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Tagged With "Eosinophilic Esophagitis (EoE)"

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Re: Family's Every Meal Must Cater to Rare Disorder (Eosinophilic Esophagitis)

Kids With Food Allergies ·
Our apologies! If you are visiting this link looking for the article on FPIES, please visit this blog post: http://community.kidswithfooda...rome-baffles-doctors
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Re: Food Allergy Test: What Does It Mean?

Kids With Food Allergies ·
We're going to invite Dr. Stukus to reply to some of the questions here. He won't be able to give you medical advice, of course, but he may be able to give out general information about the issues you have brought up. Eczema is a tough one to explain. I will defer that one to Dr. Stukus. Regarding the MRT post, I want to take issue with your last point. One is that if RAST or skin tests are negative a child could still have an immune-mediated non-IgE mediated food allergy as is explained in...
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Re: Replacing Lost Nutrients Due to Food Allergies

Rosangela ·
Thank you so much for this article. I have a son who is 9 years old and has EOE. He's allergic to almost all fruits and vegetables, nuts, barley, soy, corn, potatoes, rye, etc. He does not eat any kind of meats , fish, poultry. He got so tired of rice that now he can't even see it. Now the doctors decided that he should not eat anything that has wheat, milk and eggs on it because they believe that's what is making the disease worse. What should I do? I'm seeing a dietitian and everything she...
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Re: Family's Every Meal Must Cater to Rare Disorder (Eosinophilic Esophagitis)

Starkled ·
What a great article! WTG Aurit family for increasing EoE awareness and advocating for everyone in your state that is struggling to afford elemental formulas.
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Re: New Food Find: Coconut Whipped Cream Topping (Milk-Free, Soy-Free)

bubbi ·
My grandson has EOE and this brings his joy and confidence to another level. A small bit of heaven like this makes a child so happy. Thanx SO Delicious.
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Re: Lancaster Youth Copes with Rare Medical Condition

Monster Mom ·
Very awesome!! I hope my son is as brave as Mike some day.
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Re: Baking With Food Allergies – Your Questions Answered

Former Member ·
I am new to this food allergy thing. My son also has EoE and has now been put on the six food elimination diet. i love to bake. to have purchased buckwheat flour, quinoa flour and tapioca flour. I want to make a flour blend that is also nutritious. I'd like to make his bread as well as muffins pancakes, and anything else a 2 year old might like. I'm not sure of the nutritionsl content of the king Arthur flour blend that you've recommended. I will definitely use that when making cakes etc,...
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Re: EoE Developed in Patients with IgE-Mediated Food Allergy After OIT

SBilliel ·
Thanks for posting this!
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Different Types of Food Allergies (Free Patient Handout)

Kids With Food Allergies ·
This  free two-page handout  explains the different types of allergic reactions to foods. IgE Mediated Food Allergies  Non-IgE Mediated Food Allergies  Symptoms and Treatments Cross-Reactivity and Oral Allergy Syndrome Eosinophilic...
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EoE Developed in Patients with IgE-Mediated Food Allergy After OIT

Kids With Food Allergies ·
Eosinophilic esophagitis occurred in nearly 3% of patients with immunoglobulin E-mediated food allergy who had undergone oral immunotherapy in a recent study.   Read the full article on Healio: EoE developed in patients with IgE-mediated food...
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Have You Heard of Eosinophilic Esophagitis, Also Known as EoE?

Kids With Food Allergies ·
Did you know there are different types of allergic reactions to foods ?    Two Categories of Food Allergies Immunoglobulin E (IgE) mediated . Symptoms result from the body’s immune system making antibodies called Immunoglobulin E (IgE)...
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Family's Every Meal Must Cater to Rare Disorder (Eosinophilic Esophagitis)

Kids With Food Allergies ·
[ Our apologies!  If you are visiting this link looking for the article on FPIES, please visit this blog post:   http://community.kidswithfooda...rome-baffles-doctors ]   Thank you to the Aurit family for sharing their perspective on living with eosinophilic esophagitis and for working on passing a law that would require insurers to cover medically-necessary amino acid formula for families in Nebraska.   The Aurit children and their mother, Sarah, all live...
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Family with EoE Dares You to Try Eating Just One of These Allergy-Friendly Granola Bars

