I have idiopathic anaphylaxis. I'm told it's a form of a mast cell disorder. All it means is that I can become anaphylactic to anything at anytime. Example- I just had knee replacement surgery. I had been taking my pain medicine less than recommended for about two weeks. When I took it the next time I needed it, I went into anaphylaxis. Another one is sometimes I walk out the door and I go into anaphylaxis. I do have known food allergies, but I avoid them. So anytime, anywhere. My kids have...
The end of last week, my doctor talked to the insurance. He got me brand epi pens back. But I am still only allowed a two pack every 23 days as their prescription plan does for all drugs. Errrr! Thank goodness my daughter and I use the same dose in epi's now. Doctor said to fill it every 23 days until I get three packs. Then replace as needed. Stef
That's an issue. She's out until I refill hers. The insurance is more lenient with kids. They know the school requires one with the refill tag on it as does the church, one at home and one on her. I keep her epi that stays home in my towel drawer. So kind of a built in back up. I couldn't believe when I picked up the recent brand refill, it was $600 before insurance. Stef Sent from my Verizon Wireless 4G LTE smartphone
This issue should not only take in account those who have a low income. The issue is that the cost of the epi is exorbitantly and greedily marked up by Mylan! It should be ashamed! The strain of paying for epi twin packs is there for everyone who needs it, and especially for families who have more than one member with life-threatening allergies. Moderate income families are always disregarded.
Im having problems finding an insurance company that will except the epi pens I have a deathly allergy to tomatoes and chocolate and sodium nitrates the Medicare and blue cross I have do not cover the epi pens at all so I'm stuck any advice you guys could give would be an amazing help thank you
Sabine - will the cover a different generic epinephrine autoinjector? You doctor has to specifically write the prescription for the generic ones. Otherwise, the pharmacy has to dispense the brand name.
Sabine, did you ever talk with your doctor and your insurance company to see if generic epinephrine autoinjectors would be covered? There are two versions of generic autoinjectors -- one company's generic version works exactly like their brand name version, from what I understand.
Apparently Express Scripts has decided that both the Mylan generic Epi and the Lineage Therapeutics epinepherine injector are "branded" medication rather than generic. Spoke with multiple customer service folks as well as one of their "pharmacists" and they are telling me no generic epinepherine auto-injectors exist although they are pushing me to the Mylan generic. The insurance coverage is of course significantly higher for generics but only if they treat a generic as a generic. Getting...
My insurance company sent me a letter saying they no longer cover Mylan Epi-pens as of next month, but supposedly they cover the generic. I looked up their formulary list. They cover Auvi-Q at 80%, which is worse than paying full price for the Mylan Epis. They don't cover Adrenaclick. In theory, they cover the Mylan generic. I'll have to leave extra time in August when I attempt to pick up the school's epis for pharmacist-allergist phone tag. GoodRx lists the prices of your various options...
I can't get a cost. My CVS says all epi's are recalled. Mine expires in May, but can't get any replacements. I'm told none are available. Anyone know if the expiration date can be stretched? I can't be without an epi, but can't replace it according to the pharmacy. Stef
The doctor said he did not know about the problem. Keep calling around. Apparently, Epi pens were recalled about three weeks ago. The pharmacies I spoke to will not sell epi pens until the new, post recall, pens have been sent to them. They do not want the liability. If you need an epi at this time, call 911. Stef
You're right - the pharma company websites aren't updated yet for 2018 and the coupons all expired 12/31/17. I'm trying to fill prescriptions now and don't have a valid coupon! How do I get an updated one?
KristaB, have you tried calling the contact number on the pharma company in question? They may be able to give you a timeline or a coupon that would work. Also, could you talk to your pharmacist or doctor? They may be able to reach out to their pharmaceutical reps for answers or a coupon, or even samples of some medications. I know that KFA is awesome about updating all this -- so keep an eye for updates.
