A free press is not free to lie, mislead, and over-hype and it is high time to hold them accountable for all the damage they are doing to kids with allergies and society in general. The press is hugely irresponsible in how they report scientific findings. Science is slow, particular, and often very inconclusive. How many kids are going to DIE because of irresponsible reporting?! We have ongoing battle with family members and school administrators who deep in their hearts believe this is our...
Originally Posted by Kathy P: Cute! What food was the challenge? How'd it go? Walnut - after two years of OIT! He passed Wednesday of last week, we can hardly believe it! Now he has to eat it daily and I can't quite get over having them in my pantry/car/purse in ziploc bags!
Originally Posted by Kathy P: Wow that is exciting! Are you also doing OIT for the other nuts? He's never had the other two so we're doing food challenges to see if he's really allergic or not. He passed pecan last thursday! Should know this Thursday on hazelnut or we will be starting the clock on a new round of OIT. (our doc does not combine tree nuts as the goal is low and slow and no reactions!) I'll update the blog soon, just a bit overwhelmed this week with all of it!
I understand that Xolair is experimental for children with food allergies and only for kids 12 and up. But it is my understanding that OIT and SLIT is being done in regular clinic settings and not just in clinical trials . Is the any hospital/ clinic in the country that is doing OIT or SLIT for children with fish allergies? I have seen it only for nuts, milk and eggs. Thanks for any information you have.
It must be clarified that OIT is not a cure. It is changing the disease state. IgE is naturally involved in helminth defense (worm infections). A "low intensity" worm infection is IgE dominated. This is equivalent to food allergy. A "high intensity" worm infection is IgG4 dominated (high IgG4/IgE) ratio. This is equivalent to a person with food allergy who has received OIT. In food allergy, your immune system has been programmed to recognize food items as worms. So continued food allergen...
So I believe this approval means it can be used in general as a protection against anaphylaxsis from food on its own and then also in conjunction w/ OIT. Anyone know if there is still a 6 year old age minimum? looking/googling
Articles about OIT in the news has been the bane of my existence. Every single new person I meet and tell about my son’s food allergies brings up OIT like I’ve never heard of it. And they dismiss his allergies like if I would just do OIT for him, he would be magically cured. Implication is that I’m either an idiot or a bad mom. As you all know, there are a lot of caveats with these studies. And OIT is nowhere near ready for prime time, as in everyone being able to do it or be cured by it. My...
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