Kids With Food Allergies ·
May 17-23 marks National Eosinophil Awareness week, and to mark the occasion Kids With Food Allergies introduces guest blogger Elizabeth DiBurro of  EBL Food Allergies . She shares recipes and tips on parenting with multiple food allergies and...
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FDA Fast Tracks Designation for Viaskin Milk for the Treatment of Cow’s Milk Protein Allergy

KFA News Team ·
Kids With Food Allergies is sharing this press release from DBV Technologies . This is not an endorsement of the content contained in the press release. Speak with your physician if you have any questions. [PRESS RELEASE] Wednesday, September 21, 2016 DBV Technologies Receives FDA Fast Track Designation for Viaskin Milk for the Treatment of Cow’s Milk Protein Allergy DBV first to announce Fast Track designation for IgE-mediated CMPA; Viaskin Milk is currently being investigated in a Phase...
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Birthday Cake Ideas for Kids on Limited Diets Due to Allergies

Kids With Food Allergies ·
Cakes for Kids on Restricted Diets by Melanie Carver When a child is first diagnosed with food allergies to ingredients such as milk, egg, and wheat, parents may worry that a birthday cake will be impossible to make.  Although there are...
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Cincinnati Children's Researchers Develop First Molecular Test To Diagnose Eosinophilic Esophagitis

Kids With Food Allergies ·
CINCINNATI, Nov. 21, 2013 /PRNewswire-USNewswire/ -- Researchers at Cincinnati Children's Hospital Medical Center have developed the first molecular test to diagnose eosinophilic esophagitis (EoE), a chronic upper gastrointestinal...
Blog Post Featured

Creating Wellness Policies That Are Safer for Students with Food Allergy

Kids With Food Allergies ·
We are looking out for children with food allergies in schools!  We recently filed a formal comment on the federal government's proposal to improve wellness at school. Our bottom line:  Schools should develop policies that make schools...
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A New Syndrome: Eosinophilic Esophagitis with Connective Tissue Disorder (EoE-CTD)

Kids With Food Allergies ·
Eosinophilic Esophagitis (EoE) is a chronic inflammatory disorder of the esophagus. Researchers from the Cincinnati Center for Eosinophilic Disorders (CCED) (www.cincinnatichildrens.org/cced) at Cincinnati Children’s Hospital Medical...
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Food Allergy Research Review, April-June 2017

Kids With Food Allergies ·
Kids With Food Allergies will recap some of the top research in food allergies every three months. Here is a look at studies reported between April and June 2017. Read about how environment can trigger eosinophilic esophagitis, how many kids are taking life-saving medicines to camp and more.
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Food Avoidance and Drug-Free Remission in Adults with Eosinophilic Esophagitis

Kids With Food Allergies ·
A recent study published in The Journal of Allergy and Clinical Immunology (JACI) documented remission of eosinophilic esophagitis (EoE) in 3/4 of affected adults who eliminated cereals, milk, eggs, seafood, legumes, peanuts and soy for 6...
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Food Allergy Awareness: Common Related Diseases/Conditions

Kids With Food Allergies ·
Did you know? If someone has food allergy, he or she is more likely to have asthma, eczema, eosinophilic esophagitis (EoE), or exercise-induced anaphylaxis. Source: NIH Publication, Guidelines for the Diagnosis and Management of Food Allergy in...
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Lancaster Youth Copes with Rare Medical Condition

Kids With Food Allergies ·
"When Mike Dube was 3, his doctors thought he had a wide range of food allergies. It wasn't until he was 8 that he was diagnosed with eosinophilic esophagitis, a condition that prevents him from eating most foods because his white blood cells mistake...
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Prior Food Allergic Individuals Could Be at Risk of Developing Eosinophilic Esophagitis to the Same Food

Kids With Food Allergies ·
Prior Food Allergic Individuals Could Be at Risk of Developing Eosinophilic Esophagitis tothe Same Food SAN DIEGO, CA According to a study presented at the 2014 Annual Meeting of the AmericanAcademy of Allergy, Asthma & Immunology (AAAAI), people who have outgrown a foodallergy might be at risk of developing another conditioncalled eosinophilic esophagitis (EoE)to the same food. EoE is characterized by the presence of large numbers of...
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Baking With Food Allergies – Your Questions Answered

Kids With Food Allergies ·
Baking Without Milk, Eggs, Soy, Wheat, Gluten and Nuts by Colette Martin Thank you to everyone who joined the Kids with Food Allergies webinar (click to view the video recording) on Wednesday, November 28th. It’s great to see so...
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Research Suggests Eosinophilic Esophagitis Is a Late Manifestation of the Atopic March

