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Tagged With "registry"

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Grateful for Your Help in Keeping Kids with Food Allergies Safe and Healthy

Kids With Food Allergies ·
For Thanksgiving, we would like to take this opportunity to thank all who have supported our important work this past year.  You help us save lives...
Blog Post

Patient-Powered Food Allergy Research

Kids With Food Allergies ·
We recently launched a new Food Allergy Patient & Family Registry. Designed to collect data that will help amplify the voice of individuals and families with food allergies, this is the only registry of its kind. Here are three reasons why you should consider participating and adding your voice to this research.
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Help Drive the Future of Food Allergy Research

Kids With Food Allergies ·
Does your family have food allergies? If so, we invite you to inform food allergy research. Our Food Allergy Patient & Family Registry (Registry) is a web-based program that gives you a place to share your experiences. The Registry is a program to collect, manage and analyze data from and about people with food allergies. It will advance research through patient information. Our goal is to find ways to prevent and cure food allergy. The first and only “patient-centered” food allergy...
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Re: Help Drive the Future of Food Allergy Research

Elisa2 ·
Hi: I could not access the registry. It never responded. I was in a perpetual state of “one moment please”….
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Re: Help Drive the Future of Food Allergy Research

K8sMom2002 ·
Thanks! Can you tell me a little bit about what browser you're using? I'll make sure to send an alert to the folks who work with the registry.
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Re: Help Drive the Future of Food Allergy Research

Elisa2 ·
Safari 10.0.3 on a Mac using El Capitan
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Re: Help Drive the Future of Food Allergy Research

K8sMom2002 ·
Thanks! I'll forward this info, too. I know I was able to access the registry some months ago using Safari on Lion ... we'll get it sorted out for you. Thanks for wanting to participate! I have a feeling that this registry is going to help drive food allergy research far!
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Re: Help Drive the Future of Food Allergy Research

Kathy P ·
Hi @Elisa2 - Can you tell me how far you got in the process? Were you able to create your account? Able to log in? On what page did it get stuck for you? I just went through the process to create a new account and then log in. There are pages that load quite slowly.
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Re: Help Drive the Future of Food Allergy Research

Elisa2 ·
The enter registry button…. I left it running for some time…it never got past “one moment please"
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Re: Help Drive the Future of Food Allergy Research

Kathy P ·
Thanks - can you try it again when you a chance?
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Re: Help Drive the Future of Food Allergy Research

Elisa2 ·
still no joy
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Re: Help Drive the Future of Food Allergy Research

Elisa2 ·
still not working. I let it run for 30 min.
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Re: Help Drive the Future of Food Allergy Research

Kathy P ·
Thanks Elisa - I sent you private message. We'll get this sorted out for you. Thanks for your patience and persistence!
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Re: Grateful for Your Help in Keeping Kids with Food Allergies Safe and Healthy

lisa s ·
Trying to find the Apple crisp recipe. Was just about to make it and it won't load
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Re: Grateful for Your Help in Keeping Kids with Food Allergies Safe and Healthy

Kathy P ·
@lisa s - here you go: Apple Crisp 1 Tbsp margarine 7-8 medium baking apples (preferably Granny Smith) 1 cup all-purpose or sweet rice flour 1/2 tsp salt 1 tsp cinnamon 1 cup brown sugar 1/2 cup margarine Peel, core, and thinly slice apples. Grease baking dish lightly with some of the tablespoonful of margarine, and place apples inside. Dot with additional margarine. In a medium bowl, combine flour, brown sugar, salt, and cinnamon. Mix well. Cut in the margarine to make coarse crumbs. Spread...
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Re: Grateful for Your Help in Keeping Kids with Food Allergies Safe and Healthy

lisa s ·
Thank you so much!!! Now my son can have a dessert for thanksgiving
Kids With Food Allergies
A Division of the Asthma and Allergy Foundation of America
1235 South Clark Street Suite 305, Arlington, VA 22202
Phone: 1-800-7-ASTHMA (1.800.727.8462)
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