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May I post information about this webinar on my blog and share the information with the foodallergyNY group to which I subscribe? Thank you.
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Blog Post CommentCongrats to this Red Sox player, whose mom had this to say about him: "My little Red Sox Player! He faces allergies with bravery and determination. Michael would rather miss out on something than cause anyone around him to have to avoid a food they love. He's selfless and caring and our Super allergy Super Star! " Michael is the winner of a prize package from Go Veggie and a KFA t-shirt! Congrats, Michael!
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Blog Post CommentI have tried to make my own sunflower seed butter in my food processor, but even after a looong time in the processor and a fair amount of canola, I still get a "paste" so thick you can slice it! What am I doing wrong? Do I just need a better processor? We haven't retried pumpkin seeds yet - she got hives from it about a year ago when we first tried it. I'll probably wait until pumpkins start showing up in stores so I can get truly uncontaminated seeds. Thanks!
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Blog Post CommentI haven't made my own but we buy Sunbutter. I find it is quite thick and has a drier, more grainy consistency than peanut butter.
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Blog Post CommentThis is the bread my son depends on...I've been making it for over 2 years now. We use applesauce to replace the egg, so I guess we could call ours applesauce bread!? Going to try it with sweet potatoes. Sounds yummy!
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Blog Post CommentUnfortunately, our insurance won't cover auvi-Q. It is interesting, however, since we pay 90% of our prescriptions. I did find out through an Auvi-Q rep that pharmacies set their own price. I had the pharmacist check on the pricing since we pay most of the price anyway, but it was about $39 more. It is sold to the pharmacies as the same price as the Epi-pens. My husband is self imployed - thus the expensive insurance.
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Blog Post Commentwell im just finding out that my two youngest one s has got a milk and peach allery and one of them also have asthsm too and I don't even have a pen in the house at all wht do I doi also have a food allergy to and we can afford one either and I ask my insurance they don't knw if they cover it
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Blog Post CommentHi Esther - I know that Auvi-Q and Epi Pen both have discounts at the moment to cover the cost of a prescription. You can see the link Lynda posted about regarding the Auvi-Q. And here is the info on EpiPen .
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Blog Post CommentI put my comment because of post's title: «The Perfect Allergy-Friendly Cake and Raspberry Compote Recipe» The word «perfect» is the problem. You surely know that anyone reading that it will assume there's nothing wrong with it, hence it's «healthy». Which is not! The reply confirmed it! «No one said GF is healthy.» Shouldn't be? Shouldn't we promote GF healthy eating?! «Everything is in moderation.» Unhealthy in moderation? I do find the above arguments curious...
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Blog Post CommentI tried this bread and my family loved it. My older son who doesn't have any food allergies ate 2 slices with butter and wanted more. My husband didn't think it tasted like gluten free bread at all! Thanks for this recipe. I was using egg replacer before and it didn't have much flavor. I like the extra vitamins that we are getting by using sweet potato too. ��
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Blog Post CommentThank you for creating this report and keeping track of how each of the states are working towards supporting our children who have food allergies and asthma. I have added a link to your report on the blogs I am writing on the GreenwichPatch and the NewRochellePatch. My goal is to create more connections and awareness within my community in Westchester, NY for families who live with food allergies. The links to my blogs are http://greenwich.patch.com/blo...eness-in-westchester and...
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Blog Post Comment❤️I need to check and see if my kids can even have yeast but I was wondering if anyone has tried this with a different flour mix, my kids cannot have rice, which is in the King Arthur mix. Sounds so good and we would love to have a non soy bread or cracker!,,
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Blog Post CommentDear Lynda & Kids with Food Allergies Organizatio- As a family with a 10 year old daughter with PA/TNA, you cannot know how VERY grateful WE are to YOU for all you do to keep us informed & feeling like we have SOMEWHERE to turn for support & guidance. The work you do is invaluable...cannot be measured...SOOOOOO incredibly important & SO reassuring to all who live with food allergies everyday. PLEASE keep up the good work that you do, and if there is ever ANYTHING we can do to...
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Blog Post CommentThere will be 4 epinephrine auto injectors on the US market by the end of June - Adrenaclick, Auvi-Q, EpiPen and a generic of Adrenaclick.
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Blog Post CommentThis is so true. When Christian was a few years old he went into an attack at the doctor's office. Yep, I said the doctor's office. She had a chalk and board that the kids could use while waiting for her in the room. I was so relieved when he went to school that they now use the dry erase boards and smart boards. I use to go crazy with my milk allergies when I went to school. No one ever linked the chalk to milk allergies. We have come a long way. Oh, by the way, our doctor no longer has the...
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Blog Post CommentThank you for this article! I've always suspected that my 8 year old son's food allergy to dairy, eggs and nuts had something to do with his small size and this article helped affirm my suspicions. I've often been told by family that I'm a "helicopter mom" when it comes to making sure he eats and eats good. I do it because I know he has to make up with foods that will give him the equivalent or if not similar nutrients from foods he's allergic to. And with his high metabolism, it doesn't...