KFA News Team ·
The atopic march describes how patients who have an allergic disease are more likely to develop another or multiple allergic diseases in their lifetime. This progression commonly starts with eczema in infancy and can develop into food allergy, asthma or hay fever in childhood. Now, new research being presented at the Joint Congress provides evidence that EoE is a late but probable part of this disease progression.
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Steamed Rice Flour Cake Made with Few Ingredients

Melanie Carver ·
Steamed Rice Flour Cake One of our members, Maren, contributed this recipe to our Safe Eats allergy-friendly recipes collection.  It has very few ingredients, making it a great option for kids with restricted diets due to multiple food...
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New Coalition Launches During National Eosinophil Awareness Week

Kids With Food Allergies ·
A new coalition for patients launched during National Eosinophil Awareness Week. Kids With Food Allergies is one of the member organizations of this new coalition.   Patient Advocacy Groups Unite in Support of Those with Rare...
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NJ Residents: Contact Your Local Representatives About Elemental Formula Bill

KFA News Team ·
If you live in New Jersey, take action now by urging your local representative in the New Jersey state legislature to move a bill through the legislative process that covers the cost of special formula for eosinophilic disorders regardless of delivery method. The bill, S2649, gives health insurance coverage for amino acid-based elemental formulas (like Neocate® or EleCare®) for eosinophilic disorders. The bill provides coverage for elemental formula no matter how it is delivered. An infant...
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One-Ingredient, Allergy-Friendly, Healthy Ice Cream Treat for Kids

Kids With Food Allergies ·
It's National Nutrition Month!  When you think of "healthy", you don't normally think of ice cream. This one-ingredient recipe is free of all allergens (except banana) and is free of added sugar and fat. This recipe is great for children with...
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Young Ethan Stands Strong Against Food Allergies and EoE

Kids With Food Allergies ·
Meet Ethan, a Star Wars fan from Ohio. He fights his eosinophilic esophagitis (EoE) and multiple food allergies not with light sabers, but with karate. Ethan, a second grader, is our November #‎WhereInTheWorldIsMyEpinephrine winner. His mom told us that karate gave him his self confidence and happiness back after his diagnosis. "He said he will fight this EoE and one day he will eat his favorite foods again," said his mom, Waianne. Ethan and his family  win their choice of $400...
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Study Finds Cause of Mysterious Food Allergy, Suggests New Treatment Strategy

Kids With Food Allergies ·
PRESS RELEASE Study Finds Cause of Mysterious Food Allergy, Suggests New Treatment Strategy CINCINNATI, July 13, 2014 /PRNewswire-USNewswire/ -- New research in Nature Genetics identifies a novel genetic and molecular pathway in the esophagus that...
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Re: Steamed Rice Flour Cake Made with Few Ingredients

Raindrop ·
I wonder if you could replace the sugar with a sugar substitute like Stevia granules and it still work?
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Re: Steamed Rice Flour Cake Made with Few Ingredients

Melanie Carver ·
This recipe was first shared on our community a couple years ago. Here is a link to the discussion about this recipe: http://community.kidswithfooda...ent/3682717251982588 (Must be logged in to view discussions on our support forums.)
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Re: Steamed Rice Flour Cake Made with Few Ingredients

Monster Mom ·
Do you think this could be made substituting rice flour with potato flour? Lisa
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Re: Steamed Rice Flour Cake Made with Few Ingredients

MAM-mom ·
I don't know that it would work. Rice flour is super-fine ground rice--think of rice that has gone through a grinder--and it has the properties of rice, so it will absorb water like rice does when you cook it. Potato flour is form potatoes that have been dried and I don't know that they would re-hydrate the same way. BUT potato flour isn't so terribly expensive and I would encourage you to try it. Assume it will flop and if it doesn't you will be pleasantly surprised. Also keep in mind that...
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Re: Steamed Rice Flour Cake Made with Few Ingredients

Kathy P ·
I think you will wind up w/ a big lump of glue if you try using potato flour. I'm assuming you really mean potato flour and not potato starch (which I don't think would work either). Potato flour is more like dehydrated potatoes and is really, really gummy (I clogged all the pipes in my sink when I dumped some down the drain while running hot water!) Do you have any other flours to work with??
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Re: Steamed Rice Flour Cake Made with Few Ingredients

