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Connecting with the Medical Advisory Team of Kids With Food Allergies Foundation

Dear Friends,

 

We are excited to introduce the Kids with Food Allergies Foundation, Medical Advisory Team and our new blog. 

 

Our team is a voluntary, multidisciplinary group of food allergy educators and advocates who are here to help support kids with food allergies and their families. Our team is 18 strong, comprised of allergists, pediatricians, nurses, dietitians, social workers, and pharmacists.  Although each individual brings our own professional and personal experiences, together we offer a well rounded team of experts with a common goal: To improve the day-to-day lives of families raising children with food allergies and empower them to create a safe and healthy future for their children. 

 

Our new blog is here to bring us one step closer to you.  We hope to be accessible and share what we know while learning from you and your children.  Over the upcoming weeks and months, we will be introducing ourselves to you. Our topics will vary based on our training and interest as well as current events, research, and your requests.  Are there any topics you’d like us to write about, or any questions you’d like us to answer? If so, let us know by commenting here.

 

Best,

 

Michael Pistiner, MD, MMSc: MAT Chair

Lynda Mitchell, MA: President

Angela Nash, Pharm D: Director

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Comments (17)

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Originally Posted by fpie mom:
i have been told my daughter has fpies by one and mpies by another i have been reading up on both and they are similar. i don't know what to do. when she has an episode it takes a week to two weeks for her to flush it out of her own system.when we lived in alabama the hospitals would give her a bag of fluids and then she would be fine but now the docters don't listen to me.they say it isnt healthy to give fluids if she doesnt need it..what can i do to help her flush it faster.



Welcome and hugs.

I am no Dr. but for us the fluids aren't for flushing things out. They are for the dehydration that is often caused but the condition.  As fore the difference between FPIES and MPIES, MPIES is specific to milk while in FPIES the "F" is for food (my kiddos triggers are bananas and blueberries).  They are the same condition but one is more specific.

Have you visited the local children's hospital wherever it is you have moved?  Sometimes people have more luck with a GI Dr. while others have better luck with an allergist. 

FPIES/MPIES is not a very well known condition We went through 7 allergists and several GI Dr's before we were finally diagnosed.

Hugs again!  Let us know if we can help in any way!!

i have been told my daughter has fpies by one and mpies by another i have been reading up on both and they are similar. i don't know what to do. when she has an episode it takes a week to two weeks for her to flush it out of her own system.when we lived in alabama the hospitals would give her a bag of fluids and then she would be fine but now the docters don't listen to me.they say it isnt healthy to give fluids if she doesnt need it..what can i do to help her flush it faster.

My 9 year old girl is allergic to multiple foods, including soy, milk, oats, flour, milk, beans, pork, glutten, casein, coconut, onions, among others. Symptoms include itching, throat, esophagus and tongue. Apart from gastrointestinal problems, from chronic esophagitis to stomach ulcers. Your allergies increase since if consume the same food for long period creates allergies to it. No treatment has taken effect as a mother and I'm desperate.

Big Momma! If the doctors haven't already recommended it, I suggest making an appt with a Registered Dietician. Try to find one that has experience working with limited diets, they will be more useful to your particular situation. It's useful to keep a food log before your appt so the RD can evaluate the diet and see if there are any nutritional holes and help you make sure all nutrutional needs are being met. We can also help you in our Food & Cooking Forum. Many of us have dealt with restricted diets and finding new and fun ways to cook meals with just a few ingredients. But you do need to make sure that the RD helps you get the nutrution bases covered, then we can help with making meals from your safe foods.  

 

When you find yourself with more questions after an appt - as many of us often find ourselves - you can schedule another appt or use their nurse call line. Make sure you write down all of your questions so you don't forget.

Hi, My son has many food allergies and his diet is very limited because of it. We just found out that he is hypoglycemic and we were told it is from his very restricted diet. He now has to test his blood sugars in the morning since he collapsed from his sugar levels being dangerously low. I would like any information about hypoglycmia and is he now considered a diabetic? Is this something he will have the rest of his life or grow out of it? Any and all information would be appreciated.

Hi!  My grandson has anaphylaxis to eggs, nuts, has asthma, allergic to cats, dogs, specific trees, raw apples, grass and more.  He wears a mask when he goes outside most of the time, and this I am sure is part of the reason he has been better. 

I have two questions.  1)I would like to know what research is being done to assist in completely eliminating food allergies. 2) Why do kids have food allergies?...In layman's terms...Not the IGg or whatever it is called type of information, but information a regular person can understand.

Hi & thanks. I appreciate the help you offer & I need all the help I can get when dealing with the education department. This week I am taking my children out of school to begin home schooling. I have persisted for some time to educate them on my daughters life threatening allergies and I have finally had enough! The key is education but when you can't educate the education system what do you do? Awaiting your feedback. Jude

For all of our readers: this Medical Advisory Team blog will be here to discuss general issues, mainly food allergy management, and replies and comments from the Medical Advisory Team will generally be posted within a week. This initial post is to gather your ideas for topics you'd like the MAT to address over the next year. Thanks!

Last edited by Lynda

Sounds great 

My youngest sons peanut rasts have gone down in the last year from 2.09 to .95 (he is 12).He has had ana type reactions to them 4 years ago now, tingling throat, metallic taste in mouth, throat swelling which lead to a choking cough, and mucous, as well as similar reactions to  almonds, some more recently as last year to these, but he passed an IOFC for almonds at the end of last year after rasts went from .59 to .39.We have avoided all nuts until just recently and now he has some tree nut products at home on his Drs advice ( hazelnut chocolate spread etc).

We can challenge peanuts if we want we have  been told by his Dr but my son is not sure as he is scared of having a reaction again.

My elder sons asthma got worse during puberty ( was on steroids a couple of times ) and one of my daughters had sudden bad food allergy reactions during puberty which went away again after.so, is it possible that my peanut allergic sons rast levels could rise during  puberty  ? Or as they are trending down will that continue, thanks.

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Kids With Food Allergies
A Division of the Asthma and Allergy Foundation of America
1235 South Clark Street Suite 305, Arlington, VA 22202
Phone: 1-800-7-ASTHMA (1.800.727.8462)
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