Question: With food allergies and an epi pen, with unknown reactions, when do you do a 504 versus an individual health plan? Almost everyone on here seems to swear by the 504 and some say that's not enough. Im quite confused. I am a teacher and I pay attention to all health notes. I know 504 plans have legal teeth, but what exactly does that mean in terms of reality? I know the only thing we all want to do is keep our kids safe.
Questions: At what grade can you have a 504 plan / IEP? Can you only have one starting in Kindergarten? Does it matter how the school is funded? i.e. are certain 'types' of school covered by Section 504 vs. others?
Question 1: Are parents legally entitled to be at the evaluation meeting for the initial 504? Do they have a right to speak or add input beyond the documentation they provide? Question 2: If the school or school system declares your child NOT eligible for a 504, what appeals rights do you have?
If your child is part of the Headstart federal preschool program what are the guidelines regarding bringing their own food. What can you do if they will not allow outside food.
What is the best way to handle "frustration" from other parents when your child's accommodations inconvenience other parents or they are disgruntled about them?
My question: My child is in a secular private school. I do not know if they receive any funding from the US govt. Is is possible to get a 504 plan in this school?
1. Are there any laws regarding inclusion that I can reference when my child's school repeatedly tries to schedule food-centric activities that by their very nature exclude my food allergic child? We have a 504 for her which provides her with a food-free classroom, but there are many cases where several classrooms come together to do these food-centric activities, and this is when the problems arise. Is there a certain part of the ADA I could refer them to? 2. What exactly is 'inclusion'? I...
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Congratulations to 6-year-old Zayden. He is our first My First Day of School Photo winner! All of the entries are precious and show off some pretty remarkable kids who happen to live with food allergies. - Ashley (Zayden's Mom) We're randomly selecting winners each week until September 25, so be sure to add your photo !
Congratulations to our second winner Evan! Evan is allergic to peanuts and egg. He is one of four kids in his class of 18 who live with severe food allergies. I feel fortunate that his teacher and his school take food allergies seriously and work hard to keep all the students safe without excluding them. Evan’s food allergies never slow him down! - Shaunna (Evan's Mom) There is still time to enter, so be sure to add your photo !
I enjoyed the July 31st webinar! It was very informative. I do disagree with one point. He stated that a small study showed that only a rash occurred with peanut butter spread on an allergic child's skin. My child has had hives and swelling with just skin contact....Many times. For example; After a kiss on the cheek by someone who just ate a PBJ, my child had a face full of hives and swollen lips. After sitting next to a child eating peanuts, she had hives all over her body, and a runny...
Hello and thank you for attending our webinar and for your comments. We have another school-focused webinar tomorrow - this time a panel discussion with two allergists and 4 school nurses. I will forward your question to them for a response.
Thank you! I am signed up for it, and I am looking forward to it! My daughter just started Kindergarten, and we are trying to figure out where she should sit at lunch etc. I appreciate all that you do. This is very timely for us! Thanks!
Thanks for this piece!! I'm in search of any materials that help make ending the classroom birthday treat more palatable to parents & staff that are still undereducated when it comes to the reality of children living with life threatening allergies.
My daughter has a life threatening nut allergy. She is 12 andhas extreme anxiety because of it. Is there a forum or blog for her that she herself can talk to others same ay have some of the same feelings. If not, is there a way to create one?
Thanks for asking. We've had parents request a children's or teens forum, but as an organization, we'd need to be compliant with the federal law, COPPA - Children's Online Child Protection and Privacy Act. As such, we'd need to have parental consent for children under age 13 to participate and we'd have to monitor conversations to make sure children are adequately protected on our forums. We've asked for parent volunteers to help with an effort like this, but haven't had anyone really come...
Sounds like a good idea, but I'm not sure my son (12) would participate ! I can imagine more girls wanting to though.Look at it this way, how many dads do we see on the forums One other thing I'm not sure about is would the kids be able to see our posts ? i think they might not be too happy about some of the things we say about them at times, could find it embarrassing
I thought I would see more comments from other parents who may have children have similar feelings. I would be interested in helping set this up. Is there a phone number I could contact you at so we could talk live.