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Blog Post CommentI got a prescription for Auvi-Q and tried to have it filled but my insurance refused it—they said I had to pay full price ($200+). So for now we are sticking with Epi-Pens.
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Blog Post CommentMy son's allergist gave us a voucher/coupon in case our insurance did not cover it - $25.00 for the first 2. Luckily, our insurance covered it, but it is still more expensive than Epi Pens. However, the smaller size (my son is just starting to carry) and the automated instructions are worth the extra expense for us. Ask your allergist if he/she has any coupons to spare!
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Blog Post CommentGood Morning! I'm a Mom of 2, ages 3.5 and 18 months. In our household we have an anaphylactic dairy allergy and a corn allergy. I am the one with the anaphylaxis and I've lived WELL with this allergy all my life. I'd just like to say that Thanksgiving is my favorite holiday and if there is extended family and friends who will cooperate with your food allergies, you can have a safe and delicious Thanksgiving. It's about trust... and about education... and possibly about providing recipes and...
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Blog Post CommentI had an anaphalactic reaction after eating one of these bars for breakfast last year. I lost consciousness while on the phone to my mother and was taken to the ER via ambulance after she called a neighbor. I assumed it was something else I must have come into contact with (although it was the only thing I had eaten that morning). I stupidly continued to eat the bars, getting sick every time (although not as bad). I thought it must have been one of the other ingredients, since it was milk...
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Blog Post CommentWe found these yesterday at our local Whole Foods. We just tried them and give them two thumbs up. My daughter is so excited to have her own popcorn!
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Blog Post CommentSince so many Halloween candies contain allergens for my children we've started a new family tradition for the holiday. Rather than handing out any candy or treats to the 200 or so kids who come to our neighborhood we leave our house and have a nice night out. Our kids can choose a restaurant then we go to a movie. I buy and/or make them some quality non-allergenic treats that they can enjoy and add some to their lunches for the following week. They love it. I love that I can go through the...
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Blog Post CommentHi Christine and I live in the UK so not much help with you question, but Wanted to tell you to hang in there and Someone will get back to you.We potentially have a no of members having difficulty getting online on the East coast of the US right now with the storm, but we do have members in Canada too who may be able to advise you Meanwhile have you looked at our starter guide yet ? There's a link at the end of my siggy
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Blog Post CommentHi Lynda, Today my daughter and I donated several tree nut allergy free and organic items to the American Red Cross. While I am sure there will be many donations, kids with allergies may not be able to consume. Kristina Portilla
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Blog Post CommentJust made this cake and my son loves it! My husband says it's the best cake he had ever had, and can't believe something that good our son can eat. Thanks for sharing!
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Blog Post Comment❤️Thankyou for the recipe. My son's 5th birthday is tomorrow. I'm making an allergy free cake and needed the frosting to go with it. Yummy. I tried it and it's delicious. I added in total about a quarter cup of water when made with the cisco which made the frosting much smoother more like the stuff he's used to from a can.. we're celebrating at his school tomorrow, which is of course nut free, he and 1 other child are dairy free (well dairy light) and another is gluten free. Oi. Kids. Gotta...
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Blog Post CommentThank you so much for this article. I have a son who is 9 years old and has EOE. He's allergic to almost all fruits and vegetables, nuts, barley, soy, corn, potatoes, rye, etc. He does not eat any kind of meats , fish, poultry. He got so tired of rice that now he can't even see it. Now the doctors decided that he should not eat anything that has wheat, milk and eggs on it because they believe that's what is making the disease worse. What should I do? I'm seeing a dietitian and everything she...
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Blog Post CommentSorry, I think you misunderstood me. What I was talking about is different than shared lines at a manufacturer's facility. I am talking about when a third party repackages a product like Dum Dums for a store such as Target, CVS, etc. This is done separate from the manufacturer's facility. Even though the candy may have been free of allergens when made and packaged in a manufacturer's facility. These repackaged items, cross-contamination is introduced when the it is rebagged by a third-party.
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Blog Post CommentHi Colleen! We do the same thing with all the candy that DS gets on Halloween. Due to the issues with repackaging there's no way to know if the safe candy has residue on them (or whether the residue is from the various home owners that I see snacking on treats as they give out candy ), we usually just give all the candy away and we either trade it out via the "Switch Witch" or we weigh it and give DS money for it. He's happy either way! Welcome to KFA , and hoping your loved ones have a safe...
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Blog Post Commentgreat article thank you.quick question. Most of the bread and cereals are fortified with folic acid. I just started to make my own bread since its hard and expensive to buy gluten free bread that has no soy and corn. Could I add folic acid to the bread I make myself?
