Stocking Epinephrine in Schools: What You Need to Know (Video & Resources)
Kids With Food Allergies
KFA Leadership & Announcements
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Blog Post CommentI enjoyed the July 31st webinar! It was very informative. I do disagree with one point. He stated that a small study showed that only a rash occurred with peanut butter spread on an allergic child's skin. My child has had hives and swelling with just skin contact....Many times. For example; After a kiss on the cheek by someone who just ate a PBJ, my child had a face full of hives and swollen lips. After sitting next to a child eating peanuts, she had hives all over her body, and a runny...
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Blog Post CommentHello and thank you for attending our webinar and for your comments. We have another school-focused webinar tomorrow - this time a panel discussion with two allergists and 4 school nurses. I will forward your question to them for a response.
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Blog Post CommentThank you! I am signed up for it, and I am looking forward to it! My daughter just started Kindergarten, and we are trying to figure out where she should sit at lunch etc. I appreciate all that you do. This is very timely for us! Thanks!
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Blog Post CommentWebinar starts today at 2 p.m. Eastern Time. Register now - it's free to attend. REGISTER NOW Originally Posted by Kids With Food Allergies Foundation: REGISTER NOW - It's free! Linda Coss is author of several food allergy books, is a former food allergy support group leader, and is the mother of a son (a recent college graduate) who has multiple life-threatening food allergies. She will inspire you! This free online class is presented by Kids With Food Allergies Foundation as part of our...
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Blog Post CommentMy daughter has a life threatening nut allergy. She is 12 andhas extreme anxiety because of it. Is there a forum or blog for her that she herself can talk to others same ay have some of the same feelings. If not, is there a way to create one?
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Blog Post CommentThanks for asking. We've had parents request a children's or teens forum, but as an organization, we'd need to be compliant with the federal law, COPPA - Children's Online Child Protection and Privacy Act. As such, we'd need to have parental consent for children under age 13 to participate and we'd have to monitor conversations to make sure children are adequately protected on our forums. We've asked for parent volunteers to help with an effort like this, but haven't had anyone really come...
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Blog Post CommentSounds like a good idea, but I'm not sure my son (12) would participate ! I can imagine more girls wanting to though.Look at it this way, how many dads do we see on the forums One other thing I'm not sure about is would the kids be able to see our posts ? i think they might not be too happy about some of the things we say about them at times, could find it embarrassing
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Blog Post CommentI thought I would see more comments from other parents who may have children have similar feelings. I would be interested in helping set this up. Is there a phone number I could contact you at so we could talk live.
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Blog Post CommentHi Sandy! I encourage you to post on the Support Forums here at KFA. There are a lot of parents here with similar feelings. Here is the link to the main forum: http://community.kidswithfooda...rum/forum/main_forum I believe there were over 800 parents on the webinar so I am sure you will find some here on the KFA forums.
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Blog Post CommentThank you. I just posted something and also found a lot of other helpful topics to read up on. Thank you!
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Blog Post CommentThere is still time to register and join us for this great topic!
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Blog Post CommentParties, Play Dates, Babysitters: How to Transition Care for Children with Food Allergies - Watch the video at: http://community.kidswithfooda...sthash.2RGlgtLi.dpuf
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Blog Post CommentGreat resource, thank you so much! Dining out with even minor food allergies can be absolutely daunting.
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Blog Post CommentAbout the Speakers Sloane Miller, food allergy advocate, author and life coach, is founder and President of Allergic Girl Resources, Inc., a consultancy devoted to food allergy awareness. Ms. Miller was born with food allergies and developed asthma and environmental allergies as a child. She consults with private clients, the healthcare, food and hospitality industries, government and not-for-profit advocacy organizations. Ms. Miller earned her Master of Social Work at the New York...
