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Blog Post CommentThis is great news!
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Blog Post Comment❤️This is a scary situation. Thank you for your advocacy!
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Blog Post Comment❤️This is such BS. It takes a school nurse 30 minutes to train staff. More is better, but that is all they need to know how to use the auto-injector. On top of that, if they choose to supply with Auvi-Q the auto-injector has audible instructions when you pull the cap to walk anyone through how to use it. They are worried about being on the hook for an unnecessary hospital visit, but is the potential death of a student really worth the risk?
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Blog Post CommentMy kiddo is in this school district and having interacted with these schools I'm guessing the problem is more complex than the article has let on. The following is my speculation as a parent. The reason given in the article "The Weatherford Independent School District says they feel that they can’t have someone trained to give an epinephrine auto-injector during all times the school is open." Isn't just regarding the inconvenience of training - all the teachers and admins go through the...
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Blog Post CommentThis blog post was updated in December 2018 to include information on the generic epinephrine auto-injector from Teva Pharmaceutical Industries and the nasal spray from INSYS Therapeutics.
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Blog Post CommentThis blog post was updated in July 2019 to include updated information on savings programs for AUVI-Q® and EpiPen®. It also includes information on the SYMJEPI™ pre-filled syringe from Sandoz.
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Blog Post CommentSanofi US Issues Voluntary Nationwide Recall of Auvi-Q ® Due to Potential Inaccurate Dosage Delivery
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Blog Post CommentSanofi US updated their website w/ a page detailing the Return & Reimbursement Process .
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Blog Post Comment❤️Great job!! Thanks for all your hard work
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Blog Post Comment❤️WTG Starla!
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Blog Post CommentThanks so much for this information! Should we be concerned that an ambulance/emergency medical service might not carry epinephrine as a result of this shortage? Would you recommend we call our local township/ambulance to confirm they carry it?
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Blog Post Comment❤️That is an interesting question! In fact, it is never a given that any squad will have epinephrine. Where I live, basic life support squads (BLS, and most often volunteers) have to apply to the state (NJ) to carry it, and then they use auto-injectors. Advanced EMTs, or paramedics from hospitals - I am not sure what they carry but I think they are auto-injectors - I read there is one state out west that started carrying ampules and syringes to cut down on cost. There are other companies that...
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Blog Post Comment❤️That's a really good question. And my understanding is that some carry ampules and some carry autoinjectors. And depending on the squad they send, they may or may not be authorized to inject. This all varies by locality. So, you really do need to contact your local first responders and find out what they do carry.
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Blog Post Comment❤️Thanks for the responses! Someone recommended this to me a few years ago, just to make sure our local ambulances carry epinephrine, and I have yet to do so. This news is giving me the extra push to call!
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Blog Post CommentLet us know what they say...I know that volunteer-run companies struggle with a shortage of both money and volunteers and still have training requirements to deal with anytime they want to do something new or better, and sometimes that comes into play, at least where I live.
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Blog Post CommentI just emailed the ABC station WRIC in VA who issued the report, asking that they issue a correction and update on their report of July 13. Aside from the confusion about injections vs. auto-injectors, there was a whole lot of weird quoting of the pediatrician, who sounds either misinformed or misquoted. Was wondering if KFA or AAFA has reached out to them?
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Blog Post CommentI don't believe so. I just looked at the story again under the video - they updated the text to say "there is no immediate concern" but the video is still there. I suppose if one is on Facebook, one could share our post in their comments section (that appears to be what they use....)
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Blog Post Comment❤️UPDATE: We have official responses from EpiPen ™ and Auvi-Q ™ that they are not affected by a shortage of epinephrine. We do not have an official response from Adrenaclick ™ (or the generic version). If we receive more information, we will update here.
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Blog Post CommentA new study has been released that looked at the affect of heat on the epinephrine concentration in EpiPen® autoinjectors:
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Blog Post Comment❤️New research looked at the affect of freezing on EpiPen® auto-injector devices:
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Blog Post CommentThis is a great reference - especially with the stick figure graphic that highlights all the symptoms and the green yellow and red action summary. Would you consider making this a downloadable reference sheet?
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Blog Post Comment❤️Thank you for this research. I'd like to suggest a similar study on how time affects this drug. Specifically, how far past the expiration date is still okay?