Hi Sandy! I encourage you to post on the Support Forums here at KFA. There are a lot of parents here with similar feelings. Here is the link to the main forum: http://community.kidswithfooda...rum/forum/main_forum I believe there were over 800 parents on the webinar so I am sure you will find some here on the KFA forums.
I think requiring restaurants to server allergy food is goings to far. it's a different category from schools. People do not have eat in restaurants. The way children are required to attends school. Sorry, but this is going too far.
I frequently visit restaurants and I'm allergic to shellfish. I make sure to check allergen menus or allergy free menus at the restaurants by asking them. Its really frustrating to know not many restaurant owners maintain such menu. I recently saw few restaurants showing allergy menus in smartphones with a small QR code on the wall with allergy poster. I think its from www.allergyposter.com and they seem to teach these owners something. Few apps are out there too. But its really a pain to...
On April 30, 2013, Kids With Food Allergies Foundation (KFA) hosted a free webinar in partnership with the Asthma and Allergy Foundation of America (AAFA) with guest speakers Charlotte Collins, JD, and Michael Pistiner, MD, MMSc. We thank them for their expertise and for sharing valuable information with our community on the topic of school and state policies for stocking epinephrine in schools for allergic emergencies. RESOURCES FROM VIDEO: AAFA.org/epinephrine : Find out if your state is...
The law (and school epipens) actually applies only to kids who do not have known allergies or their own epipens. I had a lengthy discussion with the Fairfax County School contact for this issue, and while schools now each have 2-10 "Anaphylaxis Response Team" staff memebers (who received in depth training on recognizing the symptoms of anaphylaxis and treatment with epipens, calling 911 etc.), the "health room aide" is part of the County Public Health department and not FCPS, so they are NOT...
Terrific webinar though I wish the small study of 30 children who showed no reaction to peanut butter being a foot from their faces would not have been included. My child has twice suffered angioedema after being in the same room as an open jar of peanut butter for only moments so this information works counter to my efforts in accommodating my child in school. Otherwise a helpful presentation...thank you!
Preparing Your Child To Live With Food Allergies: Helping Your Kids Become Independent Young Adults Although it may be hard to imagine, your children will leave home someday. The risk of exposure to food allergies doesn't go away as they grow into independent young adults. Watch this video as Lynda shares the following tips that have worked to empower her son to manage his own food allergies. Involve them at an early age to take responsibility for their own food allergy management. Empower...
Training videos for all available epinephrine autoinjectors are available at: Adrenaclick™ ( www.adrenaclick.com ) Auvi-Q™ ( www.auvi-q.com ) Epinephrine Injection, USP auto-injector, authorized generic (AG) of Adrenaclick™ ( www.epinephrineautoinject.com ) EpiPen™ and EpiPen Jr™ ( www.epipen.com ) REFERENCES Product information for Adrenaclick™. Amedra Pharmaceuticals LLC. Horsham, PA 19044. June 2012. Product information for Auvi-Q™. Sanofi-Aventis U.S. Bridgewater, NJ 08807. September...
thank you for posting this video! I'm 23 years old and I have been living with food allergies since I was 8 years old. My parents have taught me how to live safely with food allergies since I had my first allergic reaction when I was younger. My mom (bless her heart) taught me how to use the Epipen after I got prescribed one since she carries one for a bee sting allergy. Since then, I ALWAYS read ingredients and food labels to make sure what I'm eating doesn't have anything I'm allergic to...
Reminder: our webinar on 504 plans and IHCPs is tomorrow (Tuesday)! RSVP: Reserve your seat by registering WHEN: January 14, 2014 TIME: 7:00 pm Eastern time WHERE: Your computer, iOS or Android device
Hi Silvashan, We record all webinars for later viewing. If you sign up for the webinar, you will get an email letting you know when the recording is ready.
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