Originally Posted by Allison: Our understanding was the end of this month. What convention? they were at the expo at the IDEA World Fitness Convention. I specifically asked because I'd heard rumors. I hope they were wrong, I can't wait until it's released.
Thank you, KFA! And thanks to all our great food banks... I'm from Georgia, and this warms my heart! Here in Georgia, we have thousands of people in Florida seeking shelter from the storm. In a neighboring county with a Red Cross shelter, we have over 2000 in various shelters. And that's a rural county, not a metro area. A friend of mine who is volunteering at the Red Cross shelter says that some of these people have had to evacuate in such a hurry that all they had was the clothes on their ...
Patients were heard! The Graham-Cassidy bill is defeated. Pre-existing conditions, lifetime caps and other protections for patients are protected. Thank you to all of our advocates for sharing your stories and taking action. We hope the next step to improving our health care system puts patients’ needs front and center and that our leadership listens and fixes the items that are still barriers to care.
We use cast iron daily, and sometimes cook dairy and eggs in them (two of my 13 year old son's allergens.) Washing cast iron with soap and water automatically requires heat-drying and wiping with an oil once cooled. We do this daily; it's not technically "reseasoning;" it's just proper rust prevention. My family has done this since my childhood; I'm 47. I still use one of my father's skillets. Even if a pan totally rusts over, a simple scrubbing in soap and water with steel wool removes the...
For more information on the FDA's communications about these changes: EpiPen: New label - http://www.accessdata.fda.gov/...16/019430s061lbl.pdf Letter to Mylan (makers of EpiPen and EpiPen Jr.) http://www.accessdata.fda.gov/...9430Orig1s061ltr.pdf Adrenaclick: New label - http://www.accessdata.fda.gov/...16/020800s034lbl.pdf Letter to Amedra (makers of Adrenaclick and its generic version) http://www.accessdata.fda.gov/...0800Orig1s034ltr.pdf Auvi-Q (removed from market in 2015): New label -...
The West Virginia Children's Allergy Alliance (WVCAA) suggests purchasing foods like these: Peanut butter alternatives such as Sunbutter and Wowbutter, by the jar Crackers Dried fruits They ask for all allergy-friendly foods to be Top 8 allergen safe. In addition to items for our West Virginia families with food allergies, they will also accept donations for those with Celiac, diabetes, or any other dietary issue. If you have shopped for a certain condition, please label your package as such...
We are in that 39% that don't eat out any more. There are no restaurants around that can guarantee 100% safety against milk and egg contamination. We won't take even a 1/2% chance. Hopefully, one day that will change for us and more importantly for our son. Sending hugs your way.
Hugs, Josephine! It is sad that you don't have at least one safe spot that you can count on. Here's hoping that you can find a restaurant that will work with you to meet you in your comfort zone.
Thank you for posting this! We get their "normal" shape chicken nuggets, both regular and gluten free - are any of those contaminated with milk or is it just the dinosaurs?
Rel, it is only these: 12-oz. packages of “PERDUE Fun Shapes Chicken Breast Nuggets” with a “USE BY” date of “MAR 11 2019” and lot codes 17009010 – 19009010.
There is an association between being genetically bad at metabolizing synthetic folic acid (like me) and being bad at excreting heavy metals like mercury, aluminum, lead, etc . . . . That leads me to wonder if people with food allergies have higher levels of heavy metals in their bodies. Has anybody ever checked? As for me, I was on high doses of synthetic folic acid for the second and third pregnancies, but not for the first. Since then, I've come to love green leafy vegetables and beans.
He had a reaction to a cereal made by Van's that was labeled as safe for him, but I think it was a cross-contamination issue instead of a mislabeling. If he had a reaction to a mislabeled food, I don't think that it would occur to me to have the food tested. When he reacted to the cereal, I called and there was a cross-contamination risk for tree nuts that was not labeled, so I don't buy their products anymore.
Lynda, we have never met but your works quite literally saved my sanity when my son was first disagnosed (and at many points along the way in our journey). I wish you all the best life has to offer along your next journey!!
Hey, @Abigails Mommy , here's the number you can use for shipping purposes: San Antonio Food Bank PHONE 210-337-FOOD (3663) 1-800-246-9121 I would probably use the non-800 number, but I would think either would work.
Thank you, Cynthia, for helping with the phone number! Thank you, KFA, for arranging this! Disasters like this are even harder for people with FA, so a huge shout out for setting up a way to help!
Congratulations to our first #morethanfoodallergies 2019 winner! Mason's family's challenges started at his birth. It took several months before he was diagnosed as having food allergies and FPIES. Kristal, Mason's mom, says, " I say there are a lot of challenges. However, we have been blessed to have a family willing to learn about his needs and actually do something about it." She adds, "This is our way of life, our "normal". It has been a learning curve for us. We have found that...
Congratulations to our second #morethanfoodallergies 2019 winner! Rising high school senior Kylie Rogers discovered she had a severe allergy to peanuts four years ago, but she doesn't let it steal her joy, even when it can prove to be a hurdle to leap. "She has navigated her way through high school with this allergy, and it is not always easy," says her mom Gail Rogers. "High school is a very social time for teens, and Kylie has to often say no to events, and restaurants that are not safe...
Congratulations to our third #morethanfoodallergies 2019 winner! Dylan, 7, and Logan, 4, need their family's help to manage food allergies, asthma and eczema, but they do it with confidence and winning smiles. "They overcome their allergies by not letting it get them down," says their mom, Ruby. "They play, they laugh, and they live their best lives even if they can’t have that piece of cake."
We were very sad to lose our safe morning cereal, casserole topping, chicken breading, etc. when Erewhon discontinued its crispy brown rice cereal. So, I was happy to find this post and looked into Edison Grainery. My note to them and their response is below. I asked for a free sample because I saw they had offered others free samples on Facebook (year old posts so I guess they don't do that any longer). Took me a minute to process her "harsh blue" comment--guess she didn't care much for the...
I didn't see monosodium glutamate, autolyzed yeast, torula yeast extract, titanium dioxide or turkey listed. Those will directly affect my family. I was glad to see soy and shellfish listed. It's scary to think that our allergens may or may not be listed or masked as something else. I am diligent about checking to make sure food is safe to eat. If in doubt, I don't risk it. I look forward to a day when the food industry has to be more thorough and completely honest about what is in the food.
On May 28, 2020, AAFA met with the FDA to talk about how these temporary guidelines will affect the food allergy community. After the meeting, we organized a joint letter with other advocacy groups to send to the FDA. In our letter, we have asked the FDA to clarify these guidelines. We are also asking that the FDA require manufacturers to publicly post any substitutions they make. We will keep you updated on this issue. Read our joint letter to the FDA.
Hi thank you for all you are doing. I have a question still...their use of and definition of “should” concerns me that top 8 can be subbed without a label change..as they say they “should be” and not “must be” before describing the safety paragraph on top 8 etc.. can you look at the highlighted usage in the two attachments please? also, in the paragraph describing what it means “ They are not allowed to substitute the top 8 food allergens (egg, milk, wheat, soy, peanut, tree nut, fish and...
On July 16, 2020, we updated this blog post to include information on how long the temporary guidelines may remain in effect, as well as a chart to help you better understand the guidelines.
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