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Tagged With "advocacy"

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Asthma and Allergy Foundation of America Elevates Patient Voice in ICER Review of New Peanut Allergy Treatments

KFA News Team ·
On June 11, 2019, in Oakland, California, the Institute for Clinical and Economic Review (ICER) and its California Technology Assessment Forum (CTAF) met to assess the clinical effectiveness and value of treatments for peanut allergy. The review examined two new technologies to induce immune tolerance — Viaskin® Peanut (DBV Technologies) and AR101 (Aimmune Therapeutics) — as well as non-commercialized oral immunotherapy (OIT).
Blog Post

2019 State Honor Roll: Does Your State Have Policies to Protect Children With Food Allergies and Asthma?

Kids With Food Allergies ·
States that have policies in place to protect children with allergies and asthma made our 2019 State Honor Roll™ of Asthma and Allergy Policies for Schools (SHR). In the SHR, the Asthma and Allergy Foundation of America (AAFA) identifies states that have comprehensive laws and policies aimed at keeping children with asthma and allergies healthy at school. (KFA is a division of AAFA.)
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AAFA Applauds FDA First Steps Toward Declaring Sesame as Major Allergen

KFA News Team ·
The Asthma and Allergy Foundation of America (AAFA), the premiere nonprofit representing patients with asthma and allergies, applauds the recent request for information and statement from the Food and Drug Administration (FDA) demonstrating its commitment to explore the classification of sesame as a major allergen. Kids With Food Allergies is a division of AAFA.
Blog Post Featured

AAFA Brings Patient Voice to FDA Committee Review on Palforzia, Oral Immunotherapy Treatment for Peanut Allergy

Kids With Food Allergies ·
On Sept. 13, 2019, the U.S. Food and Drug Administration’s (FDA) Allergenic Products Advisory Committee recommended the approval of Aimmune Therapeutics’ peanut treatment, Palforzia. If approved, Palforzia would be ground-breaking for the future of food allergy treatments. What Is Palforzia? Palforzia, also known as AR101, is a type of oral immunotherapy (OIT) for peanut allergy. If approved, it would be the first FDA-approved treatment for peanut allergy. Currently, some allergists already...
Blog Post

AAFA Joins Other Groups to Release Statement on Impact of Government Shutdown on FDA's Review of Food Allergy Treatments

Kids With Food Allergies ·
The Asthma and Allergy Foundation of America (AAFA) has joined with the Allergy & Asthma Network, the Center for Science in the Public Interest and Food Allergy Research & Education to issue a statement about the current government shut down and its impact on the Food and Drug Administration's (FDA) review of food allergy therapies.
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Food Allergy Advocates Meet With Senate About Epinephrine Auto-Injectors on Planes

Kids With Food Allergies ·
The Asthma and Allergy Foundation (AAFA) is working with like-minded groups and community members to find the best way to get epinephrine auto-injectors stocked on airplanes in the United States. Today, our government affairs representative, Mark Vieth, attended a Senate meeting on epinephrine auto-injectors on airplanes. This is a policy priority for AAFA and its food allergy division, Kids With Food Allergies.
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Free Webinar: How Parents Can Change Laws to Protect Students with Food Allergies

Kids With Food Allergies ·
RSVP:   Reserve your seat by registering WHEN:  Tuesday, October 21, 2014 TIME:  1:00 pm Eastern time WHERE:  Your computer, iOS or Android device   Because of strong efforts by food allergy parent advocates in the last 3...
Blog Post

We Need Your Stories About USDA Allergen Labeling

Kids With Food Allergies ·
Have you had trouble reading USDA food labels for top 8 allergens (milk, egg, peanut, tree nut, wheat, soy, fish and shellfish)? The U.S. Department of Agriculture (USDA) Food and Inspection Service regulates meat, poultry, processed egg products and certain foods that contain these products. AAFA needs your story about the challenges of reading these labels to submit to the USDA to prove the need for clearer allergen labeling for the top 8 allergens.
Blog Post

We Need Your Story About Sesame Labeling in the U.S.