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Blog Post CommentLink to part 1 -- http://community.kidswithfooda...ols-tips-for-parents Link to part 2 -- http://community.kidswithfooda...hools-ask-the-expert
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Blog Post CommentTerrific webinar though I wish the small study of 30 children who showed no reaction to peanut butter being a foot from their faces would not have been included. My child has twice suffered angioedema after being in the same room as an open jar of peanut butter for only moments so this information works counter to my efforts in accommodating my child in school. Otherwise a helpful presentation...thank you!
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Blog Post CommentThis webinar is tomorrow - be sure to sign up so you don't miss it! RSVP: Reserve your seat by registering WHEN: Tuesday, July 1, 2014 TIME: 1:00 pm Eastern time WHERE: Your computer, iOS or Android device Now is the time to prepare and plan for the next school year! Learn how to make your child's year run smoothly by attending this free webinar. Presenters David Stukus, MD and Michael Pistiner, MD, MMSc are Co-Chairs of KFA's Medical Advisory Team. They are also frequent guest speakers on...
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Blog Post CommentWell said! I've seen a lot of guilt responses to the study.
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Blog Post CommentI haven't heard anything about this study, but food allergies aren't anyone's fault!!
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Blog Post CommentGreat article :-) Thanks for taking the time to post it KFA!
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Blog Post CommentEliezrah - this is in reference to the LEAP study that was announced at AAAAI last weekend. You can read more about it here (link is also in the above article) Landmark Study May Change How We Feed Peanut Butter To Infants
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Blog Post CommentThanks Kathy. I can see why some people can read it as blaming the parents.
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Blog Post CommentA very big thank you! This is fabulous information that needs to be heard more. I'm editing my blog post to include a link to KFA's post. Thank you again!
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Blog Post CommentThank you Jessica for including a link! And for helping us get the info out!
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Blog Post Comment❤️Thank you doctors for posting this. I have wondered what I could've, should've, or would've done better, different, or something. Beating myself up over it doesn't change anything. I know all those parents out there with severely peanut allergic children did not do everything the same. I actually think it would've been a lot more difficult to watch my infant have an anaphylactic reaction than my 2 year old. At least she could talk to me.
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Blog Post CommentA free press is not free to lie, mislead, and over-hype and it is high time to hold them accountable for all the damage they are doing to kids with allergies and society in general. The press is hugely irresponsible in how they report scientific findings. Science is slow, particular, and often very inconclusive. How many kids are going to DIE because of irresponsible reporting?! We have ongoing battle with family members and school administrators who deep in their hearts believe this is our...
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Blog Post CommentI wish this could have applied to my children. My 4yo boy tested highly positive to peanuts at 6 months of age, so he would have been deemed too high risk to participate, anyway. And then there's my daughter, who has FPIES and still hasn't gotten around to trying peanuts. Now I'm terrified that the extremely slow process of introducing food into her diet means I've already missed my window of early prevention. She's definitely high risk for developing a peanut allergy since she has a sibling...
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Blog Post CommentI imagine this post will be shared with many relatives and friends. Thank you for posting the most recent research here! (my first question was, "does this mean people should run out and try this combined therapy?" and my second was, "Hmm. I have a small child and I wonder what the side effects of this drug would be on her physical, neurological, and hormonal development if she did this.." Thanks again for all your work here, I absolutely love and trust this site!
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Blog Post CommentHi A-Ma, This type of treatment is still undergoing research studies and is not being performed in allergy clinics across the country yet. The drug described in this study is actually an injectable medicine for asthma that has not been proven/approved for use in other allergic diseases yet. It is currently only approved for use in children over age 12. The concerns you mentioned about side effects and how it may affect the child are all great questions that will be investigated as the...
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Blog Post CommentHere is the link to the video and list of resources in case you missed the live event: http://community.kidswithfooda...video-and-resources-
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Blog Post CommentAbout Our Speakers Charlotte Collins, JD is Vice President of Public Policy and Programs for the Asthma and Allergy Foundation of America (AAFA). is Vice President of Policy and Programs for the Asthma and Allergy Foundation of America (AAFA). Before joining AAFA, she was an Associate Professor in the George Washington University’s School of Public Health and Health Services, teaching graduate courses in public health, law, policy and management. Ms. Collins received her law degree from...
