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That would be great to share it w/ your group! And also let them know that if they can't attend live, there is will be an archive posted later.
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Blog Post CommentAsthma, Food Allergy, Anaphylaxis: Symptoms, Risks, Treatment (Video and Resources) If you missed our free webinar with Dr. David Stukus, we have it archived with a list of informative resources. You can view the hour-long video at your convenience. It contains critical information for families managing both food allergies and asthma. Dr. Stukus reviewed the signs and symptoms of asthma and food allergy, the risks associated when a patient has both diseases, and how to determine if symptoms...
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Blog Post CommentWelcome Esther!! Sorry to hear that you are dealing with food allergies, but we are glad that you found us! You've come to the right place for support. The majority of insurances do cover epinephrine auto-injectors, but it really depends on your insurance policy as to which ones they will cover and how much they will cover. Has your doctor called in a prescription to your pharmacy already? Once your pharmacy has a prescription on file they should be able to submit a claim and tell you what...
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Blog Post CommentEsther! Most insurances do cover Epipens. I would recommend calling your insurance and ask them if they cover Epipens.
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Blog Post CommentHi Pedro, Thank you for your input. We are actively asking for our constituents' opinions about our recipe database and how we can improve what we offer for families with food allergies. Here is a link to the survey if anyone is interested in helping guide the updates we plan to make this year: https://www.surveymonkey.com/s/ZBM2BZP Here is the link to our recipe collection: http://www.kidswithfoodallergies.org/recipes.html You will find more than just cake and desserts there. Thank you, --...
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Blog Post CommentIf you are wondering how to navigate the food issues at school, be sure to register for our upcoming webinar on Nutrition and Food Safety for Students. 8/20 at 7:30 p.m. The speaker (Dayle Hayes, MS, RD) School Meals That Rock is a national expert on school nutrition and food service. She will give you new insights on everything from what the laws say, what the role of the nutrition services director is, and how he/she can be a knowledgeable resource for you, to how to make creative and...
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Blog Post CommentThank you for creating this report and keeping track of how each of the states are working towards supporting our children who have food allergies and asthma. I have added a link to your report on the blogs I am writing on the GreenwichPatch and the NewRochellePatch. My goal is to create more connections and awareness within my community in Westchester, NY for families who live with food allergies. The links to my blogs are http://greenwich.patch.com/blo...eness-in-westchester and...
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Blog Post Commentwelcome to KFA! The gluten free flour blend used by Colette is mentioned in the webinar. You can use any gluten free blend that works for your allergy set. There are some recipes listed here: http://www.kidswithfoodallergi...allergy_recipes.html You can also visit our Food & Cooking forum for more assistance. http://community.kidswithfooda...rum/food_and_cooking
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Blog Post CommentThis is definitely an important thing to think about when traveling... You also need to make sure that you have some sort of translator or something that might help you tell a restaurant server about your allergies. When I went to Mexico, that was extremely helpful.
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Blog Post CommentThis is so true. When Christian was a few years old he went into an attack at the doctor's office. Yep, I said the doctor's office. She had a chalk and board that the kids could use while waiting for her in the room. I was so relieved when he went to school that they now use the dry erase boards and smart boards. I use to go crazy with my milk allergies when I went to school. No one ever linked the chalk to milk allergies. We have come a long way. Oh, by the way, our doctor no longer has the...
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Blog Post CommentMy son's allergist gave us a voucher/coupon in case our insurance did not cover it - $25.00 for the first 2. Luckily, our insurance covered it, but it is still more expensive than Epi Pens. However, the smaller size (my son is just starting to carry) and the automated instructions are worth the extra expense for us. Ask your allergist if he/she has any coupons to spare!
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Blog Post CommentHello Francesca, By overwrite, do you mean will brand Adrenaclick production be halted or are you wondering about generic substitution requirements between the two? As far as availability, many pharmacies won't order in a product or keep a product in stock unless they see a need for it (ie: until they have consistent requests for it). If you would like a specific item, most pharmacies are happy to order it in for you, and often they can have it in stock within a day or two of your request.