Kids With Food Allergies ·
Have you had issues with undeclared sesame or sesame hiding in foods? We need your story to submit to the Food and Drug Administration (FDA) to prove the need for allergen labeling for sesame in the U.S. Send us your examples of the following to advocacy@aafa.org . Foods with undeclared sesame - these are foods where a) “sesame” is not listed in the ingredients, and b) you confirmed separately that there is sesame in the product. Food labels where sesame is listed in the ingredients under an...
Blog Post

What Progress Is Being Made to Improve Sesame Labeling?

Kids With Food Allergies ·
Sesame labeling has been a common topic in the news and our community recently. We wanted to give you an update on progress we’ve made advocating for better sesame labeling.
Blog Post

It’s Complicated: Epinephrine Auto-Injectors on Planes

Kids With Food Allergies ·
Air travel with food allergies can be complicated. Each airline has different food allergy policies, if they have any at all. Because of this, it is important for people with food allergies to have easy access to epinephrine in case of a severe allergic reaction called anaphylaxis [anna-fih-LACK-sis] while in the air. The Asthma and Allergy Foundation of America (AAFA) advocates for airlines to stock epinephrine auto-injectors on planes.
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KFA Applauds PA State Sen. Folmer and the Education Committee for Moving Pennsylvania Epinephrine in Schools Bill, HB 803

Kids With Food Allergies ·
Kids With Food Allergies (KFA) Applauds PA State Sen. Folmer and the Education Committee for Moving Epinephrine in Schools Bill, HB 803 Last week, Pennsylvania’s State Senate Education Committee successfully reported a bill, HB 803 that would...
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Rep. Thomas Murt to Receive Recognition at Mall Walk and Expo in Philadelphia #foodallergy

Lynda ·
News Flash! There’s still time to register for the 4th Annual Kids With Food Allergies Foundation Strides for Safe Kids® Mall Walk and Expo! More Info and Free Registration We are also pleased to announce that...
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Letter to the Department of Health and Human Services: People With Allergies Need Access to Epinephrine

Kids With Food Allergies ·
For the past few months, many members of our community have had trouble filling prescriptions for epinephrine auto-injectors. Some have been affected by shortages due to manufacturing issues. Others have been given one auto-injector when two have been prescribed, as decided by their insurance company. Families are walking away from pharmacies empty-handed, or driving miles out of their way to fill their prescription
Blog Post

Letter to the Makers of the Peter Rabbit Movie: Jokes About Food Allergies Can Put People in Danger

Kids With Food Allergies ·
The new movie, Peter Rabbit, has a scene that may be disturbing to young viewers who have a food allergy. We're asking Hollywood to stop using food allergies as a punchline.
Blog Post Featured

New Bill Would Protect Students With Allergies and Asthma

Kids With Food Allergies ·
The Asthma and Allergy Foundation of America (AAFA) is asking Congress to support the School-Based Allergies and Asthma Management Program Act (H.R. 2468). If passed, this bill would put important protections in place for children with allergies and asthma. Kids With Food Allergies (KFA) is a division of AAFA.
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New California Law: the Natalie Giorgi Sunshine Act Requires Food Allergy Training for All Food Handlers

KFA News Team ·
Governor Newsom has signed the Natalie Giorgi Sunshine Act. This bill was authored by Assemblymember Rebecca Bauer-Kahan (AD16 D-Orinda) and named in honor of Natalie Giorgi. Natalie passed away at age 13 due to a severe allergic reaction to undeclared peanut in a treat while at a summer camp in Sacramento. AB 1532 requires all food handlers to have a simple certification in safe food handling practices for major food allergens. This bill also would add “Organized Camps” to the definition of...
Blog Post

New Illinois Law: Insurance Companies Must Cover Epinephrine Injectors for Children

