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Blog Post CommentI enjoyed the July 31st webinar! It was very informative. I do disagree with one point. He stated that a small study showed that only a rash occurred with peanut butter spread on an allergic child's skin. My child has had hives and swelling with just skin contact....Many times. For example; After a kiss on the cheek by someone who just ate a PBJ, my child had a face full of hives and swollen lips. After sitting next to a child eating peanuts, she had hives all over her body, and a runny...
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Blog Post CommentHello and thank you for attending our webinar and for your comments. We have another school-focused webinar tomorrow - this time a panel discussion with two allergists and 4 school nurses. I will forward your question to them for a response.
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Blog Post CommentThank you! I am signed up for it, and I am looking forward to it! My daughter just started Kindergarten, and we are trying to figure out where she should sit at lunch etc. I appreciate all that you do. This is very timely for us! Thanks!
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Blog Post CommentMy daughter has a life threatening nut allergy. She is 12 andhas extreme anxiety because of it. Is there a forum or blog for her that she herself can talk to others same ay have some of the same feelings. If not, is there a way to create one?
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Blog Post CommentThanks for asking. We've had parents request a children's or teens forum, but as an organization, we'd need to be compliant with the federal law, COPPA - Children's Online Child Protection and Privacy Act. As such, we'd need to have parental consent for children under age 13 to participate and we'd have to monitor conversations to make sure children are adequately protected on our forums. We've asked for parent volunteers to help with an effort like this, but haven't had anyone really come...
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Blog Post CommentSounds like a good idea, but I'm not sure my son (12) would participate ! I can imagine more girls wanting to though.Look at it this way, how many dads do we see on the forums One other thing I'm not sure about is would the kids be able to see our posts ? i think they might not be too happy about some of the things we say about them at times, could find it embarrassing
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Blog Post CommentI thought I would see more comments from other parents who may have children have similar feelings. I would be interested in helping set this up. Is there a phone number I could contact you at so we could talk live.
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Blog Post CommentHi Sandy! I encourage you to post on the Support Forums here at KFA. There are a lot of parents here with similar feelings. Here is the link to the main forum: http://community.kidswithfooda...rum/forum/main_forum I believe there were over 800 parents on the webinar so I am sure you will find some here on the KFA forums.
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Blog Post CommentThank you. I just posted something and also found a lot of other helpful topics to read up on. Thank you!
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Blog Post CommentThere is still time to register and join us for this great topic!
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Blog Post CommentParties, Play Dates, Babysitters: How to Transition Care for Children with Food Allergies - Watch the video at: http://community.kidswithfooda...sthash.2RGlgtLi.dpuf
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Blog Post CommentGreat resource, thank you so much! Dining out with even minor food allergies can be absolutely daunting.
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Blog Post CommentAbout the Speakers Sloane Miller, food allergy advocate, author and life coach, is founder and President of Allergic Girl Resources, Inc., a consultancy devoted to food allergy awareness. Ms. Miller was born with food allergies and developed asthma and environmental allergies as a child. She consults with private clients, the healthcare, food and hospitality industries, government and not-for-profit advocacy organizations. Ms. Miller earned her Master of Social Work at the New York...
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Blog Post CommentLink to part 1 -- http://community.kidswithfooda...ols-tips-for-parents Link to part 2 -- http://community.kidswithfooda...hools-ask-the-expert
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Blog Post CommentTerrific webinar though I wish the small study of 30 children who showed no reaction to peanut butter being a foot from their faces would not have been included. My child has twice suffered angioedema after being in the same room as an open jar of peanut butter for only moments so this information works counter to my efforts in accommodating my child in school. Otherwise a helpful presentation...thank you!
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Blog Post CommentWell said! I've seen a lot of guilt responses to the study.
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Blog Post CommentI haven't heard anything about this study, but food allergies aren't anyone's fault!!
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Blog Post CommentGreat article :-) Thanks for taking the time to post it KFA!
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Blog Post CommentEliezrah - this is in reference to the LEAP study that was announced at AAAAI last weekend. You can read more about it here (link is also in the above article) Landmark Study May Change How We Feed Peanut Butter To Infants
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Blog Post CommentThanks Kathy. I can see why some people can read it as blaming the parents.
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Blog Post CommentA very big thank you! This is fabulous information that needs to be heard more. I'm editing my blog post to include a link to KFA's post. Thank you again!
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Blog Post CommentThank you Jessica for including a link! And for helping us get the info out!
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Blog Post Comment❤️Thank you doctors for posting this. I have wondered what I could've, should've, or would've done better, different, or something. Beating myself up over it doesn't change anything. I know all those parents out there with severely peanut allergic children did not do everything the same. I actually think it would've been a lot more difficult to watch my infant have an anaphylactic reaction than my 2 year old. At least she could talk to me.
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Blog Post CommentA free press is not free to lie, mislead, and over-hype and it is high time to hold them accountable for all the damage they are doing to kids with allergies and society in general. The press is hugely irresponsible in how they report scientific findings. Science is slow, particular, and often very inconclusive. How many kids are going to DIE because of irresponsible reporting?! We have ongoing battle with family members and school administrators who deep in their hearts believe this is our...
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Blog Post CommentI wish this could have applied to my children. My 4yo boy tested highly positive to peanuts at 6 months of age, so he would have been deemed too high risk to participate, anyway. And then there's my daughter, who has FPIES and still hasn't gotten around to trying peanuts. Now I'm terrified that the extremely slow process of introducing food into her diet means I've already missed my window of early prevention. She's definitely high risk for developing a peanut allergy since she has a sibling...
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File CommentFull blog post with list of resources that accompany this video: http://community.kidswithfooda...-video-and-resources
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Blog Post CommentI imagine this post will be shared with many relatives and friends. Thank you for posting the most recent research here! (my first question was, "does this mean people should run out and try this combined therapy?" and my second was, "Hmm. I have a small child and I wonder what the side effects of this drug would be on her physical, neurological, and hormonal development if she did this.." Thanks again for all your work here, I absolutely love and trust this site!
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Blog Post CommentHi A-Ma, This type of treatment is still undergoing research studies and is not being performed in allergy clinics across the country yet. The drug described in this study is actually an injectable medicine for asthma that has not been proven/approved for use in other allergic diseases yet. It is currently only approved for use in children over age 12. The concerns you mentioned about side effects and how it may affect the child are all great questions that will be investigated as the...
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Blog Post CommentHere is the link to the video and list of resources in case you missed the live event: http://community.kidswithfooda...video-and-resources-
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Blog Post CommentTraining videos for all available epinephrine autoinjectors are available at: Adrenaclick™ ( www.adrenaclick.com ) Auvi-Q™ ( www.auvi-q.com ) Epinephrine Injection, USP auto-injector, authorized generic (AG) of Adrenaclick™ ( www.epinephrineautoinject.com ) EpiPen™ and EpiPen Jr™ ( www.epipen.com ) REFERENCES Product information for Adrenaclick™. Amedra Pharmaceuticals LLC. Horsham, PA 19044. June 2012. Product information for Auvi-Q™. Sanofi-Aventis U.S. Bridgewater, NJ 08807. September...
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Blog Post CommentI understand that Xolair is experimental for children with food allergies and only for kids 12 and up. But it is my understanding that OIT and SLIT is being done in regular clinic settings and not just in clinical trials . Is the any hospital/ clinic in the country that is doing OIT or SLIT for children with fish allergies? I have seen it only for nuts, milk and eggs. Thanks for any information you have.