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Blog Post CommentThat's a great suggestion! Also looking at how temperature affects the mechanism.
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Blog Post CommentNice summary, something I know many of us are concerned about especially as we approach the summer. I'm curious what "prolonged exposure" means ~ Does it mean constant heat for hours at one time or hours over multiple times? I assume it means hours, but could it mean days or some other measure of time...?
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Blog Post Comment❤️thanks! really helpful to get this update
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Blog Post CommentThat's good. It seems like Mylan is recognizing that with the rise of food allergies, a LOT of epi-prescribed folks are children, and they and their parents need extra guidance in using their device safely. (As opposed to an adult patient.)
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Blog Post CommentFor more information on the FDA's communications about these changes: EpiPen: New label - http://www.accessdata.fda.gov/...16/019430s061lbl.pdf Letter to Mylan (makers of EpiPen and EpiPen Jr.) http://www.accessdata.fda.gov/...9430Orig1s061ltr.pdf Adrenaclick: New label - http://www.accessdata.fda.gov/...16/020800s034lbl.pdf Letter to Amedra (makers of Adrenaclick and its generic version) http://www.accessdata.fda.gov/...0800Orig1s034ltr.pdf Auvi-Q (removed from market in 2015): New label -...
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Blog Post CommentIf you have any questions about the new labels, speak with your healthcare provider. Here is a message from Mylan, the makers of EpiPens: "Mylan offers a library of training and support resources for patients and caregivers which are in the process of being updated to reflect the new labeling. In the meantime, please speak to your healthcare professional or call the Mylan Customer Service team at 800-395-3376 with any questions about the changes. Additionally, each EpiPen 2-Pak® and EpiPen...
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Blog Post Comment❤️Thanks so much for getting this info out! Grateful to Dr. Julie Brown et al for raising some awareness around auto injector issues and Kids with Food Allergies for spreading the word.
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Blog Post CommentWondering if there is any discussion about "swing and jab" v. press firmly until injector engages? Bruising from overly forceful impact of auto injector on tissues also a commonly expressed concern.
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Blog Post CommentHi Kelly, There is a little more information pertaining to your question re swing/jab in this blog post from last fall. I hope that helps.
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Blog Post CommentRe: Researchers Review Effects of Heat, Cold on Epinephrine
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Blog Post CommentIs the training device a device regulated by FDA? any safety issues?
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Blog Post Comment❤️Hi, Joyce, the trainer in an Epi pack is usually a "look alike" that doesn't have a needle. It can be reset to be used over and over again. It's basically a way to teach people which end is up, as with a real Epi, it can be confusing and you want the meds to go in your kid and not in a teacher or staff person's thumb.
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Blog Post CommentThis update should be on every news channel and on every epinephrine Epi pen box with a new sticker warning . Please .
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Blog Post CommentHi, Rebekah and ... what food allergies do you manage?
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Blog Post CommentMylan has updated the recall instructions here: http://www.mylan.com/EpiPenRecall
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Blog Post CommentIt cost $4800 to get a pair of Auvi-q injectors at Walgreens after insurance covered $1000
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Blog Post CommentWow, Vantastic4! I am so sorry! Did you get the Auvi-Q because you were unable to get the epi-pens?
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Blog Post Comment❤️Yes....Walgreens said they are sold out everywhere. They said they would call me ASAP when they are available again because I didn’t get the auvi-q!
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Blog Post CommentThis is a great reference - especially with the stick figure graphic that highlights all the symptoms and the green yellow and red action summary. Would you consider making this a downloadable reference sheet?
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Blog Post CommentI will definitely pass that a bout the stick figure being so helpful on to our community leadership! Here is a link to a downloadable anaphylaxis sheet with that same info that you can hand out to teachers and caregivers.
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Blog Post CommentYes, thanks for the link. It’s informative, but I think the stick figure is much more eye catching. Thanks, Elisa
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Blog Post Comment@Elisa2 The stick figure graphic can be shared from the blog post and it is also in our Shareable Awareness Images photo album . I've added the shareable image of the steps to treat anaphylaxis as well. You can use the social sharing buttons to share them, download them to your computer or mobile device or print them out.