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That would be great to share it w/ your group! And also let them know that if they can't attend live, there is will be an archive posted later.
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Blog Post CommentHi Esther - I know that Auvi-Q and Epi Pen both have discounts at the moment to cover the cost of a prescription. You can see the link Lynda posted about regarding the Auvi-Q. And here is the info on EpiPen .
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Blog Post CommentWelcome Esther!! Sorry to hear that you are dealing with food allergies, but we are glad that you found us! You've come to the right place for support. The majority of insurances do cover epinephrine auto-injectors, but it really depends on your insurance policy as to which ones they will cover and how much they will cover. Has your doctor called in a prescription to your pharmacy already? Once your pharmacy has a prescription on file they should be able to submit a claim and tell you what...
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Blog Post CommentI put my comment because of post's title: «The Perfect Allergy-Friendly Cake and Raspberry Compote Recipe» The word «perfect» is the problem. You surely know that anyone reading that it will assume there's nothing wrong with it, hence it's «healthy». Which is not! The reply confirmed it! «No one said GF is healthy.» Shouldn't be? Shouldn't we promote GF healthy eating?! «Everything is in moderation.» Unhealthy in moderation? I do find the above arguments curious...
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Blog Post CommentDear Lynda & Kids with Food Allergies Organizatio- As a family with a 10 year old daughter with PA/TNA, you cannot know how VERY grateful WE are to YOU for all you do to keep us informed & feeling like we have SOMEWHERE to turn for support & guidance. The work you do is invaluable...cannot be measured...SOOOOOO incredibly important & SO reassuring to all who live with food allergies everyday. PLEASE keep up the good work that you do, and if there is ever ANYTHING we can do to...
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Blog Post CommentThank you for this article! I've always suspected that my 8 year old son's food allergy to dairy, eggs and nuts had something to do with his small size and this article helped affirm my suspicions. I've often been told by family that I'm a "helicopter mom" when it comes to making sure he eats and eats good. I do it because I know he has to make up with foods that will give him the equivalent or if not similar nutrients from foods he's allergic to. And with his high metabolism, it doesn't...
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Blog Post CommentStocking Epinephrine in Schools: What You Need to Know (Video & Resources) Watch the video here: http://community.kidswithfooda...sthash.o7K9Y1jp.dpuf
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Blog Post CommentThis is very interesting. Do you know if the generic for Adrenaclick will "overwrite" the brand one? We cannot seem to find its availability at least in FL.
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Blog Post CommentHello Francesca, By overwrite, do you mean will brand Adrenaclick production be halted or are you wondering about generic substitution requirements between the two? As far as availability, many pharmacies won't order in a product or keep a product in stock unless they see a need for it (ie: until they have consistent requests for it). If you would like a specific item, most pharmacies are happy to order it in for you, and often they can have it in stock within a day or two of your request.
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Blog Post CommentGood Morning! I'm a Mom of 2, ages 3.5 and 18 months. In our household we have an anaphylactic dairy allergy and a corn allergy. I am the one with the anaphylaxis and I've lived WELL with this allergy all my life. I'd just like to say that Thanksgiving is my favorite holiday and if there is extended family and friends who will cooperate with your food allergies, you can have a safe and delicious Thanksgiving. It's about trust... and about education... and possibly about providing recipes and...
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Blog Post CommentWelcome amazon. Sorry re the rxn. Glad you now know the cause.
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Blog Post CommentHi Everyone I am new to this. I have heard that kids with life threatening allergies are eligable for disability tax credit in canada. Does anyone know anout this? Thanks Christine
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Blog Post CommentHi Kim, Just be sure to read every ingredient label of every thing you use. Be aware that some ingredients in your kitchen may be contaminated if you ever double-dipped. The safest thing to do is buy all new ingredients. If you want to make a frosting/icing for this cake, you'll need to use milk and soy free shortening or margarine. Options are Earth Balance soy-free (red packaging) or coconut oil (among a few others). You can keep it simple and just do the solid fat (safe margarine or...
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Blog Post CommentThank you so much for this article. I have a son who is 9 years old and has EOE. He's allergic to almost all fruits and vegetables, nuts, barley, soy, corn, potatoes, rye, etc. He does not eat any kind of meats , fish, poultry. He got so tired of rice that now he can't even see it. Now the doctors decided that he should not eat anything that has wheat, milk and eggs on it because they believe that's what is making the disease worse. What should I do? I'm seeing a dietitian and everything she...