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Blog Post CommentDid he not like the taste of quinoa or could not digest it? I found one great quinoa cereal which I give to my son with a fruit puree (any fruit he can have) and it comes out ok. http://www.amazon.com/gp/produ...ct?ie=UTF8&psc=1 can your son have garbanzo beans? you can make bread with it. can your son have coconut milk? Good subs for milk.
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Blog Post CommentI'm glad they finally recalled their products. My son actually had a reaction from one of their bars last year, and I had to give him the epi-pen. When I spoke with them they assured me there was no milk or traces of milk in their products. I don't think they are counting my son's reaction in their count of only one reaction reported so far. It's too bad that they did not act when I told them about our reaction so no subsequent reactions would've happened with anybody else. It is going to be...
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Blog Post CommentThis fills my heart so big! Thanks for sharing.
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Blog Post CommentThat put a big smile on my face. I love it! Way to go!
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Blog Post CommentMy husband and I have made frequent requests to Delta (as our main carrier) to remove peanuts & tree nuts from flights. I hope other families are doing the same. I think consumers have to drive the change.
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Blog Post CommentUntil I call to find out details this kills it for us! "This product is manufactured on shared equipment also used for dairy, soy, corn and wheat", not their fault that my son is so allergic, but I am really tired of not finding truly safe chips for my severely dairy allergic son!
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Blog Post CommentRed Dye 40 (via Nacho flavored Doritos) just tried to kill my teenage daughter a week ago so I will email this to her as a suggested substitute. Thank you!
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Blog Post CommentI really wish that schools would do away with food related parties. I am not a FA parent but I do not want my child eating most of the prepared allergy friendly food because they mostly contain food coloring, additives, preservatives and GMOs that are poisonous to all kids and that are not a part of my family's diet. Allergy friendly fast food is still junk Food.
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Blog Post CommentI'm shocked to find Chipotle on that list! My daughter (6 y/o) LOVE'S Chipotle. One day she asked me why everything has soy (that's one of her allergens) in it. We decided to google it and found that soy lecithin is utilized as an emulsifier easing the oil/water mix and extending shelf life. A few days later we went to Chipotle, because I had never thought to ask about their allergen info, I decided to ask the woman behind the bar if any of the foods had soy. She gave me a small check-list...
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Blog Post CommentMy daughter has severe allergic reaction to soy/soya bean. She ate gluten free pretzels containing soy lecithin and she didn't react although she still reacts to soy/soya containing products. I guess it has to do with conten/amount.......
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Blog Post CommentExplain to me about PF Chang's. My son has a sesame allergy and we were told to avoid Asian and Mediterranearn foods. Do they have sesame free options?
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Blog Post CommentI can't believe Burger King is not on the list! My daughter (who turns 15 this summer) and is anaphylactic to milk has been eating there for 13 years, and have never had so much a a rash! FYI-she's had dozens of severe allergic reactions requiring epinephrine throughout her life.
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Blog Post Comment❤️All of these are based on user feedback. If you've had a bad experience, then go share that. If you've had a good experience somewhere, go share that. As for Chipotle, I know they are rolling out the change over. Our local restaurants have signs up about the rice oil change. I'm not sure the start of their printed material. I suggest calling or stopping in to ask about where that particular restaurant is in the changeover. PF Changs is very allergy aware. While it may not seem allergy...
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Blog Post CommentOriginally Posted by N Myeza: My daughter has severe allergic reaction to soy/soya bean. She ate gluten free pretzels containing soy lecithin and she didn't react although she still reacts to soy/soya containing products. I guess it has to do with conten/amount....... I am sure amount is the reason for that. I have the same problem with my child. What I do is completely stay away from anything containing or traced with soy and soy lecitihin, even comsetics! Yes, I found that my vegan shampoo...
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Blog Post CommentOriginally Posted by czschack: I can't believe Burger King is not on the list! My daughter (who turns 15 this summer) and is anaphylactic to milk has been eating there for 13 years, and have never had so much a a rash! FYI-she's had dozens of severe allergic reactions requiring epinephrine throughout her life. Funny you mention BK, my daughter is allergic to soy, peanuts (including tree nuts), eggs, and possibly sesame. The only thing she can have at BK is a salad with grilled chicken.
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Blog Post CommentAlthough I feel Chipotle does make an honest effort by attempting to use allergy-friendly products, the risk of cross-contamination can be quite real if you/your child has an allergy to Milk (or, any of the other products they serve). The nature of their food prep is similar to a buffet where not only are food items kept in close contact to each other, but all of the staff handle the serving utensils at one point or another, put hands into the cheese and the then the lettuce, and so on. My...
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Blog Post Comment❤️Hi kally, My son has a very severe milk allergy and we eat at Chipotle 1-2 times per week. I can totally understand your apprehension. Here are some tips: One person handles your food. They will change their gloves first - sometimes you have to remind them but it's coorporate policy AFAIK. I always ask them to hold my son's tray - do not slide it on the counter. We only get rice, beans, and meat from the bar. Any salsa, lettuce or guac comes from the fridge under the bar or the back.