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Blog Post CommentTraining videos for all available epinephrine autoinjectors are available at: Adrenaclick™ ( www.adrenaclick.com ) Auvi-Q™ ( www.auvi-q.com ) Epinephrine Injection, USP auto-injector, authorized generic (AG) of Adrenaclick™ ( www.epinephrineautoinject.com ) EpiPen™ and EpiPen Jr™ ( www.epipen.com ) REFERENCES Product information for Adrenaclick™. Amedra Pharmaceuticals LLC. Horsham, PA 19044. June 2012. Product information for Auvi-Q™. Sanofi-Aventis U.S. Bridgewater, NJ 08807. September...
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Blog Post CommentI understand that Xolair is experimental for children with food allergies and only for kids 12 and up. But it is my understanding that OIT and SLIT is being done in regular clinic settings and not just in clinical trials . Is the any hospital/ clinic in the country that is doing OIT or SLIT for children with fish allergies? I have seen it only for nuts, milk and eggs. Thanks for any information you have.
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Blog Post CommentWhenever I want to check to see who is doing what in research, I look at www.clinicaltrials.gov Putting in food allergies yields 374 results - that includes studies that are not yet recruiting and those that are done.. https://www.clinicaltrials.gov...es&Search=Search I am not sure about regular clinic settings - I just reread your question.
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Blog Post CommentThank you, KFA! As a person who was directly affected by Michael, I can tell you that areas south of us (southwest Georgia and the Panhandle of Florida) are still hit hard. Many in Georgia still don't have power and won't for some time, and as for Florida ... my heart goes out to all of those who were not as blessed as my family was!
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Blog Post CommentInterested to see if anyone has information on two foods not related eg. peanuts and cotton seed oil. From what I have been reading cotton seed oil has the same weight and molecular structure as peanuts.
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Blog Post CommentVery interesting information. It makes a lot of sense. My kids both have pollen allergies and both have had reactions/sensitivities to some fruits and pine nuts.
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Blog Post CommentMy daughter is allergic to cow's milk, egg, peanut and tree nut. She is 5 years old and has eaten apples (raw or cooked) without any issue for years. Last spring/summer she started complaining of itchy mouth after eating apples (in raw form). She ate them all winter (raw or cooked) with no issue. This spring started with more intense complaints of itchy mouth and itchy skin (no visible hives) after eating raw apples. Her IgE blood work was positive for apples (lower value, yet positive).
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Blog Post CommentHi Kara! That sounds like Oral Allergy Syndrome to me. My dd has OAS. I would consult with your allergist to see if cooked apples are okay or if you should avoid.
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Blog Post CommentI am 43, and have some form of Oral Allergy Syndrome. I get small itchy blisters on my lips, roof of mouth, and down my throat, if I eat fresh fruit that you can eat the skin. This started about 8-9 years ago. I can't eat fresh apples, grapes, strawberries, peaches, etc. If you have to peel it, I can eat it. But I'm not allergic to the fruit itself. I can eat most frozen fruits, but not peaches. I believe its the pesticides used on the fruit. I've tried organic, and I get the same reaction.
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Blog Post CommentMy son has OAS with apples. His reaction did not occur immediately, but rather almost 12 hours later. I took a picture of his reaction and showed his allergist. Allergist agreed it was definitely OAS. Apparently his reaction was NOT common in that it took so long to show. Just something to think about...
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Blog Post CommentInteresting possibility Eskimomama. My daughter has OAS and reacts differently to different varieties of the same fruit. Sometimes she can eat more, sometimes very little before she feels the reaction. Since it's a cross reactivity to the pollens, it seems to correlate with when the pollen is high or her overall allergy load is high (d/t environmental issues in general). But she reacts to conventional and organic. She seems to be able to eat dried fruits but we haven't really tried frozen.