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Blog Post CommentWelcome Rosangela! We are glad you found us. I second the recommendation to post on our EOS forum: http://community.kidswithfooda...sinophilic_disorders Is your son on any type of formula? A formula can take the guess work out of the nutritional side of things. I know we have some members with older children that are drinking Neocate, Elecare or E028 juice box type drinks.
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Blog Post CommentHi Colleen! We do the same thing with all the candy that DS gets on Halloween. Due to the issues with repackaging there's no way to know if the safe candy has residue on them (or whether the residue is from the various home owners that I see snacking on treats as they give out candy ), we usually just give all the candy away and we either trade it out via the "Switch Witch" or we weigh it and give DS money for it. He's happy either way! Welcome to KFA , and hoping your loved ones have a safe...
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Blog Post Comment❤️All of these are based on user feedback. If you've had a bad experience, then go share that. If you've had a good experience somewhere, go share that. As for Chipotle, I know they are rolling out the change over. Our local restaurants have signs up about the rice oil change. I'm not sure the start of their printed material. I suggest calling or stopping in to ask about where that particular restaurant is in the changeover. PF Changs is very allergy aware. While it may not seem allergy...
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Blog Post Comment❤️The list will only get longer if we let the restaurants know about the allergens, the more who do the higher the likelihood they will consider making changes to there menu items.
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Blog Post CommentOriginally Posted by MACEMama: Mexican restaurants where I live often have language barrier issues, so I never trusted them with FA, though I enjoyed the food when I would go out without DS. We also did Chipotle the same way Mahbahlih describes. The only Spanish I know is how to explain DS's food allergies. I have perfected that. Now if you need a bathroom you're on your own, lol.
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Blog Post CommentOriginally Posted by czschack: I have never even considered a Mexican or Italian restaurant because of all the cheese, but maybe I'll give chipolte a try. Thanks for the good info. You are welcome. And remember, if you don't like the way they are handling something just tell them. I'm sure they will be happy to fix it. Even if they are grumpy about it, oh well. (That goes for all restaurants, not just Chipotle.) Our job is to keep our kiddos safe. If you go, let us know how it goes.
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Blog Post CommentI also ordered some of the white choco bars. Since my daughter hasn't had milk white bars hopefully she will Ike these. Will know after Easter....
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Blog Post Comment@ Wendy Mains-- I think I know why your child had to use his epi pen so many times in the ER/hospital. Hospitals are FILLED with corn-derived products. I am also corn-allergic. I found out the hard way, after a lifetime (I'm in my 50s!) of migraines, joint pains, spontaneous vomiting seemingly without a cause, I ended up at the big famous institution in Minnesota. The immunologist looked at the results of a basic saliva genetic test that I had purchased and had processed. He said I should...
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Blog Post Comment❤️I know this is an old post, but I wanted to share that I have bought Halloween candy and Christmas candy from Natural Candy Store. My son has severe allergies and they had a few options for him to enjoy. Definitely would recommend.
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Blog Post CommentBe sure to check out our food and cooking forum, as well as our recipe database. You might be able to get some ideas. If you see something that interests you, but would need an ingredient sub, let us know. Someone can help you.
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Blog Post Comment❤️As the mother of a son with an anaphylactic alergy to corn I can't stress the importance of carrying the epipen at all times even when food intake is not planned. He has been tested thoroughly and his only allergy is corn so we know if he has a reaction then corn was present and his reaction occurs within seconds. We walked into a small hospital for a pre op appointment and we weren't inside for more than 3 min. and he had his worst reaction ever (the 7th one that year-corn has a nasty habit...
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Blog Post Comment❤️I was complacent. My 14 year old daughter was complacent. Eye-rolls and annoyed posture every time I asked if she had her epi-pen. She doesn't remember her reaction when she was 2.75 years old and there have been many, many expired epi-pens since. I used to say it was the best money I ever threw away. Until this year, I got annoyed. I was certain I had sent in an epi-pen in the fall for school. The nurse sent an email to all delinquent parents of food allergic kids. "Your child's epi-pen is...
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Blog Post CommentI will certainly let him know. Thank you for using his photo... he was thrilled! Kimberly and Jayden Originally Posted by Kids With Food Allergies: AMommy, thank you for sharing Jayden with us and tell him that KFA says he's doing a great job taking care of himself and is setting a great example for other kids.
