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Advocating for Patients

Advocacy Update: FDA Moves Forward on Sesame Labeling

Updates: On Nov. 24, 2020, the Asthma and Allergy Foundation of America (AAFA) and 12 other food allergy advocacy organizations responded to FDA's proposed “Voluntary Disclosure of Sesame as an Allergen: Guidance for Industry.” The letter urges FDA to swiftly make sesame allergen labeling mandatory, instead of voluntary. While a voluntary system encourages manufacturers to begin labeling sesame, it does not guarantee safety for those with a sesame allergy. AAFA and the coalition of food...

AAFA Releases Asthma Disparities in America Report

The Asthma and Allergy Foundation of America (AAFA) released its Asthma Disparities in America report. This report looks at how asthma affects Black, Hispanic and American Indian/Alaska Native groups in the United States. These groups have the highest rates of asthma , hospital visits and asthma-related deaths. People with asthma often have other allergic diseases, like food allergies . Disparities exist in food allergies too. Black children are 7% more likely to have food allergies than...

What the FDA’s Temporary Food Labeling Guidance Really Means for People With Food Allergies

Update – July 16, 2020: The FDA's temporary labeling guidance will remain in effect for the length of the public health emergency (PHE) due to the spread of the new coronavirus (SARS-CoV-2). A PHE is determined and declared by the secretary of the Department of Health and Human Services (HHS). The PHE remains in place during the emergency or 90 days, but may be extended by the secretary. Though the current PHE is set to expire on July 25, 2020, HHS Secretary Azar has said he will extend the...

Strides in Food Allergy Advocacy

Even though 32 million Americans have food allergies, protections for people with food allergies are still lacking. The Asthma and Allergy Foundation of America (AAFA) and its division Kids With Food Allergies (KFA) have been advocating for better food allergy awareness and for ways to prevent severe allergic reactions. Engagement With FDA During COVID-19 – AAFA is leading a coalition of 13 other food allergy organizations to respond to the Food and Drug Administration's (FDA) "Temporary...

Unpacking Food Allergy Bias During a New Turning Point in the Struggle for Racial Equality

By Kafi Drexel Brown Asthma and Allergy Foundation of America, Public Relations Director I have a confession. While health and wellness have been a longtime focus of my life and work, I didn’t give food allergies much thought until I joined the Asthma and Allergy Foundation of America (AAFA) as its public relations director. It also didn’t hit me how odd it is I haven’t considered food allergies an important factor in my life until having a conversation with a colleague about how racial...

Letter to the FDA: Require Food Manufacturers to Post Substitutions

Update: We are pleased to announce that on June 18, 2020, the FDA responded to our joint letter on their temporary labeling guidelines. They released a list of FAQs to help clear up confusion. The FDA is making it clear that: Any substitution that involves a top 8 allergen recognized by law and those identified as “priority allergens” by other countries including sesame, celery, lupin, buckwheat, molluscan shellfish and mustard must require a label change by manufacturers and vendors The...

COVID-19 and Its Impact on Families Managing Food Allergies: A Global Health Crisis

The Asthma and Allergy Foundation of America (AAFA) has been fighting to save lives for nearly 70 years. With your support, we provide education, conduct patient-centered research and advocate for protections for our food allergy community. Our experience and strong community ties allowed us to take prompt action on the COVID-19 crisis . (Kids With Food Allergies is a division of AAFA.) Thanks to your generous support, we are leading the fight against COVID-19 for families managing food...

Food Allergies Can Be an Overwhelming Burden on Families

Dear Friends, At the Asthma and Allergy Foundation of America and our Kids With Food Allergies division, we work with families every day who struggle with the pressure of managing food allergies. They live with constant fear and worry, wondering if their child will have a serious allergic reaction. We understand the life-altering effect food allergies can have on an entire family’s livelihood. Providing help to families is what motivates us. Food allergies are increasing. And while there is...

On the Offense: NFL Player Demetrius Harris Tackles Food Allergies Both on the Field and Off

During the NFL games this week, Demetrius and other players will be wearing custom cleats designed to represent the charities they are passionate about. The cleats will be auctioned off with 100% of the money raised going to their chosen organizations. Because of his son’s allergy to peanuts, Demetrius will have Kids With Food Allergies (KFA) represented on his cleats designed by Ryan Bare SR Customs.

Food Allergy Advocates Meet With Senate About Epinephrine Auto-Injectors on Planes

The Asthma and Allergy Foundation (AAFA) is working with like-minded groups and community members to find the best way to get epinephrine auto-injectors stocked on airplanes in the United States. Today, our government affairs representative, Mark Vieth, attended a Senate meeting on epinephrine auto-injectors on airplanes. This is a policy priority for AAFA and its food allergy division, Kids With Food Allergies.

It’s Complicated: Epinephrine Auto-Injectors on Planes

Air travel with food allergies can be complicated. Each airline has different food allergy policies, if they have any at all. Because of this, it is important for people with food allergies to have easy access to epinephrine in case of a severe allergic reaction called anaphylaxis [anna-fih-LACK-sis] while in the air. The Asthma and Allergy Foundation of America (AAFA) advocates for airlines to stock epinephrine auto-injectors on planes.

Kids With Food Allergies
A Division of the Asthma and Allergy Foundation of America
1235 South Clark Street Suite 305, Arlington, VA 22202
Phone: 1-800-7-ASTHMA (1.800.727.8462)