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What are tips to get past an impasse with school officials on initial accommodations?
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Blog Post Comment❤️What is the best way to handle "frustration" from other parents when your child's accommodations inconvenience other parents or they are disgruntled about them?
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Blog Post CommentHow does the chat event work? Do I have to sign up ahead of time?
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Blog Post CommentNope! When it's time for the chat, just click the link on the blog and it will take you there!
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Blog Post Comment❤️My question: My child is in a secular private school. I do not know if they receive any funding from the US govt. Is is possible to get a 504 plan in this school?
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Blog Post Comment❤️1. Are there any laws regarding inclusion that I can reference when my child's school repeatedly tries to schedule food-centric activities that by their very nature exclude my food allergic child? We have a 504 for her which provides her with a food-free classroom, but there are many cases where several classrooms come together to do these food-centric activities, and this is when the problems arise. Is there a certain part of the ADA I could refer them to? 2. What exactly is 'inclusion'? I...
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Blog Post CommentThank you to everyone who submitted questions and joined the chat. We hope you got your questions answered. If you didn't, you can post your questions on this topic and we will try to get them answered.
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Blog Post CommentCongratulations to 6-year-old Zayden. He is our first My First Day of School Photo winner! All of the entries are precious and show off some pretty remarkable kids who happen to live with food allergies. - Ashley (Zayden's Mom) We're randomly selecting winners each week until September 25, so be sure to add your photo !
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Blog Post CommentCongratulations to our second winner Evan! Evan is allergic to peanuts and egg. He is one of four kids in his class of 18 who live with severe food allergies. I feel fortunate that his teacher and his school take food allergies seriously and work hard to keep all the students safe without excluding them. Evan’s food allergies never slow him down! - Shaunna (Evan's Mom) There is still time to enter, so be sure to add your photo !
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Blog Post CommentI enjoyed the July 31st webinar! It was very informative. I do disagree with one point. He stated that a small study showed that only a rash occurred with peanut butter spread on an allergic child's skin. My child has had hives and swelling with just skin contact....Many times. For example; After a kiss on the cheek by someone who just ate a PBJ, my child had a face full of hives and swollen lips. After sitting next to a child eating peanuts, she had hives all over her body, and a runny...
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Blog Post CommentHello and thank you for attending our webinar and for your comments. We have another school-focused webinar tomorrow - this time a panel discussion with two allergists and 4 school nurses. I will forward your question to them for a response.
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Blog Post CommentThank you! I am signed up for it, and I am looking forward to it! My daughter just started Kindergarten, and we are trying to figure out where she should sit at lunch etc. I appreciate all that you do. This is very timely for us! Thanks!
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Blog Post Comment❤️Thanks for this piece!! I'm in search of any materials that help make ending the classroom birthday treat more palatable to parents & staff that are still undereducated when it comes to the reality of children living with life threatening allergies.
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Blog Post CommentHi kto, Welcome to posting. What food allergies do you manage?
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Blog Post CommentAlthough My daughter has a long list of allergies, her life threatening allergens are peanut, pistachio & cashew.
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Blog Post CommentMy daughter has a life threatening nut allergy. She is 12 andhas extreme anxiety because of it. Is there a forum or blog for her that she herself can talk to others same ay have some of the same feelings. If not, is there a way to create one?
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Blog Post CommentThanks for asking. We've had parents request a children's or teens forum, but as an organization, we'd need to be compliant with the federal law, COPPA - Children's Online Child Protection and Privacy Act. As such, we'd need to have parental consent for children under age 13 to participate and we'd have to monitor conversations to make sure children are adequately protected on our forums. We've asked for parent volunteers to help with an effort like this, but haven't had anyone really come...
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Blog Post CommentSounds like a good idea, but I'm not sure my son (12) would participate ! I can imagine more girls wanting to though.Look at it this way, how many dads do we see on the forums One other thing I'm not sure about is would the kids be able to see our posts ? i think they might not be too happy about some of the things we say about them at times, could find it embarrassing
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Blog Post CommentI thought I would see more comments from other parents who may have children have similar feelings. I would be interested in helping set this up. Is there a phone number I could contact you at so we could talk live.
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Blog Post CommentHi Sandy! I encourage you to post on the Support Forums here at KFA. There are a lot of parents here with similar feelings. Here is the link to the main forum: http://community.kidswithfooda...rum/forum/main_forum I believe there were over 800 parents on the webinar so I am sure you will find some here on the KFA forums.
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Blog Post CommentThank you. I just posted something and also found a lot of other helpful topics to read up on. Thank you!
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Blog Post CommentSadly bullying is not limited to children with allergies. We need to teach tolerance and love and live our lives by example.
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Blog Post CommentI thought this article would be of interest: http://well.blogs.nytimes.com/...ulthood-study-finds/
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Blog Post Comment❤️I think requiring restaurants to server allergy food is goings to far. it's a different category from schools. People do not have eat in restaurants. The way children are required to attends school. Sorry, but this is going too far.
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Blog Post CommentI frequently visit restaurants and I'm allergic to shellfish. I make sure to check allergen menus or allergy free menus at the restaurants by asking them. Its really frustrating to know not many restaurant owners maintain such menu. I recently saw few restaurants showing allergy menus in smartphones with a small QR code on the wall with allergy poster. I think its from www.allergyposter.com and they seem to teach these owners something. Few apps are out there too. But its really a pain to...