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Blog Post Comment❤️As a mother of a son (age 11) who has been dealing with this allergy combo. since one, I agree with this article. We also have contact and air borne to same which just adds to it all. The important thing to remember is to read, read and read and know about everything that goes into your child's mouth. Cooking things at home is major too. My dream is that they will find a cure to all food allergies and to find resturants that actually can come up with something for my child to eat besides...
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Blog Post CommentI'm shocked, but not surprised as I know several people who don't carry the epi pens with them for their kids. I don't understand what good the epi will do if its at home and you are out. I feel as if my DDs medication bag is an extension of her. Wherever she goes, it goes. When she was first diagnosed several years back, there were 2 occasions I left it home. I turned right around to get it. To me, that is her lifeline. NOTHING is more important! I am equally as shocked with people whose...
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Blog Post CommentI contacted Applegate because I have 3 packages of these nuggets. They called back. The recall is because regular nuggets were put into the gluten free boxes. I was relieved as I know my nuggets did not taste like a regular nugget. He offered me coupons and suggested I contacted the store that I bought my nuggets from to see if they received any shipments. Very quick reply.
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Blog Post CommentWhat are the ingredients? I have a corn-sensitive child and would like to know, without having to google etc, what the *rest* of the ingredients are ... posting here would be helpful. Thanks.
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Blog Post CommentDear KFA, Thank you so much for keeping us in the loop. Do you know if companies are fined for undeclared allergens found in food? It is a very dangerous and I know it is not done with malice but the world needs to take food allergies as serious. SiIncerely, Jane Guadagnoli On Mon, Dec 29, 2014 at 1:34 PM, Kids With Food Allergies < alerts@hoop.la > wrote:
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Blog Post CommentThis is very disappointing. You would think that doctors would know better...
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Blog Post CommentThis is by far not the first case of a person (toddler) have an anaphylactic reaction to oranges (or citrus). My child developed a severe allergic reaction to oranges (and other citrus) after previously not reacting to citrus and has since outgrown it. I also know several other families with ongoing citrus allergies. It think the prevalence of this is much higher than the author is aware of or the study concluded.
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Blog Post Comment❤️I think they may mean it was the first one reported...I don't know how they collect the info like that.
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Blog Post CommentThank you ladies. I took my little one to the doctor this morning, and she was amazing (the doctor)....turns out my son has a pretty bad bronchial infection that is only from being in a moldy environment so he is on meds now. We had moved out of our previous rental because the basement leaked and both my younger boys got pretty sick. The doctor specializes in asthma and even took my family on as her new patients! So relieved to know what is wrong and to get some new medications to fix this.
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Blog Post CommentThese sound great - the Jalapeño Garlic sounds perfect for taco's! Thank you for letting us know about them.
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Blog Post CommentHello, Does anyone know of a peanut/nut free snack bar that is portable, healthy and not loaded with refined sugars and ingredients that I can't even pronounce?! I know there are products out there that are peanut free but they are not very healthy. Any help would be much appreciated! Sahba
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Blog Post CommentHi Sahba! Welcome to KFA!! The one that comes to my mind is the bars from Enjoy Life Foods . Click on the flavors to see the ingredients lists and decide if you think they are okay in terms of refined sugar (evaporated cane sugar) and ingredients you can't pronounce. I sort of know what you mean but my tolerance is probably different from yours. I know that a lot of granola bars and fruit bars are indeed a risk for people with tree nut and peanut allergies. If the Enjoy Life ones don't work...
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Blog Post CommentI am new to this sight and have a question. My Daughter was diagnosed with a deadly peanut allergy. Infact I almost lost her last year and had to rush her to the Hospital when My nanny gave her peanut butter without my consent. Today My Daughter ate Hidden valley ranch and sure enough with in minutes she had huge red blotches all around her mouth. How can I know what she was allergic to with so many ingredients? Its terrifying not knowing if your child eats something you don't know she is...
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Blog Post CommentHi Tricia, Welcome. I can see why you are so concerned. My first thought is to call the company and inquire about their product and manufacturing practices. It could be that the product was made on equipment shared with other products containing peanuts, but you will not know unless you ask. Shared equipment issues and advisory labeling do not have to be stated on the label - it's not a requirement of the current labeling laws in the U.S. Since you are new to Kids With Food Allergies...
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Blog Post Commentthat makles me mad because i will travel to Miami from Montreal this summer and we buy our food and will not know about the may contain... plus my son has allergies to sesame.. and it is not labeled if I read this carefully. In Canada, sesame is always labeled....
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Blog Post CommentDoes anyone know what retail stores will be carrying these in the Phila PA area? Can they be ordered online? Thanks!