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Family's Every Meal Must Cater to Rare Disorder (Eosinophilic Esophagitis)

[Our apologies!  If you are visiting this link looking for the article on FPIES, please visit this blog post: http://community.kidswithfooda...rome-baffles-doctors]


Thank you to the Aurit family for sharing their perspective on living with eosinophilic esophagitis and for working on passing a law that would require insurers to cover medically-necessary amino acid formula for families in Nebraska.


The Aurit children and their mother, Sarah, all live with eosinophilic esophagitis (EoE), which severely restricts their diets and affects their quality of life.


Read the full article from  to find out what "Taco Night" is like at the Aurit household:


Kids With Food Allergies (KFA) is a division of the Asthma and Allergy Foundation of America (AAFA). AAFA is the largest and oldest nonprofit patient organization dedicated to asthma and allergies. KFA educates families and communities with practical food allergy management strategies to save lives and improve the quality of life for children and their families. Our online community includes public blogs. To post a comment, you will need to register or sign in. Registered members have access to additional specialized support forums for food allergies. Registration is free!

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What a great article! WTG Aurit family for increasing EoE awareness and advocating for everyone in your state that is struggling to afford elemental formulas. 

Star:  Multiple food allergies, Latex, OAS, EAs/SAs/DAs, Asthma, Nasal Polyps
DS (12) Outgrown Rice, Soy, Peas, Lentils, barley and Peanuts!  Underwent medically supervised milk desensitization (oral immunotherapy--OIT) from Jan 2015 to June 2015, passed milk challenge June 2015!   Underwent medically supervised wheat desensitization July 2015 to Sept 2015. Passed wheat challenge September 2015!  Completed egg OIT 2016!  

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