Skip to main content

Tagged With "Epinephrine"

Post

Tagged With "Epinephrine"

  • File Comment
    Re: Stocking Epinephrine in Schools: Policy Issues and Approaches
    Kids With Food Allergies
    On April 30, 2013, Kids With Food Allergies Foundation (KFA) hosted a free webinar in partnership with the Asthma and Allergy Foundation of America (AAFA) with guest speakers Charlotte Collins, JD, and Michael Pistiner, MD, MMSc. We thank them for their expertise and for sharing valuable information with our community on the topic of school and state policies for stocking epinephrine in schools for allergic emergencies. RESOURCES FROM VIDEO: AAFA.org/epinephrine : Find out if your state is...
  • Blog Post Comment
    Re: Virginia's Epinephrine in Schools Law Saves Another Student
    mgfunfax
    The law (and school epipens) actually applies only to kids who do not have known allergies or their own epipens. I had a lengthy discussion with the Fairfax County School contact for this issue, and while schools now each have 2-10 "Anaphylaxis Response Team" staff memebers (who received in depth training on recognizing the symptoms of anaphylaxis and treatment with epipens, calling 911 etc.), the "health room aide" is part of the County Public Health department and not FCPS, so they are NOT...
  • Blog Post Comment
    Re: Sanofi Announces FDA Approval for Auvi-Q: Card-Sized, Voice-Activated Epinephrine Auto-Injector
    Abigail's Mommy
    This new design will be much easier for men to carry in their pockets. Many men and teens don't want to carry the current epi devices because they're too bulky to fit in their pockets. I hope this new design will increase compliance and save lives. It will also be easier to fit in cute little evening bags, so high school girls will be likely to carry their epis to dances (like prom and homecoming). When I go to military balls, it's hard to find evening bags that can accommodate my epis.
  • Blog Post Comment
    Re: Sanofi Announces FDA Approval for Auvi-Q: Card-Sized, Voice-Activated Epinephrine Auto-Injector
    mj
    The size of this device will actually create more issues than solve. Its small size will resemble many other small devices or items one may carry in a purse or pocket. (smart phones etc.) When it is a panic situation and you are digging through a purse or pocket for this gadget it will only make the situation worse. Also, it takes a total of 34 seconds to go throught the process of using this gadget. This includes listening to all the prompts. Way to long in my opionion. People dont have...
  • Blog Post Comment
    Re: Sanofi Announces FDA Approval for Auvi-Q: Card-Sized, Voice-Activated Epinephrine Auto-Injector
    Starkled
    to KFA mj!! You've brought up some intriguing points! It will be interesting to see how Sanofi will address these issues by the time it becomes available. I have heard that they will be taking their time to do large scale education and marketing before they release the product. I don't think the size will be an issue for me personally, as I have a dedicated bag and compartment in my purse for emergency meds, but I can see how it might be a problem for a few folks. I know that my DH will be...
  • Blog Post Comment
    Re: Sanofi Announces FDA Approval for Auvi-Q: Card-Sized, Voice-Activated Epinephrine Auto-Injector
    Rachel99
    Interesting points. In terms of locating the device, I would imagine most people would keep them in their med/Epi bags--at least that's what I do with our Epi-Pens--I keep them in a case within my bag so I can access them fast if necessary (and labeled in case someone else has to fish them out). My husband keeps his set in a case in his briefcase. If we get the Auvi-Q, I would just put them in there, and maybe get smaller cases. Is it only able to be used with the audio prompts? I thought...
  • Blog Post Comment
    Re: Epinephrine Auto-Injectors for Infants and Toddlers to Be Available May 1
    MrsButters
    This is great news! Wish they had this available a few months ago when my toddler had to make use of an epinephrine injection. I feel like the epinephrine injection itself caused nearly as much shock to his system as the allergen, since it was a slightly higher dose then his 30lb pound could handle. We love Auvi-Q injectors and their ease of use. I wish insurance would cover them so we could refill next year beyond the initial affordability program. Thanks for posting! What great news this...
  • Blog Post Comment
    Re: Epinephrine Auto-Injectors for Infants and Toddlers to Be Available May 1
    K8sMom2002
    ❤️
    Hugs on the reaction and having to use epinephrine to begin with! I'd not heard that there was a time limit on Auvi-Q's AffordAbility program. I just checked their website, and I must be missing something, because I didn't see it there. How about starting a new topic so you can share a link about that?