KFA News Team ·
Illinois Governor J.B. Pritzker signed a law on Aug. 9, 2019, that would require health insurance policies in his state to cover epinephrine injectors for children 18 and younger. House Bill 3435 will be effective on Jan. 1, 2020.
Blog Post

New York Governor Signs Elijah’s Law to Prevent Severe Food Allergy Reactions in Child Day Care Programs

KFA News Team ·
On Sept. 12, 2019, New York Governor Andrew Cuomo signed Elijah's Law (S.218B/A.6971B). Under this law, New York child day care programs have to follow guidelines for preventing and responding to severe food allergy reactions.
Blog Post

New York Passes Gio's Law That Authorizes Emergency Responders to Treat Anaphylaxis

KFA News Team ·
Congratulations to New York and the family of Giovanni Cipriano on the passing of Gio's Law. Gio's Law, S3247B, authorizes certain New York emergency service providers to be trained to treat anaphylaxis, a serious allergic reaction, and carry epinephrine in their vehicles.
Blog Post

New York Residents: Ask Governor Cuomo to Sign Gio's Law

Kids With Food Allergies ·
Gio's Law, S3247B, would authorize certain New York emergency service providers to be trained to treat anaphylaxis, a serious allergic reaction, and carry epinephrine in their vehicles. Gio's Law is named after Giovanni Cipriano. Giovanni passed away unexpectedly at age 14 after an allergic reaction. Tell New York Governor Cuomo to sign Gio's Law.
Blog Post

New York Residents: Ask New York Governor Cuomo to Sign Elijah’s Law

Kids With Food Allergies ·
Elijah’s Law, A6971B, is a bill recently passed by the New York State Assembly and Senate aimed at preventing another tragedy like Elijah's. It is now waiting to be signed by Governor Andrew Cuomo. The bill would require anaphylaxis policies for child day care centers. New York State residents can use this tool to tell New York's governor to support Elijah’s Law.
Blog Post

NJ Residents: Contact Your Local Representatives About Elemental Formula Bill

KFA News Team ·
If you live in New Jersey, take action now by urging your local representative in the New Jersey state legislature to move a bill through the legislative process that covers the cost of special formula for eosinophilic disorders regardless of delivery method. The bill, S2649, gives health insurance coverage for amino acid-based elemental formulas (like Neocate® or EleCare®) for eosinophilic disorders. The bill provides coverage for elemental formula no matter how it is delivered. An infant...
Blog Post

Why the Weatherford, Texas, School Board’s Anaphylaxis Policy Is a Bad Idea

Kids With Food Allergies ·
School is a common place for children to experience anaphylaxis – a serious allergic reaction. But the Weatherford Independent School District in Texas recently took a step backward. They created a policy that guides staff to give Benadryl® for severe allergic reactions, instead of unassigned stock epinephrine. But this goes against medical evidence.
Comment

Re: Letter to the Makers of the Peter Rabbit Movie: Jokes About Food Allergies Can Put People in Danger

SafetyFirst ·
Thank you for making it easy for us to "write" to Sony Pictures. How does this stupid scene make it through the creative/editing processes at Sony?! Don't they test movies with a test audience? The biggest issue I have with this scene is that it's the "hero" (i.e., the one the kids are rooting for to "win") that comes up with the sadistic idea. Other movies have accidental food allergy scenes which are much more acceptable. But to have the hero purposely try to remove the human via an...
Comment

Re: We Need Your Story About Sesame Labeling in the U.S.

Cedella ·
I also want to add that sesame is also used in bath and body care products. It and mustard are incredibly hard allergens to stay away from because they could be "natural flavors" or "spices." We don't buy any processed foods or eat at restaurants. Bakeries have sesame seeds everywhere!
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Re: We Need Your Story About Sesame Labeling in the U.S.

baby runner ·
As a four month old, my son was diagnosed with sesame allergy. We attempted a food challenge with his allergist at age three years. He had "severe life-threatening reaction" (doctor's words) to the smallest dose, equal to about one seed. Continuing to avoid all "natural flavor" and " spice" when companies will not disclose ingredients to us is difficult. Now, as an almost nine year old, he has never eaten in a restaurant. Navigating these school aged years is difficult and handling...
Comment

Re: We Need Your Story About Sesame Labeling in the U.S.

