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What a great article! WTG Aurit family for increasing EoE awareness and advocating for everyone in your state that is struggling to afford elemental formulas.
This recipe was first shared on our community a couple years ago. Here is a link to the discussion about this recipe: http://community.kidswithfooda...ent/3682717251982588 (Must be logged in to view discussions on our support forums.)
I don't know that it would work. Rice flour is super-fine ground rice--think of rice that has gone through a grinder--and it has the properties of rice, so it will absorb water like rice does when you cook it. Potato flour is form potatoes that have been dried and I don't know that they would re-hydrate the same way. BUT potato flour isn't so terribly expensive and I would encourage you to try it. Assume it will flop and if it doesn't you will be pleasantly surprised. Also keep in mind that...
I think you will wind up w/ a big lump of glue if you try using potato flour. I'm assuming you really mean potato flour and not potato starch (which I don't think would work either). Potato flour is more like dehydrated potatoes and is really, really gummy (I clogged all the pipes in my sink when I dumped some down the drain while running hot water!) Do you have any other flours to work with??
THat is what I was afraid of. I worked with rice in our last trial, so I KWIM. I also have found that potato treat the same tends to be a lump. Unfortunately, no, we don't have anything else for flour. HOwever, I have found that when things go ary, DS still doesn't mind trying them and we DO find "new foods". So thanks!! If I go for it, I"ll let you know how it turns out. Lisa
We updated this blog post on May 20, 2022, to include the FDA approval of Dupixent for adults and children ages 12 and older and who weigh at least 88 pounds.
Thank you VERY much for this post, Dr. Stukus. My now 17-year-old was diagnosed with EOE in first grade. Eliminating cow's milk - in fact, everything from a cow - has changed his life in wonderful ways! When he was in second grade he suggested that I create a Venn diagram to show his food allergies and EOE overlaps to help others understand. His pediatric GI said, "Can I keep this?" We have allergists and we have GI doctors each with their individual specialties but it's MOM who has to...
My son,18 years old, has been in cure with Jorvesa for 4 years and the EOE has been in remission until now. With out last gastroscopy we found out it came back. The doctor suggested to use DUPIXENT injection (once a week). He said this drug has been used for severe dermatitis and recently is giving important results on EOE. Does anybody has experience about this? Many Thanks Sheila Moriconi
Hello and welcome to the community @Sheila Moriconi ! This is a great question. To help get more eyes on it for other members to chime in, I moved your question to the main support forum here - Anyone used Dupixent for EoE? I will respond there.
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