Great tips! We also bought some trays that are sectioned for different foods (like TV trays), so we always have a clean surface - great for stopping at rest stops or eating in a motel. I also made a video with a few tips that we practice - On the Road with Food Allergies .
Constance, I never realized how much American culture centers socialization on food until I had a child with severe peanut and tree nut allergies. We have fought long and hard to rethink food as nourishment, not entertainment, and our daughter has grown to see food in this way. When we visit others, we choose not to eat, to arrive after people eat (or to leave before food is served), or to bring our daughter her own food. When we entertain and decide to include food, we provide all food and...
Nutfreemama - I was at a Summit where a Hershey's rep talked about what they do to protect and inform the food allergy community with their labeling. That was where we learned about this new bar. That exact issue about the wrapper was raised, especially in light of the recent anaphylaxis fatality from the Chips Ahoy cookies with the label pulled back. The actual candy looks very different and you can see the colored pieces in the chocolate. But since it is the same size bar as the "safe"...
May I post this guide on my blog or would you prefer I post the link? I want to spread the word about your organization as well as inform people directly because I have met so many people who seem to feel as if they have to reinvent the wheel of resources. Thank you for creating these lists.
My son was diagnosed with life threatening food allergies as an infant. He could not tolerate any over the counter infant formulas. I had to go through several pediatricians to get to the right help. This was 14 years ago, when there was much less understanding of food allergies and little support. I received a prescription for Neocate Formula, which had to be purchased through a pharmacy but insurance did not cover it. Paying the full cost of this product was unbelievable. Looking back, I...
My adult son John, 32 yrs old, has been living and struggling with severe IgE-mediated nut allergies and anaphylaxis to peanuts (and all nuts) since infancy. When a college student, John was hospitalized twice for biphasic allergic reactions and anaphylaxis following accidental food exposures on campus. It is known that most adverse food exposures are accidental. For John, campus exposures happened even after my best efforts to inform and educate college food service management and...
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