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Tagged With "#epipen"

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Re: Food Allergies DON'T Defined us!

Kathy P ·
So sweet! Do both girls have food allergies?
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Re: What Are Your Options for Injectable Epinephrine Devices?

Kids With Food Allergies ·
This blog post was updated in December 2018 to include information on the generic epinephrine auto-injector from Teva Pharmaceutical Industries and the nasal spray from INSYS Therapeutics.
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Re: What Are Your Options for Injectable Epinephrine Devices?

Kids With Food Allergies ·
This blog post was updated in July 2019 to include updated information on savings programs for AUVI-Q® and EpiPen®. It also includes information on the SYMJEPI™ pre-filled syringe from Sandoz.
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Re: Ignore the Media Reports, There is NO Shortage of Epinephrine Auto-Injectors

HealthyMama ·
Thanks so much for this information! Should we be concerned that an ambulance/emergency medical service might not carry epinephrine as a result of this shortage? Would you recommend we call our local township/ambulance to confirm they carry it?
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Re: Ignore the Media Reports, There is NO Shortage of Epinephrine Auto-Injectors

Allison ·
That is an interesting question! In fact, it is never a given that any squad will have epinephrine. Where I live, basic life support squads (BLS, and most often volunteers) have to apply to the state (NJ) to carry it, and then they use auto-injectors. Advanced EMTs, or paramedics from hospitals - I am not sure what they carry but I think they are auto-injectors - I read there is one state out west that started carrying ampules and syringes to cut down on cost. There are other companies that...
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Re: Ignore the Media Reports, There is NO Shortage of Epinephrine Auto-Injectors

Kathy P ·
That's a really good question. And my understanding is that some carry ampules and some carry autoinjectors. And depending on the squad they send, they may or may not be authorized to inject. This all varies by locality. So, you really do need to contact your local first responders and find out what they do carry.
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Re: Ignore the Media Reports, There is NO Shortage of Epinephrine Auto-Injectors

HealthyMama ·
Thanks for the responses! Someone recommended this to me a few years ago, just to make sure our local ambulances carry epinephrine, and I have yet to do so. This news is giving me the extra push to call!
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Re: Ignore the Media Reports, There is NO Shortage of Epinephrine Auto-Injectors

Allison ·
Let us know what they say...I know that volunteer-run companies struggle with a shortage of both money and volunteers and still have training requirements to deal with anytime they want to do something new or better, and sometimes that comes into play, at least where I live.
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Re: Ignore the Media Reports, There is NO Shortage of Epinephrine Auto-Injectors

StephC ·
I just emailed the ABC station WRIC in VA who issued the report, asking that they issue a correction and update on their report of July 13. Aside from the confusion about injections vs. auto-injectors, there was a whole lot of weird quoting of the pediatrician, who sounds either misinformed or misquoted. Was wondering if KFA or AAFA has reached out to them?
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Re: Ignore the Media Reports, There is NO Shortage of Epinephrine Auto-Injectors

Allison ·
I don't believe so. I just looked at the story again under the video - they updated the text to say "there is no immediate concern" but the video is still there. I suppose if one is on Facebook, one could share our post in their comments section (that appears to be what they use....)
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Re: Ignore the Media Reports, There is NO Shortage of Epinephrine Auto-Injectors

Kids With Food Allergies ·
UPDATE: We have official responses from EpiPen ™ and Auvi-Q ™ that they are not affected by a shortage of epinephrine. We do not have an official response from Adrenaclick ™ (or the generic version). If we receive more information, we will update here.
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Re: What To Do If You Have Trouble Filling Your EpiPen® or Generic Epinephrine Prescription

Melanie Carver ·
If you are having trouble filling your epinephrine prescriptions due to the current shortages and are willing to speak with the media, please email sanaz@aafa.org . Thank you!
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Re: Epipens should be more affordable

Momofthree ·
Aaww, your daughter is precious! Thanks for sharing! You have a very good point! I agree! Please join us in our Main Forum
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Re: Epipens should be more affordable

Vronkitty ·
Thank you!!!
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Re: Epipens should be more affordable

SuperMom803 ·
Yes. I agree.
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Re: Epipens should be more affordable

Mikayla Williams ·
Strongly agreed! You can write a petition at Change.org and then present it to the government!!! Want me to help?
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

LSK ·
thanks! really helpful to get this update
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

StephC ·
That's good. It seems like Mylan is recognizing that with the rise of food allergies, a LOT of epi-prescribed folks are children, and they and their parents need extra guidance in using their device safely. (As opposed to an adult patient.)
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

Kids With Food Allergies ·
For more information on the FDA's communications about these changes: EpiPen: New label - http://www.accessdata.fda.gov/...16/019430s061lbl.pdf Letter to Mylan (makers of EpiPen and EpiPen Jr.) http://www.accessdata.fda.gov/...9430Orig1s061ltr.pdf Adrenaclick: New label - http://www.accessdata.fda.gov/...16/020800s034lbl.pdf Letter to Amedra (makers of Adrenaclick and its generic version) http://www.accessdata.fda.gov/...0800Orig1s034ltr.pdf Auvi-Q (removed from market in 2015): New label -...
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

Kids With Food Allergies ·
If you have any questions about the new labels, speak with your healthcare provider. Here is a message from Mylan, the makers of EpiPens: "Mylan offers a library of training and support resources for patients and caregivers which are in the process of being updated to reflect the new labeling. In the meantime, please speak to your healthcare professional or call the Mylan Customer Service team at 800-395-3376 with any questions about the changes. Additionally, each EpiPen 2-Pak® and EpiPen...
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

KellyM ·
Thanks so much for getting this info out! Grateful to Dr. Julie Brown et al for raising some awareness around auto injector issues and Kids with Food Allergies for spreading the word.
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

KellyM ·
Wondering if there is any discussion about "swing and jab" v. press firmly until injector engages? Bruising from overly forceful impact of auto injector on tissues also a commonly expressed concern.
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

Jen ·
Hi Kelly, There is a little more information pertaining to your question re swing/jab in this blog post from last fall. I hope that helps.
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

JoyceZ ·
Is the training device a device regulated by FDA? any safety issues?
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

K8sMom2002 ·
Hi, Joyce, the trainer in an Epi pack is usually a "look alike" that doesn't have a needle. It can be reset to be used over and over again. It's basically a way to teach people which end is up, as with a real Epi, it can be confusing and you want the meds to go in your kid and not in a teacher or staff person's thumb.
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

Rebekah Baharestan ·
This update should be on every news channel and on every epinephrine Epi pen box with a new sticker warning . Please .
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Re: FDA Updates Instructions for EpiPens and Other Epinephrine Auto-Injectors

K8sMom2002 ·
Hi, Rebekah and ... what food allergies do you manage?
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Re: Warning Advisory: Some EpiPen Auto-Injectors May Not Readily Slide Out of Carrier

Grammy123 ·
So glad to see this article. I just checked mine and it is fine....but thanks for keeping us informed. Hoping to hear more soon on what is happening with the nasal spray!
Blog Post

What Are Your Options for Injectable Epinephrine Devices?

Kids With Food Allergies ·
Epinephrine is a lifesaving medicine for people with severe allergies. It is important to discuss with your doctor about what is the most appropriate prescription for your family. You may also need to find out which options your insurance provider prefers. This will affect your out-of-pocket costs.
Kids With Food Allergies
A Division of the Asthma and Allergy Foundation of America
1235 South Clark Street Suite 305, Arlington, VA 22202
Phone: 1-800-7-ASTHMA (1.800.727.8462)
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