  • Blog Post Comment
    Re: Epinephrine Auto-Injectors for Infants and Toddlers to Be Available May 1
    MrsButters
    ❤️
    @K8sMom2002 , Thank you. My oldest son (6 years) was really sad when we had to use the epinephrine for his little brother and said, "I was hoping we'd never have to use it." Me too, bud, me too. :'( I guess I didn't mean to imply that there was a time limit, but rather a quantity limit on the Auvi-Q affordability program. We have already received our maximum quantity of Auvi-Q injectors. I do not know if that resets annually or not. I suppose it is something to look into. Sorry to have...
  • Blog Post Comment
    Re: Epinephrine Auto-Injectors for Infants and Toddlers to Be Available May 1
    K8sMom2002
    Hey, shared information is what helps ALL of us! And I'd never thought of possible quantity or time limits on the program, so it's good to keep that on my radar. Please, please, keep sharing good questions and thoughts like this -- that's what makes our community SO strong. And I think what your oldest son said about his little brother was sad AND sweet. Way to go for him being such a good big brother!
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    hurley
    Anyone else having issues with the generic epi not working? We are fighting for the brand so we know it works well for our daughter. She was in a panic when the generic epi wouldn't work. She is so afraid of them now. How can I get her brand if I have insurance? Thank goodness we were home to grab an epi pen I had in the kitchen drawer!
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    hurley
    Yes, it would not fire. We tried both pens in the pack and neither would fire. I remembered I had epi pens I refilled in May before insurance made us go generic. I ran and grabbed them. It worked as always. My daughter still has bruises from where we tried to inject the generic pens a week later. I will never trust them again. Stef
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    Taric25
    Uh, just use a syringe? It's about twenty bucks, medicine included. Seriously, for a family that can't afford food if they purchase an auto-injector, a syringe takes a bit of training and provides the same medicine. Yes, an auto-injector is nice, but not everybody can afford it.
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    Jen
    Hi Taric, Welcome to KFA. What food allergies do you manage? A syringe can be an option. However, in an emergency, it can be difficult to draw up the meds quickly. I was just talking re that w an er nurse the other day. But...still better than not having epinephrine for sure.
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    hurley
    I have idiopathic anaphylaxis. I'm told it's a form of a mast cell disorder. All it means is that I can become anaphylactic to anything at anytime. Example- I just had knee replacement surgery. I had been taking my pain medicine less than recommended for about two weeks. When I took it the next time I needed it, I went into anaphylaxis. Another one is sometimes I walk out the door and I go into anaphylaxis. I do have known food allergies, but I avoid them. So anytime, anywhere. My kids have...
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    hurley
    The end of last week, my doctor talked to the insurance. He got me brand epi pens back. But I am still only allowed a two pack every 23 days as their prescription plan does for all drugs. Errrr! Thank goodness my daughter and I use the same dose in epi's now. Doctor said to fill it every 23 days until I get three packs. Then replace as needed. Stef
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    hurley
    That's an issue. She's out until I refill hers. The insurance is more lenient with kids. They know the school requires one with the refill tag on it as does the church, one at home and one on her. I keep her epi that stays home in my towel drawer. So kind of a built in back up. I couldn't believe when I picked up the recent brand refill, it was $600 before insurance. Stef Sent from my Verizon Wireless 4G LTE smartphone
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    NonnaJ
    This issue should not only take in account those who have a low income. The issue is that the cost of the epi is exorbitantly and greedily marked up by Mylan! It should be ashamed! The strain of paying for epi twin packs is there for everyone who needs it, and especially for families who have more than one member with life-threatening allergies. Moderate income families are always disregarded.
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    Savine