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Blog Post CommentIf the video doesn't load for you, try refreshing your browser.
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Blog Post CommentSo encouraging to read that this law is already helping!
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Blog Post Commentjust wish a child didnt have to die for this to happen....
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Blog Post CommentThe law (and school epipens) actually applies only to kids who do not have known allergies or their own epipens. I had a lengthy discussion with the Fairfax County School contact for this issue, and while schools now each have 2-10 "Anaphylaxis Response Team" staff memebers (who received in depth training on recognizing the symptoms of anaphylaxis and treatment with epipens, calling 911 etc.), the "health room aide" is part of the County Public Health department and not FCPS, so they are NOT...
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Blog Post CommentLink to part 1 -- http://community.kidswithfooda...ols-tips-for-parents Link to part 2 -- http://community.kidswithfooda...hools-ask-the-expert
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Blog Post CommentTerrific webinar though I wish the small study of 30 children who showed no reaction to peanut butter being a foot from their faces would not have been included. My child has twice suffered angioedema after being in the same room as an open jar of peanut butter for only moments so this information works counter to my efforts in accommodating my child in school. Otherwise a helpful presentation...thank you!
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Blog Post CommentHere is the link to the video and list of resources in case you missed the live event: http://community.kidswithfooda...video-and-resources-
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Blog Post CommentTraining videos for all available epinephrine autoinjectors are available at: Adrenaclick™ ( www.adrenaclick.com ) Auvi-Q™ ( www.auvi-q.com ) Epinephrine Injection, USP auto-injector, authorized generic (AG) of Adrenaclick™ ( www.epinephrineautoinject.com ) EpiPen™ and EpiPen Jr™ ( www.epipen.com ) REFERENCES Product information for Adrenaclick™. Amedra Pharmaceuticals LLC. Horsham, PA 19044. June 2012. Product information for Auvi-Q™. Sanofi-Aventis U.S. Bridgewater, NJ 08807. September...
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Blog Post CommentReminder: our webinar on 504 plans and IHCPs is tomorrow (Tuesday)! RSVP: Reserve your seat by registering WHEN: January 14, 2014 TIME: 7:00 pm Eastern time WHERE: Your computer, iOS or Android device
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Blog Post CommentI teach at that time. Is there a way to order the e-book or see/hear the webinar at another time?
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Blog Post CommentHi Silvashan, We record all webinars for later viewing. If you sign up for the webinar, you will get an email letting you know when the recording is ready.
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Blog Post CommentShoot, I missed signing up. Is there still a way to find out about recorded webinars? I run a FB group for mom's who have kids with food allergies and I alway love to share the KWFA resources in our group.
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Blog Post CommentHere is a blog post that Lynda did regarding plans. And here is the followup from the webinar w/ the video recording of the presentation plus tons of other resources.
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Blog Post CommentHI, My son, who has a peanut allergy, will start kindergarten in a few weeks. At his school peanut butter and jelly sandwiches are served everyday in the cafeteria. The school offers 3 choices to each child and PB&J is one of the choices. I am so worried and scared about sending him to school. I have spoken with the nutrition department for the school district and the only thing she said the school could do is have my son sit at a table all by himself. That does not solve the problem...
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Blog Post CommentI'm sorry you are feeling so stressed over starting Kinder. Have you requested a 504 evaluation?? The last link in #5 above has lots of resources on that process. That is your best way to get accommodations for your kiddo. In that type of plan is where you can specify things like handwashing after snack/lunch, a peanut free table/zone in the cafeteria, etc. Have you discussed w/ the doc what he thinks are reasonable/necessary accommodations??
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Blog Post CommentIf you were unable to join us live, or just want to watch again, the video is available on our @Kids With Food Allergies Facebook page.
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Blog Post Comment❤️This is a scary situation. Thank you for your advocacy!
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Blog Post Comment❤️This is such BS. It takes a school nurse 30 minutes to train staff. More is better, but that is all they need to know how to use the auto-injector. On top of that, if they choose to supply with Auvi-Q the auto-injector has audible instructions when you pull the cap to walk anyone through how to use it. They are worried about being on the hook for an unnecessary hospital visit, but is the potential death of a student really worth the risk?
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Blog Post CommentMy kiddo is in this school district and having interacted with these schools I'm guessing the problem is more complex than the article has let on. The following is my speculation as a parent. The reason given in the article "The Weatherford Independent School District says they feel that they can’t have someone trained to give an epinephrine auto-injector during all times the school is open." Isn't just regarding the inconvenience of training - all the teachers and admins go through the...
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Blog Post CommentCongrats to our third winner, Layla! Layla is allergic to peanuts, treenuts, dairy, sesame and shellfish. She is a wonderful self-advocate and is very protective of her little brother, Dylan, who also has food allergies. Food allergies don't stop me from doing great things or being me!- Layla
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Blog Post CommentCongratulations to our final winners! Matthew, age 6, is allergic to eggs, chicken, turkey, peanuts, tree nuts, shellfish . Matthew and his Minion are ready for a safe and successful school year. Emmie is starting Kinder and is allergic to peanuts, tree nuts, eggs, flaxseed. Emmie is doing so well in her private Christian school thanks to very supportive teachers, administrators, school nurse, and classmates. I was worried about her starting school with all of her allergies but the...
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Blog Post Commentthis was alot of help for me i will be speaking with my daughters school tomorrow
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Blog Post CommentGlad it was helpful and good luck tomorrow!