Tagged With "#epipen"

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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

JoyceZ ·
Is the training device a device regulated by FDA? any safety issues?
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

K8sMom2002 ·
Hi, Joyce, the trainer in an Epi pack is usually a "look alike" that doesn't have a needle. It can be reset to be used over and over again. It's basically a way to teach people which end is up, as with a real Epi, it can be confusing and you want the meds to go in your kid and not in a teacher or staff person's thumb.
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Re: Food Allergies DON'T Defined us!

Kathy P ·
So sweet! Do both girls have food allergies?
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Re: What To Do If You Have Trouble Filling Your EpiPen® or Generic Epinephrine Prescription

Melanie Carver ·
If you are having trouble filling your epinephrine prescriptions due to the current shortages and are willing to speak with the media, please email sanaz@aafa.org . Thank you!
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Re: Epipens should be more affordable

Momofthree ·
Aaww, your daughter is precious! Thanks for sharing! You have a very good point! I agree! Please join us in our Main Forum
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Re: Epipens should be more affordable

Vronkitty ·
Thank you!!!
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Re: Epipens should be more affordable

SuperMom803 ·
Yes. I agree.
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Re: Epipens should be more affordable

Mikayla Williams ·
Strongly agreed! You can write a petition at Change.org and then present it to the government!!! Want me to help?
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

LSK ·
thanks! really helpful to get this update
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

StephC ·
That's good. It seems like Mylan is recognizing that with the rise of food allergies, a LOT of epi-prescribed folks are children, and they and their parents need extra guidance in using their device safely. (As opposed to an adult patient.)
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

Kids With Food Allergies ·
For more information on the FDA's communications about these changes: EpiPen: New label - http://www.accessdata.fda.gov/...16/019430s061lbl.pdf Letter to Mylan (makers of EpiPen and EpiPen Jr.) http://www.accessdata.fda.gov/...9430Orig1s061ltr.pdf Adrenaclick: New label - http://www.accessdata.fda.gov/...16/020800s034lbl.pdf Letter to Amedra (makers of Adrenaclick and its generic version) http://www.accessdata.fda.gov/...0800Orig1s034ltr.pdf Auvi-Q (removed from market in 2015): New label -...
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

Kids With Food Allergies ·
If you have any questions about the new labels, speak with your healthcare provider. Here is a message from Mylan, the makers of EpiPens: "Mylan offers a library of training and support resources for patients and caregivers which are in the process of being updated to reflect the new labeling. In the meantime, please speak to your healthcare professional or call the Mylan Customer Service team at 800-395-3376 with any questions about the changes. Additionally, each EpiPen 2-Pak® and EpiPen...
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

KellyM ·
Thanks so much for getting this info out! Grateful to Dr. Julie Brown et al for raising some awareness around auto injector issues and Kids with Food Allergies for spreading the word.
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

KellyM ·
Wondering if there is any discussion about "swing and jab" v. press firmly until injector engages? Bruising from overly forceful impact of auto injector on tissues also a commonly expressed concern.
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

Jen ·
Hi Kelly, There is a little more information pertaining to your question re swing/jab in this blog post from last fall. I hope that helps.
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Lynda ·
In case this offers any additional information, here's a recent NPR article. How To Save Money On Prescription Drugs, Insured Or Not SEPTEMBER 16, 2015 6:08 AM ET
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

hurley ·
Anyone else having issues with the generic epi not working? We are fighting for the brand so we know it works well for our daughter. She was in a panic when the generic epi wouldn't work. She is so afraid of them now. How can I get her brand if I have insurance? Thank goodness we were home to grab an epi pen I had in the kitchen drawer!
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Allison ·
What do you mean by "not working?" It wouldn't fire? By the way, we just published updates on our blog about the branded one: http://community.kidswithfooda...costs-of-epinephrine
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