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Blog Post CommentGood Morning! I'm a Mom of 2, ages 3.5 and 18 months. In our household we have an anaphylactic dairy allergy and a corn allergy. I am the one with the anaphylaxis and I've lived WELL with this allergy all my life. I'd just like to say that Thanksgiving is my favorite holiday and if there is extended family and friends who will cooperate with your food allergies, you can have a safe and delicious Thanksgiving. It's about trust... and about education... and possibly about providing recipes and...
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Blog Post CommentWhat a sweet story this is. Being a mom of two boys myself it made it even more special. Thanks for sharing. Sending hugs your way.
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Blog Post CommentI had an anaphalactic reaction after eating one of these bars for breakfast last year. I lost consciousness while on the phone to my mother and was taken to the ER via ambulance after she called a neighbor. I assumed it was something else I must have come into contact with (although it was the only thing I had eaten that morning). I stupidly continued to eat the bars, getting sick every time (although not as bad). I thought it must have been one of the other ingredients, since it was milk...
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Blog Post CommentOur friends at APFED will be coordinating assistance for families living with eosinophilic disorders affected by Hurricane Sandy. They may be willing to accept your donation. Visit APFED's Facebook page, http://www.facebook.com/APFED for more details or contact Julie Springer directly at 407-340-2412. Thank you, Katrena!
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Blog Post CommentWe make "wacky cake" all the time for our kids! Yes - the recipe is egg, dairy & soy-free! We use "unbleached all purpose" flour, and whatever vinegar works for your allergy set. We often use either apple cider vinegar or white vinegar. There are lots more allergy-friendly cake recipes here: http://www.kidswithfoodallergi...friendly-recipes.php
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Blog Post CommentHi Kim, Just be sure to read every ingredient label of every thing you use. Be aware that some ingredients in your kitchen may be contaminated if you ever double-dipped. The safest thing to do is buy all new ingredients. If you want to make a frosting/icing for this cake, you'll need to use milk and soy free shortening or margarine. Options are Earth Balance soy-free (red packaging) or coconut oil (among a few others). You can keep it simple and just do the solid fat (safe margarine or...
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Blog Post CommentYou can definitely make this w/ real butter. The texture will be a little softer than with the shortening, so hold off on putting all of the liquid in til you see what your consistency is like.
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Blog Post CommentHappy birthday to your big 5-year-old! Glad the recipe worked well and hope it's a great celebration tomorrow at school!
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Blog Post CommentWelcome shiloq. Hope your son has a great bday.
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Blog Post CommentWhat a great article! WTG Aurit family for increasing EoE awareness and advocating for everyone in your state that is struggling to afford elemental formulas.
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Blog Post CommentWelcome Rosangela! We are glad you found us. I second the recommendation to post on our EOS forum: http://community.kidswithfooda...sinophilic_disorders Is your son on any type of formula? A formula can take the guess work out of the nutritional side of things. I know we have some members with older children that are drinking Neocate, Elecare or E028 juice box type drinks.
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Blog Post CommentProduct Review: We tried the Aged White Cheddar Puffs and really liked them. They are mild in flavor and not salty. I was worried that the puffs would have the texture of Styrofoam, but they didn't. They melt in your mouth. The entire bag was gone within minutes. If you like nutritional yeast, you'll like these Puffs. Views and reviews expressed by volunteers and staff reflect their personal opinions and not necessarily the views or opinions of Kids With Food Allergies Foundation.
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Blog Post CommentExcellent article! As a fellow dietitian and mother of a child with a severe food allergy, the advice in this article offers a great deal of practical and beneficial information! Thanks for sharing your expertise!
