On Nov. 28, 2018, we updated this post to include two new milestones in the timeline: 2018, November – AAFA meets with representatives of Congressional Asthma and Allergy Caucus to garner support for the inclusion of sesame on food labeling. 2018, November – Congressional Asthma and Allergy Caucus sends a letter prepared by AAFA to FDA Commissioner Gottlieb urging the addition of sesame to the list of major food allergens.
He had a reaction to a cereal made by Van's that was labeled as safe for him, but I think it was a cross-contamination issue instead of a mislabeling. If he had a reaction to a mislabeled food, I don't think that it would occur to me to have the food tested. When he reacted to the cereal, I called and there was a cross-contamination risk for tree nuts that was not labeled, so I don't buy their products anymore.
Hi, Thank-you for sending the info. on Singular!! I had told one Dr. many years ago, that it was causing insomnia, and the dosage was too high. I had asked for a children's dosage,but she said , "No, the insurance would not cover it". I quit taking it. Sincerely, Terri
I didn't see monosodium glutamate, autolyzed yeast, torula yeast extract, titanium dioxide or turkey listed. Those will directly affect my family. I was glad to see soy and shellfish listed. It's scary to think that our allergens may or may not be listed or masked as something else. I am diligent about checking to make sure food is safe to eat. If in doubt, I don't risk it. I look forward to a day when the food industry has to be more thorough and completely honest about what is in the food.
On May 28, 2020, AAFA met with the FDA to talk about how these temporary guidelines will affect the food allergy community. After the meeting, we organized a joint letter with other advocacy groups to send to the FDA. In our letter, we have asked the FDA to clarify these guidelines. We are also asking that the FDA require manufacturers to publicly post any substitutions they make. We will keep you updated on this issue. Read our joint letter to the FDA.
Hi thank you for all you are doing. I have a question still...their use of and definition of “should” concerns me that top 8 can be subbed without a label change..as they say they “should be” and not “must be” before describing the safety paragraph on top 8 etc.. can you look at the highlighted usage in the two attachments please? also, in the paragraph describing what it means “ They are not allowed to substitute the top 8 food allergens (egg, milk, wheat, soy, peanut, tree nut, fish and...
On July 16, 2020, we updated this blog post to include information on how long the temporary guidelines may remain in effect, as well as a chart to help you better understand the guidelines.
We have been looking forward to this patch for years and my kid may be too old by the time it gets approved. So much safer than other peanut allergy treatments.
I’d like to see Sunflower added as well. So many vegan foods use Sunflower oil and my 2 yr old granddaughter is severely allergic. Her allergist said it’s becoming more prevelant
I believe the most important thing is to read the labels!! And when it says "made in a facility", it means that if you are allergic to something under that statement, you can assume that it will be in that product!! I found that the hard way!!
Reading labels is absolutely key! It is important to remember that those "shared lines" and "shared facilities" statements are voluntary and not required. They are also not standardized to have the same meaning from product to product.
Thanks for the encouragement, @esnownd . You're right labeling is a critical issue for everyone in this community. I hope you'll join in some of the many Labeling discussions. We're glad you're here in the KFA community! All the best.
Please do all you can to help label the foods for people who have food allergies. It would save medical bills, lives and us, as parents. Thank you Judy Thelen Sent from my iPad
Thank you for posting this. When my son was allergic to sesame it was very frustrating to deal with the lack of awareness of sesame as a serious allergen. My son had multiple reactions as a young child and the survey only allowed me to report one reaction. I tried to click again and it would not let me take the survey again so I only reported one of the bunch of reactions to undeclared sesame he had.
Yes, thank you for posting this and I am so glad and grateful that people are advocating for the addition of sesame as a "top 9" allergen! My daughter is severely allergic to sesame and it's frustrating to not have it labeled as an allergen. I completed the survey.
Meghan P-K and LISA, thank you both for completing the survey! Your input will definitely help to reinforce the need for sesame to be included on labels. Thank you for sharing your kiddos' stories! Brenda
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