Cynthia, No, I haven't called the pharma companies. My pharmacist is great though and he's on top of it. I wanted to see what he came up with first before trying to call pharma companies - that just seems like a runaround waiting to happen! I just found this site though, so I will keep checking back! Thanks!
The blog post was updated on Dec. 3, 2018, to include the following: Teva offers a generic version epinephrine auto-injector in limited areas in the U.S. It is available in 0.3 mg for $300 per two-pack. It will be released in larger quantities in the U.S., along with a 0.15 mg version, in 2019.
Thanks for a great webinar! Very informative and helpful. I noticed the babysitting handout shown on one of the last slides wasn't included in your list of links here, I was able to find it on my own, but thought I would point that out in case you want to add it. Thanks!
Thank you so much for this webinar! You answered so many questions for this school nurse, both during your presentation & in the Q & A session! I appreciate the time each of you gave to educate us more about epinephrine & anaphylaxis!
Thanks so much for this information! Should we be concerned that an ambulance/emergency medical service might not carry epinephrine as a result of this shortage? Would you recommend we call our local township/ambulance to confirm they carry it?
That is an interesting question! In fact, it is never a given that any squad will have epinephrine. Where I live, basic life support squads (BLS, and most often volunteers) have to apply to the state (NJ) to carry it, and then they use auto-injectors. Advanced EMTs, or paramedics from hospitals - I am not sure what they carry but I think they are auto-injectors - I read there is one state out west that started carrying ampules and syringes to cut down on cost. There are other companies that...
That's a really good question. And my understanding is that some carry ampules and some carry autoinjectors. And depending on the squad they send, they may or may not be authorized to inject. This all varies by locality. So, you really do need to contact your local first responders and find out what they do carry.
Thanks for the responses! Someone recommended this to me a few years ago, just to make sure our local ambulances carry epinephrine, and I have yet to do so. This news is giving me the extra push to call!
Let us know what they say...I know that volunteer-run companies struggle with a shortage of both money and volunteers and still have training requirements to deal with anytime they want to do something new or better, and sometimes that comes into play, at least where I live.
I just emailed the ABC station WRIC in VA who issued the report, asking that they issue a correction and update on their report of July 13. Aside from the confusion about injections vs. auto-injectors, there was a whole lot of weird quoting of the pediatrician, who sounds either misinformed or misquoted. Was wondering if KFA or AAFA has reached out to them?
I don't believe so. I just looked at the story again under the video - they updated the text to say "there is no immediate concern" but the video is still there. I suppose if one is on Facebook, one could share our post in their comments section (that appears to be what they use....)
UPDATE: We have official responses from EpiPen ™ and Auvi-Q ™ that they are not affected by a shortage of epinephrine. We do not have an official response from Adrenaclick ™ (or the generic version). If we receive more information, we will update here.
That's good. It seems like Mylan is recognizing that with the rise of food allergies, a LOT of epi-prescribed folks are children, and they and their parents need extra guidance in using their device safely. (As opposed to an adult patient.)
For more information on the FDA's communications about these changes: EpiPen: New label - http://www.accessdata.fda.gov/...16/019430s061lbl.pdf Letter to Mylan (makers of EpiPen and EpiPen Jr.) http://www.accessdata.fda.gov/...9430Orig1s061ltr.pdf Adrenaclick: New label - http://www.accessdata.fda.gov/...16/020800s034lbl.pdf Letter to Amedra (makers of Adrenaclick and its generic version) http://www.accessdata.fda.gov/...0800Orig1s034ltr.pdf Auvi-Q (removed from market in 2015): New label -...
If you have any questions about the new labels, speak with your healthcare provider. Here is a message from Mylan, the makers of EpiPens: "Mylan offers a library of training and support resources for patients and caregivers which are in the process of being updated to reflect the new labeling. In the meantime, please speak to your healthcare professional or call the Mylan Customer Service team at 800-395-3376 with any questions about the changes. Additionally, each EpiPen 2-Pak® and EpiPen...
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