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Blog Post CommentHello Rosangela I agree with the suggestions made for you to post on the EOS forum. You are not alone and there are many parents in the group who may be able to provide support and share their experiences. I am hoping the dietitian you are seeing has a significant level of experience with children who have not only food allergies, but experience with more challenging cases such as eosinophilic disorders. Formulas definitely are useful in meeting nutritional needs as well as giving the...
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Blog Post CommentHi Colleen, I believe we are talking about the same issue. We are aware of the re-bagging issue--we included it under the Dum Dums/Spangler photo (second to last photo) and highlighted it as #3 at the top of the blog post: Quote: Quote: How parents choose to deal with this issue may vary. In our Halloween tips in other articles, we've shared ideas such as trading your child's bag of trick-or-treating candy for all safe candy, or for toys, etc. The tradition is sometimes called the Switch...
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Blog Post CommentHi Colleen! We do the same thing with all the candy that DS gets on Halloween. Due to the issues with repackaging there's no way to know if the safe candy has residue on them (or whether the residue is from the various home owners that I see snacking on treats as they give out candy ), we usually just give all the candy away and we either trade it out via the "Switch Witch" or we weigh it and give DS money for it. He's happy either way! Welcome to KFA , and hoping your loved ones have a safe...
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Blog Post Comment"Food allergies don't stop me from having fun at the lake!" #FAAW Congrats to our latest winner in Faces of Food Allergies. This young dude has won the Lucy's gift basket. If you haven't added a picture yet to our Food Allergy Awareness Week contest, don't worry, there is still time as we will be giving away two prizes daily. If you have already entered, your name will still be included in future drawings: http://community.kidswithfooda...lergy-awareness-2013 (Login via computer or iOS app...
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Blog Post CommentDid he not like the taste of quinoa or could not digest it? I found one great quinoa cereal which I give to my son with a fruit puree (any fruit he can have) and it comes out ok. http://www.amazon.com/gp/produ...ct?ie=UTF8&psc=1 can your son have garbanzo beans? you can make bread with it. can your son have coconut milk? Good subs for milk.
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Blog Post CommentI am sorry your son reacted to these bars. Did you call the FDA? They can investigate any reactions to foods and issue a recall. http://www.kidswithfoodallergi...on_to_foods_or_drugs
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Blog Post CommentThis fills my heart so big! Thanks for sharing.
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Blog Post CommentWooky's mama: Have you tried making your own corn or potato chips? It's pretty easy and nice to finally be able to relax when your LO eats something
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Blog Post CommentKFA's Note: Oral immunotherapy for food allergens is still being investigated by researchers. This is not something to try at home, but rather to discuss with your allergist.
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Blog Post CommentI'm shocked to find Chipotle on that list! My daughter (6 y/o) LOVE'S Chipotle. One day she asked me why everything has soy (that's one of her allergens) in it. We decided to google it and found that soy lecithin is utilized as an emulsifier easing the oil/water mix and extending shelf life. A few days later we went to Chipotle, because I had never thought to ask about their allergen info, I decided to ask the woman behind the bar if any of the foods had soy. She gave me a small check-list...
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Blog Post CommentAlthough I feel Chipotle does make an honest effort by attempting to use allergy-friendly products, the risk of cross-contamination can be quite real if you/your child has an allergy to Milk (or, any of the other products they serve). The nature of their food prep is similar to a buffet where not only are food items kept in close contact to each other, but all of the staff handle the serving utensils at one point or another, put hands into the cheese and the then the lettuce, and so on. My...
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Blog Post Comment❤️Hi kally, My son has a very severe milk allergy and we eat at Chipotle 1-2 times per week. I can totally understand your apprehension. Here are some tips: One person handles your food. They will change their gloves first - sometimes you have to remind them but it's coorporate policy AFAIK. I always ask them to hold my son's tray - do not slide it on the counter. We only get rice, beans, and meat from the bar. Any salsa, lettuce or guac comes from the fridge under the bar or the back.
