Tagged With "registry"
Blog Post
Grateful for Your Help in Keeping Kids with Food Allergies Safe and Healthy
For Thanksgiving, we would like to take this opportunity to thank all who have supported our important work this past year. You help us save lives...
Blog Post
Patient-Powered Food Allergy Research
We recently launched a new Food Allergy Patient & Family Registry. Designed to collect data that will help amplify the voice of individuals and families with food allergies, this is the only registry of its kind. Here are three reasons why you should consider participating and adding your voice to this research.
Blog Post Featured
Help Drive the Future of Food Allergy Research
Does your family have food allergies? If so, we invite you to inform food allergy research. Our Food Allergy Patient & Family Registry (Registry) is a web-based program that gives you a place to share your experiences. The Registry is a program to collect, manage and analyze data from and about people with food allergies. It will advance research through patient information. Our goal is to find ways to prevent and cure food allergy. The first and only “patient-centered” food allergy...
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Re: Help Drive the Future of Food Allergy Research
Hi: I could not access the registry. It never responded. I was in a perpetual state of “one moment please”….
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Re: Help Drive the Future of Food Allergy Research
Thanks! Can you tell me a little bit about what browser you're using? I'll make sure to send an alert to the folks who work with the registry.
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Re: Help Drive the Future of Food Allergy Research
Thanks! I'll forward this info, too. I know I was able to access the registry some months ago using Safari on Lion ... we'll get it sorted out for you. Thanks for wanting to participate! I have a feeling that this registry is going to help drive food allergy research far!
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Re: Help Drive the Future of Food Allergy Research
Hi @Elisa2 - Can you tell me how far you got in the process? Were you able to create your account? Able to log in? On what page did it get stuck for you? I just went through the process to create a new account and then log in. There are pages that load quite slowly.
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Re: Help Drive the Future of Food Allergy Research
The enter registry button…. I left it running for some time…it never got past “one moment please"
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Re: Help Drive the Future of Food Allergy Research
Thanks - can you try it again when you a chance?
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Re: Help Drive the Future of Food Allergy Research
still not working. I let it run for 30 min.
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Re: Help Drive the Future of Food Allergy Research
Thanks Elisa - I sent you private message. We'll get this sorted out for you. Thanks for your patience and persistence!
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Re: Grateful for Your Help in Keeping Kids with Food Allergies Safe and Healthy
Trying to find the Apple crisp recipe. Was just about to make it and it won't load
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Re: Grateful for Your Help in Keeping Kids with Food Allergies Safe and Healthy
@lisa s - here you go: Apple Crisp 1 Tbsp margarine 7-8 medium baking apples (preferably Granny Smith) 1 cup all-purpose or sweet rice flour 1/2 tsp salt 1 tsp cinnamon 1 cup brown sugar 1/2 cup margarine Peel, core, and thinly slice apples. Grease baking dish lightly with some of the tablespoonful of margarine, and place apples inside. Dot with additional margarine. In a medium bowl, combine flour, brown sugar, salt, and cinnamon. Mix well. Cut in the margarine to make coarse crumbs. Spread...
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Re: Grateful for Your Help in Keeping Kids with Food Allergies Safe and Healthy
Thank you so much!!! Now my son can have a dessert for thanksgiving
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Re: Grateful for Your Help in Keeping Kids with Food Allergies Safe and Healthy
Happy to help!