A very big thank you! This is fabulous information that needs to be heard more. I'm editing my blog post to include a link to KFA's post. Thank you again!
Thank you doctors for posting this. I have wondered what I could've, should've, or would've done better, different, or something. Beating myself up over it doesn't change anything. I know all those parents out there with severely peanut allergic children did not do everything the same. I actually think it would've been a lot more difficult to watch my infant have an anaphylactic reaction than my 2 year old. At least she could talk to me.
A free press is not free to lie, mislead, and over-hype and it is high time to hold them accountable for all the damage they are doing to kids with allergies and society in general. The press is hugely irresponsible in how they report scientific findings. Science is slow, particular, and often very inconclusive. How many kids are going to DIE because of irresponsible reporting?! We have ongoing battle with family members and school administrators who deep in their hearts believe this is our...
I wish this could have applied to my children. My 4yo boy tested highly positive to peanuts at 6 months of age, so he would have been deemed too high risk to participate, anyway. And then there's my daughter, who has FPIES and still hasn't gotten around to trying peanuts. Now I'm terrified that the extremely slow process of introducing food into her diet means I've already missed my window of early prevention. She's definitely high risk for developing a peanut allergy since she has a sibling...
KFA's Note: Oral immunotherapy for food allergens is still being investigated by researchers. This is not something to try at home, but rather to discuss with your allergist.
I imagine this post will be shared with many relatives and friends. Thank you for posting the most recent research here! (my first question was, "does this mean people should run out and try this combined therapy?" and my second was, "Hmm. I have a small child and I wonder what the side effects of this drug would be on her physical, neurological, and hormonal development if she did this.." Thanks again for all your work here, I absolutely love and trust this site!
Hi A-Ma, This type of treatment is still undergoing research studies and is not being performed in allergy clinics across the country yet. The drug described in this study is actually an injectable medicine for asthma that has not been proven/approved for use in other allergic diseases yet. It is currently only approved for use in children over age 12. The concerns you mentioned about side effects and how it may affect the child are all great questions that will be investigated as the...
I understand that Xolair is experimental for children with food allergies and only for kids 12 and up. But it is my understanding that OIT and SLIT is being done in regular clinic settings and not just in clinical trials . Is the any hospital/ clinic in the country that is doing OIT or SLIT for children with fish allergies? I have seen it only for nuts, milk and eggs. Thanks for any information you have.
Whenever I want to check to see who is doing what in research, I look at www.clinicaltrials.gov Putting in food allergies yields 374 results - that includes studies that are not yet recruiting and those that are done.. https://www.clinicaltrials.gov...es&Search=Search I am not sure about regular clinic settings - I just reread your question.
Ok, I'm probably going crazy but these seem wrong too! LEAP-On enrolled 88.5% of children from the original trial (556 children). Adherence to peanut avoidance in both groups was high during the 12 months families were told to stay away from peanuts: - 4% in the original peanut avoidance group, and - 3% in the peanut-eating group On Fri, Mar 4, 2016 at 3:29 PM, Kids With Food Allergies < support@aafa.org > wrote:
EDIT: We fixed a coding error above to correct this section: Adherence to peanut avoidance in both groups was high during the 12 months families were told to stay away from peanuts: 90.4% in the original peanut avoidance group, and 69.3% in the peanut-eating group
@lisa s - here you go: Apple Crisp 1 Tbsp margarine 7-8 medium baking apples (preferably Granny Smith) 1 cup all-purpose or sweet rice flour 1/2 tsp salt 1 tsp cinnamon 1 cup brown sugar 1/2 cup margarine Peel, core, and thinly slice apples. Grease baking dish lightly with some of the tablespoonful of margarine, and place apples inside. Dot with additional margarine. In a medium bowl, combine flour, brown sugar, salt, and cinnamon. Mix well. Cut in the margarine to make coarse crumbs. Spread...
This is a happy new year gift, indeed! Thank you for sharing this great news. For the military mention, I often wonder whether my child's mustard allergy is related to the mustard gas my father was exposed to in Vietnam (Agent Orange exfoliant). I am hopeful some smart researcher takes an interest in toxicological impacts of the chemical exposures our military heroes get exposed to. Along with whether the exposures relate to food allergies in either them, their children and grandchildren. Or...
Hi, is there a typo in this summary? I may just be tired, but I don't see how this reflects a risk reduction (at all, let alone 67%): Thanks, Naomi However, when the authors evaluated the infants that were able to maintain the study protocol by eating these foods consistently each week, they did find a significant difference in rates of food allergy: - 4% in the early introduction group versus - 3% in the standard group On Fri, Mar 4, 2016 at 3:39 PM, Kids With Food Allergies <...
Update: We fixed a coding error to correct this section above: However, when the authors evaluated the infants that were able to maintain the study protocol by eating these foods consistently each week, they did find a significant difference in rates of food allergy: 2.4% in the early introduction group versus 7.3% in the standard group
The peanut thing confuses me really. I wonder what about peanuts is so allergenic that if it is not introduced early that many children have reactions to it. That seems to be the million dollar question, right?
@Will Way children as young as the newborn age have shown to have a deadly reaction to peanuts/treenuts from the mother's milk or have a skin reaction after being touched by someone with residue on their hands. The peanut protein is different from other nuts. It is actually a legume. Not a nut!
Congratulations on passing the shellfish challenge! You can go to the main support forum and introduce yourself when you have time. That is a great place to ask any questions that you may have and just to tell us about your family.
Hi Chaunta, Welcome to KFA. I hear you about serving something that was once an allergen. My dd passed a tn challenge a year and a half ago. It took a while to get used to having them in the house. btw, our forums are an awesome place for support, advice and btdt experience.
Articles about OIT in the news has been the bane of my existence. Every single new person I meet and tell about my son’s food allergies brings up OIT like I’ve never heard of it. And they dismiss his allergies like if I would just do OIT for him, he would be magically cured. Implication is that I’m either an idiot or a bad mom. As you all know, there are a lot of caveats with these studies. And OIT is nowhere near ready for prime time, as in everyone being able to do it or be cured by it. My...
Carol, you're certainly NOT a bad mom ... and so very far from being an idiot! Not every treatment for ANY disorder, including food allergies, is right for every person. Each family has to figure out the benefits and risks that are unique to their own situation. You're being careful and doing your due diligence and making the best decisions for your family.
I have three children. The third has peanut allergy. I never gave the first two peanut until they were three and four years old. Not sure how I feel about this study.
Hi Jennifer - not introducing early doesn't mean that your child will develop a peanut allergy. Early introduction may prevent the development of a peanut allergy in those children who have other risk factors. There is definitely more research that needs to be done.
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