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Blog Post Comment❤️Originally Posted by Mahbahlih: Hi kally, My son has a very severe milk allergy and we eat at Chipotle 1-2 times per week. I can totally understand your apprehension. Here are some tips: One person handles your food. They will change their gloves first - sometimes you have to remind them but it's coorporate policy AFAIK. I always ask them to hold my son's tray - do not slide it on the counter. We only get rice, beans, and meat from the bar. Any salsa, lettuce or guac comes from the fridge...
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Blog Post CommentOriginally Posted by MACEMama: Mexican restaurants where I live often have language barrier issues, so I never trusted them with FA, though I enjoyed the food when I would go out without DS. We also did Chipotle the same way Mahbahlih describes. The only Spanish I know is how to explain DS's food allergies. I have perfected that. Now if you need a bathroom you're on your own, lol.
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Blog Post CommentI know it's past Easter but just wanted to make one correction - Tootsie products do have soy and corn. From their FAQ page ( http://www.tootsie.com/comp_faq.php ): Which of your products is gluten free?
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Blog Post CommentThank you to everyone who completed our survey! KFA is here to meet your needs and the needs of other families. Your opinion is invaluable as we move forward. Please don't hesitate to get in touch with us anytime with feedback either positive or negative. The winner of the $100 is T.J.. Congratulations!
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Blog Post CommentDesirx, Your comment reply to this blog didn't come through. What posted was your phone type and your email address, so I edited your comment to remove that and protect your privacy. Please feel free to try again
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Blog Post Comment@ Wendy Mains-- I think I know why your child had to use his epi pen so many times in the ER/hospital. Hospitals are FILLED with corn-derived products. I am also corn-allergic. I found out the hard way, after a lifetime (I'm in my 50s!) of migraines, joint pains, spontaneous vomiting seemingly without a cause, I ended up at the big famous institution in Minnesota. The immunologist looked at the results of a basic saliva genetic test that I had purchased and had processed. He said I should...
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Blog Post CommentWow Rose, thanks for sharing your story. My kids were both highly sensitive to corn and derivatives when they were little. Both outgrew it by middle school, but it was a real challenge to avoid and many just wouldn't believe where corn hid and that the highly processed stuff could possibly be an issue. Thankfully mine were not anaphylactic.
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Blog Post CommentHi Aboreem1969 - welcome to KFA! There is no absolute time line for outgrowing a food allergy (not reacting anymore). How has your son's allergy been monitored? Has he been tested periodically to see if the numbers are decreasing? Has he eaten anything with milk recently and still showing reactions?
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Blog Post Comment❤️As the mother of a son with an anaphylactic alergy to corn I can't stress the importance of carrying the epipen at all times even when food intake is not planned. He has been tested thoroughly and his only allergy is corn so we know if he has a reaction then corn was present and his reaction occurs within seconds. We walked into a small hospital for a pre op appointment and we weren't inside for more than 3 min. and he had his worst reaction ever (the 7th one that year-corn has a nasty habit...
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Blog Post Comment❤️I was complacent. My 14 year old daughter was complacent. Eye-rolls and annoyed posture every time I asked if she had her epi-pen. She doesn't remember her reaction when she was 2.75 years old and there have been many, many expired epi-pens since. I used to say it was the best money I ever threw away. Until this year, I got annoyed. I was certain I had sent in an epi-pen in the fall for school. The nurse sent an email to all delinquent parents of food allergic kids. "Your child's epi-pen is...
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Blog Post CommentMy son, wearing his EpiPen pouch above, carries his Epi everywhere, every time. He just turned 8 y/o and hasn't had a reaction in years... at least 5 years. His first was at almost 14 months old... Daddy gave him a Ritz Bitz PB Sandwich Cracker and he reacted... at the ER, they told us he is probably allergic to peanuts and to make that appointment with the allergist. We did and at 14 months old, he was diagnosed with an anaphylatic peanut allergy. Even though I used to be a nurse, I...