I also want to add that sesame is also used in bath and body care products. It and mustard are incredibly hard allergens to stay away from because they could be "natural flavors" or "spices." We don't buy any processed foods or eat at restaurants. Bakeries have sesame seeds everywhere!
As a four month old, my son was diagnosed with sesame allergy. We attempted a food challenge with his allergist at age three years. He had "severe life-threatening reaction" (doctor's words) to the smallest dose, equal to about one seed. Continuing to avoid all "natural flavor" and " spice" when companies will not disclose ingredients to us is difficult. Now, as an almost nine year old, he has never eaten in a restaurant. Navigating these school aged years is difficult and handling...
My 9 yr old son is highly allergic to sesame and had a recent near anaphylaxis reaction to sesame consumption from a salad dressing that contained sesame but sesame wasn’t declared as an allergen.If we ever go out to restaurants to eat he can’t take bread and anything with secret spices and sometimes as simple as pasta dish as sesame is being used more abundantly nowadays.Pizza also is tough for the most part as flour for dough may have traces of sesame.Its a shame that we are far behind the...
So happy this is advancing. Thank you for your work on it! While my daughter has not had a known reaction to sesame her rast and skin response to sesame are off the charts. Avoiding it purchased foods is very tricky.
Yes, thank you for posting this and I am so glad and grateful that people are advocating for the addition of sesame as a "top 9" allergen! My daughter is severely allergic to sesame and it's frustrating to not have it labeled as an allergen. I completed the survey.
Meghan P-K and LISA, thank you both for completing the survey! Your input will definitely help to reinforce the need for sesame to be included on labels. Thank you for sharing your kiddos' stories! Brenda
Thank you for posting this. When my son was allergic to sesame it was very frustrating to deal with the lack of awareness of sesame as a serious allergen. My son had multiple reactions as a young child and the survey only allowed me to report one reaction. I tried to click again and it would not let me take the survey again so I only reported one of the bunch of reactions to undeclared sesame he had.
On Nov. 28, 2018, we updated this post to include two new milestones in the timeline: 2018, November – AAFA meets with representatives of Congressional Asthma and Allergy Caucus to garner support for the inclusion of sesame on food labeling. 2018, November – Congressional Asthma and Allergy Caucus sends a letter prepared by AAFA to FDA Commissioner Gottlieb urging the addition of sesame to the list of major food allergens.
wonderful job!! mustard and lupine next pretty please :-) and refined peanut oil too. (no hidden ingredients really should be standard now). we have many allergies (sesame isn’t one of them) but thank you for fighting for those w that allergy.
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