hurley ·
Yes, it would not fire. We tried both pens in the pack and neither would fire. I remembered I had epi pens I refilled in May before insurance made us go generic. I ran and grabbed them. It worked as always. My daughter still has bruises from where we tried to inject the generic pens a week later. I will never trust them again. Stef
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Taric25 ·
Uh, just use a syringe? It's about twenty bucks, medicine included. Seriously, for a family that can't afford food if they purchase an auto-injector, a syringe takes a bit of training and provides the same medicine. Yes, an auto-injector is nice, but not everybody can afford it.
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Jen ·
Hi Taric, Welcome to KFA. What food allergies do you manage? A syringe can be an option. However, in an emergency, it can be difficult to draw up the meds quickly. I was just talking re that w an er nurse the other day. But...still better than not having epinephrine for sure.
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

hurley ·
I have idiopathic anaphylaxis. I'm told it's a form of a mast cell disorder. All it means is that I can become anaphylactic to anything at anytime. Example- I just had knee replacement surgery. I had been taking my pain medicine less than recommended for about two weeks. When I took it the next time I needed it, I went into anaphylaxis. Another one is sometimes I walk out the door and I go into anaphylaxis. I do have known food allergies, but I avoid them. So anytime, anywhere. My kids have...
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

K8sMom2002 ·
Hurley, ... that has to be so frustrating and terrifying! And having to buy that many replacement auto-injectors... wowzer!
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

hurley ·
The end of last week, my doctor talked to the insurance. He got me brand epi pens back. But I am still only allowed a two pack every 23 days as their prescription plan does for all drugs. Errrr! Thank goodness my daughter and I use the same dose in epi's now. Doctor said to fill it every 23 days until I get three packs. Then replace as needed. Stef
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

K8sMom2002 ·
That's scary that you're having to use your DD's epinephrine as a backup plan for you. What if your daughter needs those epinephrine auto-injectors?
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

hurley ·
That's an issue. She's out until I refill hers. The insurance is more lenient with kids. They know the school requires one with the refill tag on it as does the church, one at home and one on her. I keep her epi that stays home in my towel drawer. So kind of a built in back up. I couldn't believe when I picked up the recent brand refill, it was $600 before insurance. Stef Sent from my Verizon Wireless 4G LTE smartphone
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

K8sMom2002 ·
Hurley, here's an updated blog post about epinephrine auto-injectors ... looks like some of the branded auto-injectors will soon have a generic option . Maybe that will help you?
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

hurley ·
I hope. I hate dealing with insurance. Why do they fight something that saves lives? Stef Sent from my Verizon Wireless 4G LTE smartphone
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

NonnaJ ·
This issue should not only take in account those who have a low income. The issue is that the cost of the epi is exorbitantly and greedily marked up by Mylan! It should be ashamed! The strain of paying for epi twin packs is there for everyone who needs it, and especially for families who have more than one member with life-threatening allergies. Moderate income families are always disregarded.
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

NonnaJ ·
PS ...daughter's family insurance carrier wouldn't cover the epis she needed for herself and her son because "it's not preventative"....what? really??? It prevents DEATH!
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Savine ·
Im having problems finding an insurance company that will except the epi pens I have a deathly allergy to tomatoes and chocolate and sodium nitrates the Medicare and blue cross I have do not cover the epi pens at all so I'm stuck any advice you guys could give would be an amazing help thank you
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Kathy P ·
Sabine - will the cover a different generic epinephrine autoinjector? You doctor has to specifically write the prescription for the generic ones. Otherwise, the pharmacy has to dispense the brand name.
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

K8sMom2002 ·
Sabine, did you ever talk with your doctor and your insurance company to see if generic epinephrine autoinjectors would be covered? There are two versions of generic autoinjectors -- one company's generic version works exactly like their brand name version, from what I understand.
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Parent2017 ·
Apparently Express Scripts has decided that both the Mylan generic Epi and the Lineage Therapeutics epinepherine injector are "branded" medication rather than generic. Spoke with multiple customer service folks as well as one of their "pharmacists" and they are telling me no generic epinepherine auto-injectors exist although they are pushing me to the Mylan generic. The insurance coverage is of course significantly higher for generics but only if they treat a generic as a generic. Getting...
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Ellen42 ·
My insurance company sent me a letter saying they no longer cover Mylan Epi-pens as of next month, but supposedly they cover the generic. I looked up their formulary list. They cover Auvi-Q at 80%, which is worse than paying full price for the Mylan Epis. They don't cover Adrenaclick. In theory, they cover the Mylan generic. I'll have to leave extra time in August when I attempt to pick up the school's epis for pharmacist-allergist phone tag. GoodRx lists the prices of your various options...
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