Jbhatia ·
My 9 yr old son is highly allergic to sesame and had a recent near anaphylaxis reaction to sesame consumption from a salad dressing that contained sesame but sesame wasn’t declared as an allergen.If we ever go out to restaurants to eat he can’t take bread and anything with secret spices and sometimes as simple as pasta dish as sesame is being used more abundantly nowadays.Pizza also is tough for the most part as flour for dough may have traces of sesame.Its a shame that we are far behind the...
Comment

Re: Why the Weatherford, Texas, School Board’s Anaphylaxis Policy Is a Bad Idea

SBilliel ·
This is a scary situation. Thank you for your advocacy!
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Re: Why the Weatherford, Texas, School Board’s Anaphylaxis Policy Is a Bad Idea

SLeahy ·
This is such BS. It takes a school nurse 30 minutes to train staff. More is better, but that is all they need to know how to use the auto-injector. On top of that, if they choose to supply with Auvi-Q the auto-injector has audible instructions when you pull the cap to walk anyone through how to use it. They are worried about being on the hook for an unnecessary hospital visit, but is the potential death of a student really worth the risk?
Comment

Re: Why the Weatherford, Texas, School Board’s Anaphylaxis Policy Is a Bad Idea

RW ·
My kiddo is in this school district and having interacted with these schools I'm guessing the problem is more complex than the article has let on. The following is my speculation as a parent. The reason given in the article "The Weatherford Independent School District says they feel that they can’t have someone trained to give an epinephrine auto-injector during all times the school is open." Isn't just regarding the inconvenience of training - all the teachers and admins go through the...
Comment

Re: AAFA Joins Other Groups to Release Statement on Impact of Government Shutdown on FDA's Review of Food Allergy Treatments

Fredric ·
“Delays of any kind prolong the long wait for a potentially life-saving therapy for peanut allergy.” Should read for food allergies. Not just specifically for peanut allergy. Respectfully, Fred Adler > On Jan 22, 2019, at 2:28 PM, Kids With Food Allergies < support@aafa.org > wrote: > > Delays of any kind prolong the long wait for a potentially life-saving therapy for peanut allergy.
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Re: AAFA Applauds FDA First Steps Toward Declaring Sesame as Major Allergen

akkerber ·
So happy this is advancing. Thank you for your work on it! While my daughter has not had a known reaction to sesame her rast and skin response to sesame are off the charts. Avoiding it purchased foods is very tricky.
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Re: What Progress Is Being Made to Improve Sesame Labeling?

Brenda Silvia-Torma ·
This is fantastic news!! Brenda
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Re: What Progress Is Being Made to Improve Sesame Labeling?

Kids With Food Allergies ·
On Nov. 28, 2018, we updated this post to include two new milestones in the timeline: 2018, November – AAFA meets with representatives of Congressional Asthma and Allergy Caucus to garner support for the inclusion of sesame on food labeling. 2018, November – Congressional Asthma and Allergy Caucus sends a letter prepared by AAFA to FDA Commissioner Gottlieb urging the addition of sesame to the list of major food allergens.
Comment

Re: Letter to the Department of Health and Human Services: People With Allergies Need Access to Epinephrine

Nutfreemama1 ·
Thank you for writing this letter. i do wish that even after this shortage that Auvi-q was covered by insurance. The mechanism of delivery is easier and the verbal instructions are gold in a crisis- especially when others are caring for your child or even self injecting - having verbal instructions in a time of crisis makes a huge difference.
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Re: New York Residents: Ask New York Governor Cuomo to Sign Elijah’s Law

Kids With Food Allergies ·
This blog post was edited to update the status of Elijah's Law. Governor Cuomo signed Elijah's Law on Sept. 12, 2019. Congratulations to New York and Elijah's family!
Comment

