifying Oral Food Challenges

SarahElizabeth ·
They gave me one of these tests to check if had a carrot allergy, and another to test my pepper allergy. I failed both, and ended up in the ER both times because one EpiPen dose couldn't calm down the reaction. They wanted to do more oral tests to make sure my blood tests for the other allergies were accurate, but my mom won't schedule them because she thinks it's too dangerous to try them right now. Any advice on how to talk to her about this?
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Re: Demystifying Oral Food Challenges

Kathy P ·
Did they do them slowly starting w/ a small amount of the food? We've only done one here and it failed very early on when the doc dabbed some on my dd's tongue. The challenge was stopped right then. This webinar might have more info about how to decide which challenges might be reasonable.
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Re: Treatment Hope for Those with Multiple Food Allergies

Btscott ·
I understand that Xolair is experimental for children with food allergies and only for kids 12 and up. But it is my understanding that OIT and SLIT is being done in regular clinic settings and not just in clinical trials . Is the any hospital/ clinic in the country that is doing OIT or SLIT for children with fish allergies? I have seen it only for nuts, milk and eggs. Thanks for any information you have.
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Re: Treatment Hope for Those with Multiple Food Allergies

Allison ·
Whenever I want to check to see who is doing what in research, I look at www.clinicaltrials.gov Putting in food allergies yields 374 results - that includes studies that are not yet recruiting and those that are done.. https://www.clinicaltrials.gov...es&Search=Search I am not sure about regular clinic settings - I just reread your question.
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Re: Will Oral Food Challenges or Accidental Ingestions Make Your Child's Food Allergy Worse?

Paula Tarpley (Lucy) ·
I hate that my insurance doesn't cover the allergy testing or the food challenge. Which leaves me with no choice but to do home challenges. This is very scary for me! What else can be done?
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Re: Will Oral Food Challenges or Accidental Ingestions Make Your Child's Food Allergy Worse?

Kathy P ·
That is very scary. It's important to do oral food challenges in a medically supervised setting with immediate availability of medical support/intervention in the event of a reaction. Your insurance won't cover any type of allergy testing? Neither skin or blood testing?
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Re: Will Oral Food Challenges or Accidental Ingestions Make Your Child's Food Allergy Worse?

Jen ·
That's frustrating, Paula. Would you consider switching insurance companies when it's open enrollment?
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Re: Will Oral Food Challenges or Accidental Ingestions Make Your Child's Food Allergy Worse?

Paula Tarpley (Lucy) ·
No, I can't insurance because this is the insurance through my husbands work. There is no way I'm going to be able to do a food challenge at home. I'm way too frightened of what could happen but what else is one to do when you know that at some point you have to know?! Talked with doctor today (left message) and asked if there is a way around it. They wouldn't even pay for the skin or blood allergy test. It's crazy! Our insurance is amazing and we've had 14 years. Never had to use the...
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Re: Will Oral Food Challenges or Accidental Ingestions Make Your Child's Food Allergy Worse?

kandicejo ·
I can't even wrap my head around an insurance that won't cover allergy stuff Allergies are such a widespread condition that can lead to time off work, etc. Hopefully the doctor has some good guidance for what you can do.
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Re: Will Oral Food Challenges or Accidental Ingestions Make Your Child's Food Allergy Worse?

Paula Tarpley (Lucy) ·
I'm hoping to hear something back! Praying they can come up with something different that my insurance will pay for. I can go to an allergist and pay my co-pay but when they want to start the testing, that's where my insurance stops! It ridiculous and I'm so upset about this. I know doctors can around it, some will and some won't. Hopefully I have one that will and can! Thank you all for your support! I don't have family or friends so it's difficult to deal with all by yourself.
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Re: Will Oral Food Challenges or Accidental Ingestions Make Your Child's Food Allergy Worse?

Paula Tarpley (Lucy) ·
Meant to say, "Don't have family or friends around!" Our families live in different states. We moved here when my husband got transferred.
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Re: Will Oral Food Challenges or Accidental Ingestions Make Your Child's Food Allergy Worse?

Heidi B ·
Hi Paula, hopefully you find an allergist that you like and trust. Be upfront with the Doctor about the insurance issues and your concerns. Some allergists - not all - will allow patients to come and sit in the waiting room while the food is ingested. I hope you find one that you can work with. The other thing is, the allergy tests run about $1,500 depending on how many foods you're running. You may find that the cost is worth it?
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Re: Q&A: What Does Omalizumab Mean for Oral Immunotherapy Treatment for Multiple Food Allergies?

APV ·
It must be clarified that OIT is not a cure. It is changing the disease state. IgE is naturally involved in helminth defense (worm infections). A "low intensity" worm infection is IgE dominated. This is equivalent to food allergy. A "high intensity" worm infection is IgG4 dominated (high IgG4/IgE) ratio. This is equivalent to a person with food allergy who has received OIT. In food allergy, your immune system has been programmed to recognize food items as worms. So continued food allergen...
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Re: Q&A: What Does Omalizumab Mean for Oral Immunotherapy Treatment for Multiple Food Allergies?

APV ·
Omalizumab is manufactured using Chinese hamster ovary (CHO) cells and is therefore contaminated with numerous CHO proteins. It is well documented that patients start developing anti-drug antibodies (ADA) against monoclonal antibody treatments such as omalizumab. This can result in drug ineffectiveness. More worrisome is antibodies created against CHO. It is well known from cancer research that immunization with homologous xenogeneic proteins (injection of animal proteins like CHO, that...
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Re: Certain Egg Allergy Patients Still Have Tolerance Five Years After OIT

kandicejo ·
It's so great to see research for egg allergy!
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Re: Champion in the Fight Against Food Allergies!

K8sMom2002 ·
Love this! What cute trophies! I tweaked the title of your photo -- let me know if you want to change it to something else!
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Re: Champion in the Fight Against Food Allergies!

Suzie Fromer ·
that's fine! thanks!
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Re: Champion in the Fight Against Food Allergies!

Momofthree ·
What a great pic! Thanks for sharing!
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Re: Study Shows It May Be Possible to Eat Peanut Regularly Years After OIT

ColoradoCarol ·
Articles about OIT in the news has been the bane of my existence. Every single new person I meet and tell about my son’s food allergies brings up OIT like I’ve never heard of it. And they dismiss his allergies like if I would just do OIT for him, he would be magically cured. Implication is that I’m either an idiot or a bad mom. As you all know, there are a lot of caveats with these studies. And OIT is nowhere near ready for prime time, as in everyone being able to do it or be cured by it. My...
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Re: Study Shows It May Be Possible to Eat Peanut Regularly Years After OIT

K8sMom2002 ·
Carol, you're certainly NOT a bad mom ... and so very far from being an idiot! Not every treatment for ANY disorder, including food allergies, is right for every person. Each family has to figure out the benefits and risks that are unique to their own situation. You're being careful and doing your due diligence and making the best decisions for your family.
Kids With Food Allergies
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