    Im having problems finding an insurance company that will except the epi pens I have a deathly allergy to tomatoes and chocolate and sodium nitrates the Medicare and blue cross I have do not cover the epi pens at all so I'm stuck any advice you guys could give would be an amazing help thank you
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    K8sMom2002
    Sabine, did you ever talk with your doctor and your insurance company to see if generic epinephrine autoinjectors would be covered? There are two versions of generic autoinjectors -- one company's generic version works exactly like their brand name version, from what I understand.
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    Parent2017
    Apparently Express Scripts has decided that both the Mylan generic Epi and the Lineage Therapeutics epinepherine injector are "branded" medication rather than generic. Spoke with multiple customer service folks as well as one of their "pharmacists" and they are telling me no generic epinepherine auto-injectors exist although they are pushing me to the Mylan generic. The insurance coverage is of course significantly higher for generics but only if they treat a generic as a generic. Getting...
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    Ellen42
    My insurance company sent me a letter saying they no longer cover Mylan Epi-pens as of next month, but supposedly they cover the generic. I looked up their formulary list. They cover Auvi-Q at 80%, which is worse than paying full price for the Mylan Epis. They don't cover Adrenaclick. In theory, they cover the Mylan generic. I'll have to leave extra time in August when I attempt to pick up the school's epis for pharmacist-allergist phone tag. GoodRx lists the prices of your various options...
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    hurley
    I can't get a cost. My CVS says all epi's are recalled. Mine expires in May, but can't get any replacements. I'm told none are available. Anyone know if the expiration date can be stretched? I can't be without an epi, but can't replace it according to the pharmacy. Stef
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    hurley
    The doctor said he did not know about the problem. Keep calling around. Apparently, Epi pens were recalled about three weeks ago. The pharmacies I spoke to will not sell epi pens until the new, post recall, pens have been sent to them. They do not want the liability. If you need an epi at this time, call 911. Stef
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    K8sMom2002
    KristaB, have you tried calling the contact number on the pharma company in question? They may be able to give you a timeline or a coupon that would work. Also, could you talk to your pharmacist or doctor? They may be able to reach out to their pharmaceutical reps for answers or a coupon, or even samples of some medications. I know that KFA is awesome about updating all this -- so keep an eye for updates.
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    KristaB
    Cynthia, No, I haven't called the pharma companies. My pharmacist is great though and he's on top of it. I wanted to see what he came up with first before trying to call pharma companies - that just seems like a runaround waiting to happen! I just found this site though, so I will keep checking back! Thanks!
  • Blog Post Comment
    Re: What to Do If You Can’t Afford Epinephrine Auto-Injectors
    Kids With Food Allergies
    The blog post was updated on Dec. 3, 2018, to include the following: Teva offers a generic version epinephrine auto-injector in limited areas in the U.S. It is available in 0.3 mg for $300 per two-pack. It will be released in larger quantities in the U.S., along with a 0.15 mg version, in 2019.
  • File Comment
    Re: Preparing Your Child To Live With Food Allergies
    Kids With Food Allergies
    Preparing Your Child To Live With Food Allergies: Helping Your Kids Become Independent Young Adults Although it may be hard to imagine, your children will leave home someday. The risk of exposure to food allergies doesn't go away as they grow into independent young adults. Watch this video as Lynda shares the following tips that have worked to empower her son to manage his own food allergies. Involve them at an early age to take responsibility for their own food allergy management. Empower...
PreviousNext

Membership Required

We're sorry. You must be signed in to continue. Sign In or Register
×
Are you sure you want to remove from your Block List?
×
When you block a person, they can no longer invite you to a private message or post to your profile wall. Replies and comments they make will be collapsed/hidden by default. Finally, you'll never receive email notifications about content they create or likes they designate for your content.
Note: if you proceed, you will no longer be following .
×
Advanced Search
Advanced Search