Monster Mom ·
THat is what I was afraid of. I worked with rice in our last trial, so I KWIM. I also have found that potato treat the same tends to be a lump. Unfortunately, no, we don't have anything else for flour. HOwever, I have found that when things go ary, DS still doesn't mind trying them and we DO find "new foods". So thanks!! If I go for it, I"ll let you know how it turns out. Lisa
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Re: Steamed Rice Flour Cake Made with Few Ingredients

Kathy P ·
GL! Do you have any safe powdered sugar?? You can make potato candy. Not sure what you have to spread on it (the typical is PB).
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Re: The Future of Food Allergy: Developing New Treatments

LinzStein ·
Great overview! KFA- is there any additional info about the use of Allergen non-specific therapies for EoE? What about accupressure or homeopathics? Thank you!
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Re: Milk-Free, Soy-Free, Gluten-Free Cream of Mushroom Soup Recipe

Nina3712 ·
Thank you for sharing your cream of mushroom soup recipe! Our family will try it. Our daughter struggles with EoE and she is learning to cook before she goes away to college in a few years. This is perfect for helping to widen her selection.
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Re: Milk-Free, Soy-Free, Gluten-Free Cream of Mushroom Soup Recipe

Nina3712 ·
Thank you @KathyP13 really appreciate the resource! Yes, it's very scary and my daughter has a difficult diet, avoiding wheat, dairy, eggs, treenuts, fish/shellfish, legumes, chicken and a host of individual produce since she has EoE and OAS. Some produce is ok if she cooks it and breaks down the protein, but others even after being cooked, is difficult. Lots of fresh fruits not ok except organic berries and apples. She was just scoped and her lower esophagus is hardening We go for follow up...
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Re: Q&A: What Does Omalizumab Mean for Oral Immunotherapy Treatment for Multiple Food Allergies?

APV ·
It must be clarified that OIT is not a cure. It is changing the disease state. IgE is naturally involved in helminth defense (worm infections). A "low intensity" worm infection is IgE dominated. This is equivalent to food allergy. A "high intensity" worm infection is IgG4 dominated (high IgG4/IgE) ratio. This is equivalent to a person with food allergy who has received OIT. In food allergy, your immune system has been programmed to recognize food items as worms. So continued food allergen...
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Dupixent® (Dupilumab) Shows Positive Results for Eosinophilic Esophagitis During Clinical Trial

KFA News Team ·
Regeneron Pharmaceuticals, Inc. (NASDAQ: REGN) and Sanofi today announced positive results from Part A of the pivotal Phase 3 trial evaluating Dupixent® (dupilumab) in patients 12 years and older with eosinophilic esophagitis (EoE). The trial met both of its co-primary endpoints, as well as all key secondary endpoints. Dupixent is the first and only biologic to show positive and clinically-meaningful results in this population as part of a Phase 3 trial.
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[Sponsored] How a Special Formula Can Help Fill Nutrition Gaps for Food Allergies

Kids With Food Allergies ·
We thank Cambrooke for their sponsorship of this blog post to help us share information about specialty formulas for food allergies. This is a sponsored post and is not an endorsement of any company or its products, nor is it a guarantee of the products’ safety. The funding we received for this advertisement helps support our free asthma and allergy programs. There are several types of special formulas available for people with food allergies , as well as ways to make formula more...
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8 Facts About Eosinophilic Esophagitis (EoE)

Kids With Food Allergies ·
White blood cells are the superheroes of our immune systems. They fight the “bad guys” – infections, bacteria, parasites, and diseases. But sometimes, these superheroes get confused about who they are supposed to fight. When that happens, your immune system might overreact to things that are supposed to be good, like food. One type of white blood cell called an eosinophil [EE-oh-sin-oh-FILL] is an immune system superhero that can cause issues when too many of them collect in one area of your...
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Re: Allergy-Friendly School Lunch Ideas: A Week of Wheat-Free Alternatives

HelenDamon ·
Steph - that's a good point - about prioritising health issues (food allergies over cancer risk). I still am uneasy of introducing another health risk into my son's life, however. My son has 8 food allergies that we know of so far including wheat and potatoes, EoE plus environmental and I have several food involving severe anaphylactic responses to soy and shellfish and all seafood and many environmental allergies as well we both have autoimmune issues. I will look at the Safe Eats...
Kids With Food Allergies
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