hurley ·
I can't get a cost. My CVS says all epi's are recalled. Mine expires in May, but can't get any replacements. I'm told none are available. Anyone know if the expiration date can be stretched? I can't be without an epi, but can't replace it according to the pharmacy. Stef
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Parent2017 ·
Has anyone received the "free" Auvi-Q who has insurance that won't cover the Auvi-Q? I am planning on getting my kids doctor to fill out the form.
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Jen ·
@Parent2017 - Welcome to KFA's support community. Those are some great questions. I would suggest that you post them on our support forums so that more people can give you input.
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Jen ·
Stef - Have you discussed this with your doctor? What about calling other pharmacies?
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

hurley ·
The doctor said he did not know about the problem. Keep calling around. Apparently, Epi pens were recalled about three weeks ago. The pharmacies I spoke to will not sell epi pens until the new, post recall, pens have been sent to them. They do not want the liability. If you need an epi at this time, call 911. Stef
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Jen ·
Yikes Stef! We just got news that Kmart has just lowered the price of generic epinephrine , so that may be an option for some.
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

hurley ·
That's great!! The only Kmart in our area was closed in January. But if they have it, someone else has to have it. Stef
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

K8sMom2002 ·
Good luck in finding it, Stef! And @Parent2017 , let us know how the process works.
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

KristaB ·
You're right - the pharma company websites aren't updated yet for 2018 and the coupons all expired 12/31/17. I'm trying to fill prescriptions now and don't have a valid coupon! How do I get an updated one?
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

K8sMom2002 ·
KristaB, have you tried calling the contact number on the pharma company in question? They may be able to give you a timeline or a coupon that would work. Also, could you talk to your pharmacist or doctor? They may be able to reach out to their pharmaceutical reps for answers or a coupon, or even samples of some medications. I know that KFA is awesome about updating all this -- so keep an eye for updates.
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

KristaB ·
Cynthia, No, I haven't called the pharma companies. My pharmacist is great though and he's on top of it. I wanted to see what he came up with first before trying to call pharma companies - that just seems like a runaround waiting to happen! I just found this site though, so I will keep checking back! Thanks!
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Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors

Kids With Food Allergies ·
The blog post was updated on Dec. 3, 2018, to include the following: Teva offers a generic version epinephrine auto-injector in limited areas in the U.S. It is available in 0.3 mg for $300 per two-pack. It will be released in larger quantities in the U.S., along with a 0.15 mg version, in 2019.
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Re: Walt Disney Parks and Cruises to Stock EpiPens and Promote Food Allergy Awareness

josephine ·
This is fantastic! Thank you Disney. I hope other theme parks follow suit, it's badly needed. Sending hugs your way.
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Re: Everything You Need to Know About Epinephrine (Video & Resources)

TiffanyAC ·
Thanks for a great webinar! Very informative and helpful. I noticed the babysitting handout shown on one of the last slides wasn't included in your list of links here, I was able to find it on my own, but thought I would point that out in case you want to add it. Thanks!
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Re: Everything You Need to Know About Epinephrine (Video & Resources)

MAD RN ·
Thank you so much for this webinar! You answered so many questions for this school nurse, both during your presentation & in the Q & A session! I appreciate the time each of you gave to educate us more about epinephrine & anaphylaxis!
Kids With Food Allergies
A Division of the Asthma and Allergy Foundation of America
1235 South Clark Street Suite 305, Arlington, VA 22202
Phone: 1-800-7-ASTHMA (1.800.727.8462)
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