Re: What the FDA’s Temporary Food Labeling Guidance Really Means for People With Food Allergies

mc21 ·
I didn't see monosodium glutamate, autolyzed yeast, torula yeast extract, titanium dioxide or turkey listed. Those will directly affect my family. I was glad to see soy and shellfish listed. It's scary to think that our allergens may or may not be listed or masked as something else. I am diligent about checking to make sure food is safe to eat. If in doubt, I don't risk it. I look forward to a day when the food industry has to be more thorough and completely honest about what is in the food.
Comment

Re: What the FDA’s Temporary Food Labeling Guidance Really Means for People With Food Allergies

Kids With Food Allergies ·
On May 28, 2020, AAFA met with the FDA to talk about how these temporary guidelines will affect the food allergy community. After the meeting, we organized a joint letter with other advocacy groups to send to the FDA. In our letter, we have asked the FDA to clarify these guidelines. We are also asking that the FDA require manufacturers to publicly post any substitutions they make. We will keep you updated on this issue. Read our joint letter to the FDA.
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Re: What the FDA’s Temporary Food Labeling Guidance Really Means for People With Food Allergies

Kathy P ·
Thanks for your questions...we are continuing the get more answers and clarity. We'll add those to the list.
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Re: What the FDA’s Temporary Food Labeling Guidance Really Means for People With Food Allergies

Nutfreemama1 ·
Hi thank you for all you are doing. I have a question still...their use of and definition of “should” concerns me that top 8 can be subbed without a label change..as they say they “should be” and not “must be” before describing the safety paragraph on top 8 etc.. can you look at the highlighted usage in the two attachments please? also, in the paragraph describing what it means “ They are not allowed to substitute the top 8 food allergens (egg, milk, wheat, soy, peanut, tree nut, fish and...
Blog Post

Strides in Food Allergy Advocacy

Kids With Food Allergies ·
Even though 32 million Americans have food allergies, protections for people with food allergies are still lacking. The Asthma and Allergy Foundation of America (AAFA) and its division Kids With Food Allergies (KFA) have been advocating for better food allergy awareness and for ways to prevent severe allergic reactions. Engagement With FDA During COVID-19 – AAFA is leading a coalition of 13 other food allergy organizations to respond to the Food and Drug Administration's (FDA) "Temporary...
Blog Post Featured

Letter to the FDA: Require Food Manufacturers to Post Substitutions

Kids With Food Allergies ·
Update: We are pleased to announce that on June 18, 2020, the FDA responded to our joint letter on their temporary labeling guidelines. They released a list of FAQs to help clear up confusion. The FDA is making it clear that: Any substitution that involves a top 8 allergen recognized by law and those identified as “priority allergens” by other countries including sesame, celery, lupin, buckwheat, molluscan shellfish and mustard must require a label change by manufacturers and vendors The...
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Re: What the FDA’s Temporary Food Labeling Guidance Really Means for People With Food Allergies

Kids With Food Allergies ·
On July 16, 2020, we updated this blog post to include information on how long the temporary guidelines may remain in effect, as well as a chart to help you better understand the guidelines.
Blog Post Featured

What the FDA’s Temporary Food Labeling Guidance Really Means for People With Food Allergies

Kids With Food Allergies ·
Update – July 16, 2020: The FDA's temporary labeling guidance will remain in effect for the length of the public health emergency (PHE) due to the spread of the new coronavirus (SARS-CoV-2). A PHE is determined and declared by the secretary of the Department of Health and Human Services (HHS). The PHE remains in place during the emergency or 90 days, but may be extended by the secretary. Though the current PHE is set to expire on July 25, 2020, HHS Secretary Azar has said he will extend the...
Kids With Food Allergies
A Division of the Asthma and Allergy Foundation of America
1235 South Clark Street Suite 305, Arlington, VA 22202
Phone: 1-800-7-ASTHMA (1.800.727.8462)
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